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Help please
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
Zolap
in
Thyroid UK
6 months ago
COMBINATION THERAPY IS NOW UNDER REVIEW
This review indicates how and why combination therapy may be used in treatment. Interesting in itself, but another example of cherry-picking evidence ( we aren't mentioned in spite of starting this concept in 2012. Good cliquish admission where the "nonprofessionals"are best kept well out of the limelight
This review indicates how and why combination therapy may be used in treatment. Interesting in itself, but another example of cherry-picking evidence ( we aren't mentioned in spite of starting this concept in 2012. Good cliquish admission where the "nonprofessionals"are best kept well out of the limelight
diogenes
in
Thyroid UK
10 months ago
HRT related
Hello 🌷 Please may I ask how much HRT are ladies on? Last night I accidentally left my old Evorel patch on (1 put a new one on every 3.5 days instead of the 3 day /4 day combo) and put on the new one. I realised it this morning and took the old one off. I guess it was still giving me oestrogen because
Hello 🌷 Please may I ask how much HRT are ladies on? Last night I accidentally left my old Evorel patch on (1 put a new one on every 3.5 days instead of the 3 day /4 day combo) and put on the new one. I realised it this morning and took the old one off. I guess it was still giving me oestrogen because
Amazon07
in
Thyroid UK
6 months ago
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Lupron SEs - legs
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
Appreciate this forum and all whom post. I’m amidst 2-year course of Lupron and experiencing persistent leg pain, worst in both Achilles tendons and calves. Recent salvage IMRT, too. Thoughts on managing such SEs appreciated. Cheers.
NickKnick
in
Advanced Prostate Cancer
3 months ago
Is this low B12 / folate?
Hi all! Curious if anyone can advise please- I am fatigued (really struggle at work), brain fog, aches and pains - have been taking HRT for few months but not cured it! Also stable levothyroxine for many years and have Psoriasis although mild. Wondering if I should ask GP for further investigation
Hi all! Curious if anyone can advise please- I am fatigued (really struggle at work), brain fog, aches and pains - have been taking HRT for few months but not cured it! Also stable levothyroxine for many years and have Psoriasis although mild. Wondering if I should ask GP for further investigation
Ajom
in
Thyroid UK
6 months ago
some great news….
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
My son will be turning 4 this January and that in and of itself is great news. Nothing is scarier than having just given birth and not knowing what the future of your precious new child will hold, like simply living. my son was born with PUV and severe reflux bilaterally. Of course there was renal
MotherofBarbearians
in
Parents of Children with Kidney Disease
11 months ago
Time to PSA Nadir is related to progression-free-survival
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
janebob99
in
Advanced Prostate Cancer
6 months ago
Spine metastasis
My father in law is 78 year old male with PCA with what appears to be a single spine metastasis. Gleason 7 ( 4+3) We have an appointment coming up with the radiation oncologist . Is this something they would get a PSMA TEST for to confirm and also would he just receive ADT with radiation to primary site
My father in law is 78 year old male with PCA with what appears to be a single spine metastasis. Gleason 7 ( 4+3) We have an appointment coming up with the radiation oncologist . Is this something they would get a PSMA TEST for to confirm and also would he just receive ADT with radiation to primary site
Telegraph2022
in
Advanced Prostate Cancer
9 months ago
significant free fluid in pouch of douglas
Hello I have been suffering with terrible pain in my right side lower groin. I described to the Gap that it feels like I am carrying something or a pressure in lower back and at times causes my right thigh to actually go numb. I went to the GP and was referred for an ultrasound for a hernia. No hernia
Hello I have been suffering with terrible pain in my right side lower groin. I described to the Gap that it feels like I am carrying something or a pressure in lower back and at times causes my right thigh to actually go numb. I went to the GP and was referred for an ultrasound for a hernia. No hernia
brontec
in
Endometriosis UK
6 months ago
Using Enzalutamide, Darolutamide, Apalutamide only.
I've seen a number of posters here and there who say they use one of the "mides" listed above with no ADT like Lupron, Eligard, Firmagan, or Orgovyx, etc. If so, did you begin that regimen after being on first level ADT for a while along with the 'mide," or did you start on the "mide" alone at the start
I've seen a number of posters here and there who say they use one of the "mides" listed above with no ADT like Lupron, Eligard, Firmagan, or Orgovyx, etc. If so, did you begin that regimen after being on first level ADT for a while along with the 'mide," or did you start on the "mide" alone at the start
dhccpa
in
Prostate Cancer Network
6 months ago
nervous about starting Levo
As of January this year TSH ; 7.28 Free T4: 11 TPO antibodies greater than 600 My history is in 2018( 56yrs old) I had acute thyroiditis, commenced Levo for a week, intolerant, so I went to functional Dr who recommended a diet for me Gluten,Diary and soya free, I have been stable
As of January this year TSH ; 7.28 Free T4: 11 TPO antibodies greater than 600 My history is in 2018( 56yrs old) I had acute thyroiditis, commenced Levo for a week, intolerant, so I went to functional Dr who recommended a diet for me Gluten,Diary and soya free, I have been stable
glutendairysoya
in
Thyroid UK
6 months ago
What are the most promising drugs/treatments on the horizon for PD symptom relief,slowing progression?
