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Mycophenolate
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6months
work after 3months albeit on a phased back but I’ve been full time for last 5 weeks for me personally I’d say the hardest part of this journey has been the medication after as it really hit me hard but over time they lower in strength and the body gets used to them am on 4mg of Tacrolimus and 2g of
mycophenolate
work after 3months albeit on a phased back but I’ve been full time for last 5 weeks for me personally I’d say the hardest part of this journey has been the medication after as it really hit me hard but over time they lower in strength and the body gets used to them am on 4mg of Tacrolimus and 2g of
mycophenolate
1football
in
British Liver Trust
6 years ago
Mycophenolate
Hi, I'd really like to hear people's experiences with
mycophenolate
please? Thanks.
Hi, I'd really like to hear people's experiences with
mycophenolate
please? Thanks.
cathylou
in
LUPUS UK
6 years ago
I'm new here
I take
Mycophenolate
, Amlodipine, and yearly Iloprost Infusion. Also I recently finished taking Prednisolone.
I take
Mycophenolate
, Amlodipine, and yearly Iloprost Infusion. Also I recently finished taking Prednisolone.
Scooterboy63
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
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Does anyone have gene mutation ATP1a3?
My daughter who is now 12 years old and started high school in August, was prescribed
Mycophenolate
in 2014.
My daughter who is now 12 years old and started high school in August, was prescribed
Mycophenolate
in 2014.
Leona89
in
Ataxia UK
6 years ago
Wrong about my rheumatologist!
She said the hydroxy isn't working and when I become infection free she will start me on
mycophenolate
. She scared me with how seriously she took everything - grown accustomed to being ignored! She thinks the disease as she called it is progressing.
She said the hydroxy isn't working and when I become infection free she will start me on
mycophenolate
. She scared me with how seriously she took everything - grown accustomed to being ignored! She thinks the disease as she called it is progressing.
cathylou
in
LUPUS UK
6 years ago
The story so far lol
He also wants me to discontinue
mycophenolate
and begin azathioprine. His rationale being, that another immunosuppressant might suit me better and I may feel better with that treatment,. Also, he said that azathioprine works differently to
mycophenolate
.
He also wants me to discontinue
mycophenolate
and begin azathioprine. His rationale being, that another immunosuppressant might suit me better and I may feel better with that treatment,. Also, he said that azathioprine works differently to
mycophenolate
.
Suzycat
in
Vasculitis UK
6 years ago
Meds
Hi just wondering if anyone has been on
mycophenolate
and how did you find it ,x
Hi just wondering if anyone has been on
mycophenolate
and how did you find it ,x
Dion3844o1
in
Lung Conditions Community Forum
6 years ago
Mycophenolate mofetil prescribed for DLE
Hiya Just been prescribed
Mycophenolate
mofetil for DLE along with weekly blood tests to monitor something or other (brain freeze -apologies!). Has anyone with DLE seen an improvement in their condition using this drug and if so how long did this take?
Hiya Just been prescribed
Mycophenolate
mofetil for DLE along with weekly blood tests to monitor something or other (brain freeze -apologies!). Has anyone with DLE seen an improvement in their condition using this drug and if so how long did this take?
Biri
in
LUPUS UK
6 years ago
Having a flare
That didn't work so I started
Mycophenolate
250MG 2x's a day & Hydroxychloriqine at noon. I also have fibromyalgia & sjogrens disease. My Rumy increased my
mycophenolate
up to 500MG 2xs a day and I got a lump in my throat.
That didn't work so I started
Mycophenolate
250MG 2x's a day & Hydroxychloriqine at noon. I also have fibromyalgia & sjogrens disease. My Rumy increased my
mycophenolate
up to 500MG 2xs a day and I got a lump in my throat.
2sfamily
in
LUPUS UK
6 years ago
New Symptoms
I have previously been on Methotrexate,
Mycophenolate
and Azathiprine and nothing helped. I am currently on Hydroxychloroquine and Mepacrin but still having no luck. Has anyone found anything that helps prevent hair loss?
I have previously been on Methotrexate,
Mycophenolate
and Azathiprine and nothing helped. I am currently on Hydroxychloroquine and Mepacrin but still having no luck. Has anyone found anything that helps prevent hair loss?
Athens94
in
LUPUS UK
6 years ago
Reduced steroids finally but for how long!??!!!
Despite being on
mycophenolate
5 times a day and hydroxychloroquine twice daily!
Despite being on
mycophenolate
5 times a day and hydroxychloroquine twice daily!
Sara_A
in
LUPUS UK
6 years ago
Anyone else on Mycophenolate with no spleen?
Hi I had my spleen removed as part of the treatment for ITP and I take both penicillin and
mycophenolate
twice a day.
