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Experiences with
Methylenetetrahydrofolate reductase (MTHFR) deficiency
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First Post - TSH Level Erratic
Hi, I was diagnosed with hypothyroidism in May this year, my levels were: Serum TSH level 130.80 mIU/L [0.27 – 4.2] Serum free T4 level < 1.3 pmol/L [12.0 – 22.0] Full blood count Mild monocytosis. Rouleaux + Haemoglobin concentration 100 g/L [115.0 – 160.0] Red blood cell count 3.32 10*12/
Hi, I was diagnosed with hypothyroidism in May this year, my levels were: Serum TSH level 130.80 mIU/L [0.27 – 4.2] Serum free T4 level < 1.3 pmol/L [12.0 – 22.0] Full blood count Mild monocytosis. Rouleaux + Haemoglobin concentration 100 g/L [115.0 – 160.0] Red blood cell count 3.32 10*12/
Snoopy72
in
Thyroid UK
2 years ago
Hashimoto's and Anaemia - anyone tried IV iron infusion?
Hi all, Recently had full blood tests done as advised on this board :) and T4 and T3 were both high end of normal range, so "optimal", and the only flag was that my iron was low - ferritin of 21 when GP feels 125-150 would be ideal. I'm so exhausted all the time and devastated about how limited I am
Hi all, Recently had full blood tests done as advised on this board :) and T4 and T3 were both high end of normal range, so "optimal", and the only flag was that my iron was low - ferritin of 21 when GP feels 125-150 would be ideal. I'm so exhausted all the time and devastated about how limited I am
Jacula
in
Thyroid UK
2 years ago
This might be of interest for anyone who struggles to raise their iron levels or is frequently anaemic or nearly anaemic
I should point out that this paper is old. It was first published in 2000. The second thing I want to point out is that it has 176 references, which to my mind is quite bizarre, but some of them could be of interest. And thirdly, the link is to the abstract only but there is an option to "Save PDF
I should point out that this paper is old. It was first published in 2000. The second thing I want to point out is that it has 176 references, which to my mind is quite bizarre, but some of them could be of interest. And thirdly, the link is to the abstract only but there is an option to "Save PDF
humanbean
in
Thyroid UK
2 years ago
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Neutropenia and its effects.....
I was diagnosed with lupus by my rheumatologist in 2020. Since 2016 I have had low iron levels on numerous occasions, which was initially treated with oral iron with little effect. I was eventually given an iron infusion in May 2021. This brought my iron levels up for some time, but in April this
I was diagnosed with lupus by my rheumatologist in 2020. Since 2016 I have had low iron levels on numerous occasions, which was initially treated with oral iron with little effect. I was eventually given an iron infusion in May 2021. This brought my iron levels up for some time, but in April this
Ophelia1
in
LUPUS UK
2 years ago
Increased PA Symptoms and Iron Deficiency
I have no idea if what I'm experiencing is just a flare or could be possible related to my iron deficiency issues, but I figured I'd post on here to see if anyone else has had a similar experience. I was diagnosed with both PA and Iron Deficiency without Anemia at the same time. I have been doing
I have no idea if what I'm experiencing is just a flare or could be possible related to my iron deficiency issues, but I figured I'd post on here to see if anyone else has had a similar experience. I was diagnosed with both PA and Iron Deficiency without Anemia at the same time. I have been doing
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
About Iron
I'm asking a lot of questions - sorry - but I really have to get this problem sorted out, and this is such a great place to ask questions. When I first got RLS really badly, I read up and found out about possible iron deficiency. I thought this was strange as I eat huge amounts of food with lots of
I'm asking a lot of questions - sorry - but I really have to get this problem sorted out, and this is such a great place to ask questions. When I first got RLS really badly, I read up and found out about possible iron deficiency. I thought this was strange as I eat huge amounts of food with lots of
Desperate100
in
Restless Legs Syndrome
2 years ago
B12-supplement causing restlessness, brain fog, anhedonia and sexual dysfunction
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Sofa00
in
Pernicious Anaemia Society
2 years ago
Tests for iron
Following the advice in the Mayo's clinic protocol, I asked my doctor for a full iron assessment including serum iron, ferritin, total iron-binding capacity, and percentage transferrin saturation which should be measured in the early morning after an overnight fast. She did not arrange any tests for