I see Buntanetap,Celeste light therapy and Cue1 as potentials. anyone have any thoughts? i dont know how much longer I can hang on.
I see Buntanetap,Celeste light therapy and Cue1 as potentials. anyone have any thoughts? i dont know how much longer I can hang on.
Jmellano
in
Cure Parkinson's
11 months ago
Pelvic pain on prostap
Hello, i am experiencing very bad pelvic and lower back pain. i am 35 with adenomyosis, i didn't know i had this until i had an MRI. They put me on prostap 3 and i have had none stop pelvic pain and on/off bleeding. I am nearly 9 weeks in to the 3 monthly injection. Please help, is this normal? i haven't
Hello, i am experiencing very bad pelvic and lower back pain. i am 35 with adenomyosis, i didn't know i had this until i had an MRI. They put me on prostap 3 and i have had none stop pelvic pain and on/off bleeding. I am nearly 9 weeks in to the 3 monthly injection. Please help, is this normal? i haven't
SallyK2589
in
Endometriosis UK
6 months ago
Recommendations via direct message for endo
Morning all, hoping to hear if anyone has worked successfully with an endo based in London/south east who specialise in thyroid AND menopause? Private or NHS.... Thank you. As per the rules of the board, please direct message me with these. Need help starting on hrt at same time as starting thyroid
Morning all, hoping to hear if anyone has worked successfully with an endo based in London/south east who specialise in thyroid AND menopause? Private or NHS.... Thank you. As per the rules of the board, please direct message me with these. Need help starting on hrt at same time as starting thyroid
Astrido
in
Thyroid UK
6 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
11 months ago
Studies re: PSA > 0.5% after RT
Can anyone interpret the gist of these studies? Correct me if I am wrong (and I sure hope to be) but from what I am gleaning, it seems that for those who have RT and a concurrent round of ADT: 1) Researchers and studies are showing that waiting 18 months to reach a post RT nadir isn't necessary to determine
Can anyone interpret the gist of these studies? Correct me if I am wrong (and I sure hope to be) but from what I am gleaning, it seems that for those who have RT and a concurrent round of ADT: 1) Researchers and studies are showing that waiting 18 months to reach a post RT nadir isn't necessary to determine
quietcorner
in
Advanced Prostate Cancer
6 months ago
6 Month Eligard
I got my results from PSA/PET last week, showing no metastatic activity anywhere, bones and lymph nodes clear. My last Gleason score was 4+3 in 1 sample, 3+3 in 2 more same side, but focus of intraductal cancer in 2 cores on other side. Last PSA 5.3 in February, stable between 5.0 and 5.8 last 2 years
I got my results from PSA/PET last week, showing no metastatic activity anywhere, bones and lymph nodes clear. My last Gleason score was 4+3 in 1 sample, 3+3 in 2 more same side, but focus of intraductal cancer in 2 cores on other side. Last PSA 5.3 in February, stable between 5.0 and 5.8 last 2 years
SherpaT
in
Prostate Cancer Network
6 months ago
pelvic pain and no hrt withdrawal bleed
Hello all, I would be grateful for some advice or reassurance please. I have been on Sequential HRT for 5 years, as started having perimenopause symptoms around then. I have always had a withdrawal bleed once a month. I have found that taking hrt does make me a bit bloated and my tummy a bit uncomfortable
Hello all, I would be grateful for some advice or reassurance please. I have been on Sequential HRT for 5 years, as started having perimenopause symptoms around then. I have always had a withdrawal bleed once a month. I have found that taking hrt does make me a bit bloated and my tummy a bit uncomfortable
girlwithcurls
in
Pelvic Pain Support Network
6 months ago
Cyberknife+IMRT combination treatment for High Risk PCa, that has spread to the seminal vesicle.
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Sushupthi
in
Advanced Prostate Cancer
4 months ago
3year Updates w/PSA Graph
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
brucesam
in
Advanced Prostate Cancer
6 months ago
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