Mycophenolate
is an immunosuppresant. As a result I am a priority case for flu jabs each year. When i have a flu jab i am really unwell for a month.
Hi I had my spleen removed as part of the treatment for ITP and I take both penicillin and
mycophenolate
twice a day.
Mycophenolate
is an immunosuppresant. As a result I am a priority case for flu jabs each year. When i have a flu jab i am really unwell for a month.
NickyD
in
ITP Support Association
6 years ago
stiff persons syndrome
stiff person syndrome.I was diagnosed with ataxia 2 years ago but sheffield prof thinks i have stiff persons syndrome as my legs are getting so stiff.i am on
Mycophenolate
for 2 1/2 months now but made no difference at all but prof says it can take upto 6 months.Is there anyone else with the same diagnoses.or
stiff person syndrome.I was diagnosed with ataxia 2 years ago but sheffield prof thinks i have stiff persons syndrome as my legs are getting so stiff.i am on
Mycophenolate
for 2 1/2 months now but made no difference at all but prof says it can take upto 6 months.Is there anyone else with the same diagnoses.or
golfingsue
in
Ataxia UK
6 years ago
Whats up?
Still on low dosage of
mycophenolate
. A few months ago I started getting pain in my fingers. This pain now in my feet, my back, my hips and my elbows. I was on statins but came off them 5 weeks ago in case they were causing the issue. Any idea what could be causing the pains?
Still on low dosage of
mycophenolate
. A few months ago I started getting pain in my fingers. This pain now in my feet, my back, my hips and my elbows. I was on statins but came off them 5 weeks ago in case they were causing the issue. Any idea what could be causing the pains?
RMC101
in
Diabetes & Hypertension Help Society
6 years ago
Coping with a vasculitis relapse
Or using other immunosuppressive agents at increased doses, like steroids, Methotrexate,
Mycophenolate
Mofetil (=Cellcept) and Azathioprine. Basically yes, there are lots the medics can do. And there is no obvious reason why this treatment shouldn’t be successful.
Or using other immunosuppressive agents at increased doses, like steroids, Methotrexate,
Mycophenolate
Mofetil (=Cellcept) and Azathioprine. Basically yes, there are lots the medics can do. And there is no obvious reason why this treatment shouldn’t be successful.
vivdunstan
Volunteer
in
Vasculitis UK
6 years ago
Anyone tried Abatacept to replace methotrexate and prednisolone?
The methotrexate was replaced by fluminomide and I've been taking prednisone and
mycophenolate
for the lung problem. A different rheumatologist has recommended that I change treatment to a biological agent called Abatecept. Has anyone any experience of this? Thanks.
The methotrexate was replaced by fluminomide and I've been taking prednisone and
mycophenolate
for the lung problem. A different rheumatologist has recommended that I change treatment to a biological agent called Abatecept. Has anyone any experience of this? Thanks.
SteveDW
in
Lung Conditions Community Forum
6 years ago
Transition from Cyclophosphamide to Mycophenolate
My rheumatologist proposes to then start me on
mycophenolate
. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring? Any experiences you may be able to share would be appreciated.
My rheumatologist proposes to then start me on
mycophenolate
. I am wondering how this transition may affect me. Assuming it takes several weeks to build up in my system am I at risk of my GPA flaring? Any experiences you may be able to share would be appreciated.
Hidden
in
Vasculitis UK
6 years ago
Headache
Taking
mycophenolate
, ranatidine, omoperazole and Pentasa. Had a head MRI and had back of my eyes checked out but nothing revealed cause for headaches. It’s like a dull ache at back of head and cones and gies during the day and is worse in evening and is getting hard to cope with.
Taking
mycophenolate
, ranatidine, omoperazole and Pentasa. Had a head MRI and had back of my eyes checked out but nothing revealed cause for headaches. It’s like a dull ache at back of head and cones and gies during the day and is worse in evening and is getting hard to cope with.
NSV69
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Results from Mycophenolate tablets
Hi I would be interested to hear from anyone who suffers from IPF who are taking or have taken
Mycophenolate
tablets and what results you have experienced and also if you have had any side effects. Also how you cope with IPF.
Hi I would be interested to hear from anyone who suffers from IPF who are taking or have taken
Mycophenolate
tablets and what results you have experienced and also if you have had any side effects. Also how you cope with IPF.
Piperava
in
Lung Conditions Community Forum
6 years ago
Prolapsed uterus - bowel movement?
She has said that this is more likely to be the reason for my recurrent uti's and not
mycophenolate
and she will help me with my overactive bladder.
She has said that this is more likely to be the reason for my recurrent uti's and not
mycophenolate
and she will help me with my overactive bladder.
Bronn
in
LUPUS UK
6 years ago
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