Following the advice in the Mayo's clinic protocol, I asked my doctor for a full iron assessment including serum iron, ferritin, total iron-binding capacity, and percentage transferrin saturation which should be measured in the early morning after an overnight fast. She did not arrange any tests for
Desperate100
in
Restless Legs Syndrome
2 years ago
Private FIT test recommendation
Hi, I'm still very much in that 'more questions than answers' phase regarding my health with a mix of thyroid, anaemia and perimenopause issues going on. Due to repeated low iron over many years, I'm thankful the NHS is now looking into the cause and I have a colonoscopy and gastroscopy arranged
Hi, I'm still very much in that 'more questions than answers' phase regarding my health with a mix of thyroid, anaemia and perimenopause issues going on. Due to repeated low iron over many years, I'm thankful the NHS is now looking into the cause and I have a colonoscopy and gastroscopy arranged
Insomania
in
Thyroid UK
2 years ago
Husband’s recent iron panel labs show dire ferritin but other levels appear to say he shouldn’t supplement. Unless I’ve misunderstood
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
We requested an iron panel as it was clear his GP wasn’t going to offer even though husband falls asleep at the drop of a hat. I’m glad we asked because his ferritin is very low having fallen from his usual 50-90 over the years 26/07/22 Ferritin 19.2 (22 -322) Serum iron 21.4 (14 - 31.3) 42.77%
Noelnoel
in
Thyroid UK
2 years ago
Should I be taking an iron supplement?
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
Hi all, I tested my iron level and I got: Iron 13 μmol/l (11-32) Transferrin 2.2 g/l (2.0-3.6) Transferrin saturation 23.5% (16-45) In 2020 I had the following: Serum iron 20.9 μmol/l (13-32) Serum transferrin 2.17 g/l (2.00-3.60) Serum unsaturated binding capacity 49μmol/l (45-70) Saturation
WhyAmISoTired
in
Thyroid UK
2 years ago
Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
B12 deficiency post cholecystectomy
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
I’m curious if there is any link to cholecystectomies and B12 deficiency. I had my gallbladder out and then 8 years later, b12 deficient. Have any of you had your gallbladder out and then had B12 deficiency occur afterwards?
B12life
in
Pernicious Anaemia Society
2 years ago
Worth a Spit ? Why saliva could hold the answer
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
RLS restlessness vs electric shock feeling
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
I had a question for everyone…. My RLS has the restlessness feeling but it also has the electric jolt feeling which is worse and it’s def more aggravating than the urge to move itself as anyone who I have spoke to knows I am a difficult case and my doctor and I are trying everything. I have recently
RC723
in
Restless Legs Syndrome
2 years ago
Advice on latest bloods
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Hi i would really appreciate some advice on my latest bloods, and whether I should supplement B12 and folate and maybe iron based on them. Bloods taken as per protocol recommended on here. Currently taking 75 mcg thyroxine and 2 x half grains of ERFA T4 - 17.4 (range 12-22) T3 - 4 (range 3.1-6.8
Spangle15
in
Thyroid UK
2 years ago
Don't trust everything you read on the internet
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Just sharing the NHS website on B12 and folate deficiency anaemia, which reads as per the below. What this says to me is that there is a distinct difference between what actually happens in the real world vs. what we read about on the old internet. It is important to remember that not every article
Pickle500
in
Pernicious Anaemia Society
2 years ago
Ferritin level information
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
DataRN
in
Restless Legs Syndrome
2 years ago
Hypothyroid and Anemia
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
Good day to you all. I have a basic question . I would Iike to know if post menopausal women can also suffer from iron anemia.
MightyMay
in
Thyroid UK
2 years ago
Update
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Hi Had a phone call on Friday asking me to contract the surgery, following my over range ferritin results. I've now got to have a TIBC, iron and TSAT blood test. I think I need to be honest with the surgery and say I've was supplementing with iron tablets until recently and this is likely to have caused
Sparklingsunshine
in
Thyroid UK
2 years ago
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