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PSA still undetectable and testosterone doubles to 1.6
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Brysonal
in
Fight Prostate Cancer
4 hours ago
Docetaxel
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
JolleySprings
in
Advanced Prostate Cancer
6 hours ago
10 weeks in, not feeling great
I am a 57 year old woman, and had an Nstemi 10 weeks ago, and one stent fitted. I am on 2.5 bisoprolol, tricagrelor, 10 of ramipril, 80 statins and also aspirin. My ejection fraction was poor at 45 (which I found a bit upsetting when it transpired I was the lowest in the rehab class) I was on HRT before
I am a 57 year old woman, and had an Nstemi 10 weeks ago, and one stent fitted. I am on 2.5 bisoprolol, tricagrelor, 10 of ramipril, 80 statins and also aspirin. My ejection fraction was poor at 45 (which I found a bit upsetting when it transpired I was the lowest in the rehab class) I was on HRT before
Pinksock2
in
British Heart Foundation
16 hours ago
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New to this group/been dealing with FND for a few years
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
Hi! I'm Angie and have been battling with weird physical symptoms for 3 1/2 years to Finally get a Functional Neurological Disorder/Functional Movement Disorder diagnosis. I am now in Cognitive Behavioral Therapy to re-train my brain and Physical Therapy to address the physical side of things and it
eclipsetucker
in
Functional Neurological Disorder - FND Hope
20 hours ago
Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
21 hours ago
hysterectomy
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
hi all I’ve just had an appointment with my consultant and looking for some advice..I’m 42 with severe endo and he’s advised a total hysterectomy with hrt.. but he’s advised me the wait will be another yr 😞 AGAIN! Anyway because of the wait he has suggested I start the process early by having an injection
Peetzo
in
Endometriosis UK
2 days ago
Anyone else suffering arm pains in conjunction with ADT hot flashes?
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
LeakyLad
in
Advanced Prostate Cancer
2 days ago
Five years later
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
ArnieAfrica
in
Advanced Prostate Cancer
2 days ago
Severe palputations...explanation?
Hi. I am 56 years old with a history of SVT, low blood pressure, and night time panic attacks causing a very fast heart beat. I have been on a low dose of bisoprolol for several years now which has largely managed my symptoms. However after getting severe anxiety upon menopause, I started HRT and Sertraline
Hi. I am 56 years old with a history of SVT, low blood pressure, and night time panic attacks causing a very fast heart beat. I have been on a low dose of bisoprolol for several years now which has largely managed my symptoms. However after getting severe anxiety upon menopause, I started HRT and Sertraline
Hypat1a
in
British Heart Foundation
2 days ago
After Lupron I have been having seizures
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
darrylw
in
Advanced Prostate Cancer
3 days ago
How do I update my bio?
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
happycamperguy
in
Advanced Prostate Cancer
3 days ago
T never recovered after ADT and 44 EBRT sessions.
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
I had gleason 7 /3+4. Completed ADT and EBRT (44 sessions) November of 2020. Undetectable psa up until 6 months ago. Then went to 0.1. I had been taking Androgel ( 2 pumps daily) my MO declared that I was " out of remission" and I then stopped the TRT. Since then, I've had two psa tests at 3 month intervals
Chasu
in
Advanced Prostate Cancer
3 days ago
skin redness after 3 weeks of pelvic radiation
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
brilliant17
in
Advanced Prostate Cancer
3 days ago
Menopaused. Would starting HRT mean reducing NDT? Has anyone experience of this please?
Hi Everyone, Still searching to be less housebound and energised. It's another thing to try before I throw in the towel. Any thoughts and experiences would be greatly appreciated ,as my TSH continues to decline out of range and T4 andT3 both low in NHS range. every best wish , G
Hi Everyone, Still searching to be less housebound and energised. It's another thing to try before I throw in the towel. Any thoughts and experiences would be greatly appreciated ,as my TSH continues to decline out of range and T4 andT3 both low in NHS range. every best wish , G
Gillybean1
in
Thyroid UK
3 days ago
Minor psa increase again
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Runner1957
in
Prostate Cancer Network
4 days ago
What is the difference between pre-TT Graves' and post-TT Graves?
Hi all, thank you again for all the helpful comments on my last post. I'm really glad to be a part of this community - I only wish I'd known about it a little over 5 years ago, but perhaps that's a post for another day. I wanted to ask if anyone had any insight on what happens to the body when one's
Hi all, thank you again for all the helpful comments on my last post. I'm really glad to be a part of this community - I only wish I'd known about it a little over 5 years ago, but perhaps that's a post for another day. I wanted to ask if anyone had any insight on what happens to the body when one's
lau99
in
Thyroid UK
4 days ago
Patient refuses abiraterone
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
Healing1826
in
Advanced Prostate Cancer
4 days ago
Thyroid Nodules - Advice Please 🙏
I'm new here and it's my first time posting. It was noticed I had a large nodule on my thyroid while having a CT scan for an unrelated issue 5 weeks ago. I can feel a large lump on the right hand side of my neck which is also visible and an ultrasound scan has since confirmed there are several nodules
I'm new here and it's my first time posting. It was noticed I had a large nodule on my thyroid while having a CT scan for an unrelated issue 5 weeks ago. I can feel a large lump on the right hand side of my neck which is also visible and an ultrasound scan has since confirmed there are several nodules
StaffyMam
in
Thyroid UK
4 days ago
ovarian cysts
Hi everyone. I’m new here and hope it’s ok to post my particular circumstances to see if anyone here has any advice or insights they can share? I am 54 years old and (think) I am post menopausal as being taking HRT for last 4 years. I have 4 cysts on my R ovary and 3 on my L ovary - I’ve had 4 monthly
Hi everyone. I’m new here and hope it’s ok to post my particular circumstances to see if anyone here has any advice or insights they can share? I am 54 years old and (think) I am post menopausal as being taking HRT for last 4 years. I have 4 cysts on my R ovary and 3 on my L ovary - I’ve had 4 monthly
daintees
in
My Ovacome
5 days ago
Estrogens and Castrate/Treatment Resistance?
Has anyone using estrogens (estradiol) as the primary agent of ADT (androgen deprivation therapy) had their prostate cancer become resistant (androgen independent) to the treatment? I also do not know of a single instance of any man using TDE as the primary agent of ADT (which I have been lobbying my
Has anyone using estrogens (estradiol) as the primary agent of ADT (androgen deprivation therapy) had their prostate cancer become resistant (androgen independent) to the treatment? I also do not know of a single instance of any man using TDE as the primary agent of ADT (which I have been lobbying my
Lost_Sheep
in
Advanced Prostate Cancer
5 days ago
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