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Striving to walk again, more progression, radiation and Trodelvy advice and prayers most welcome.
Hello all! It has been a long time since I posted as my path has been plodding - learning to walk again, discovering even more bone progression, being pulled off Xeloda as it wasn’t working, more radiation and now Trodelvy. The extensive bone mets are making physical therapy a challenge for sure and
Hello all! It has been a long time since I posted as my path has been plodding - learning to walk again, discovering even more bone progression, being pulled off Xeloda as it wasn’t working, more radiation and now Trodelvy. The extensive bone mets are making physical therapy a challenge for sure and
Saltandlight
in
SHARE Metastatic Breast Cancer
27 days ago
Egg Donor Transfer
Hi We have selected our egg donor!! We are using frozen eggs currently in the bank at our clinic. Well, they are in their UK branch and we are using a clinic in Dublin, so the the eggs need to be transported over. Prior to transferring, our clinic has recommended me having an Endo Trio test, which
Hi We have selected our egg donor!! We are using frozen eggs currently in the bank at our clinic. Well, they are in their UK branch and we are using a clinic in Dublin, so the the eggs need to be transported over. Prior to transferring, our clinic has recommended me having an Endo Trio test, which
Mrsjaytee
in
Fertility Network UK
7 months ago
wheat in cosmetics
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
Veggie2
in
Gluten Free Guerrillas
7 months ago
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Xeloda coming to an end!
Good morning! I’m posting for mom. Last check mom was er/pr + her 2 low that was last checked July 2023 Mbc 2020 She did ibrance and femara 2 years 9 months Anfintor and Faslodex 6 weeks Xeloda- present for 8 months . Last scans were not terrible. But mild progression in bones with 2 rib
Good morning! I’m posting for mom. Last check mom was er/pr + her 2 low that was last checked July 2023 Mbc 2020 She did ibrance and femara 2 years 9 months Anfintor and Faslodex 6 weeks Xeloda- present for 8 months . Last scans were not terrible. But mild progression in bones with 2 rib
Flower1513
in
SHARE Metastatic Breast Cancer
28 days ago
Second recurrence of ovarian cancer
After surgery and 6 cycles of chemo, I was disease free for a year. With rising ca225, and PET scan showing recurrence had 6 more cycles of chemo. After 8 months of disease free life, my ca has shot upto 42 from 8. My oncologist sats as there is no symptom, let us wait for another month and decide the
After surgery and 6 cycles of chemo, I was disease free for a year. With rising ca225, and PET scan showing recurrence had 6 more cycles of chemo. After 8 months of disease free life, my ca has shot upto 42 from 8. My oncologist sats as there is no symptom, let us wait for another month and decide the
iloveidli
in
My Ovacome
28 days ago
Bronchoscopie advice
Hello everyone I was recently due to have a bronchoscopie but cancelled at the last minute. I was told that I would have a local anesthetic in my nose and that they would be working on my lungs for 15 minutes. The idea of someone playing around in my lungs for 15 minutes whilst I was awake was very
Hello everyone I was recently due to have a bronchoscopie but cancelled at the last minute. I was told that I would have a local anesthetic in my nose and that they would be working on my lungs for 15 minutes. The idea of someone playing around in my lungs for 15 minutes whilst I was awake was very
Wibble28
in
Lung Conditions Community Forum
2 months ago
Omg just received the prescription for peppermint capsules 🙈
Hi AGAIN everyone ❤️ This saga is beyond belief🤷♀️ just reading the leaflet accompanying the peppermint oil capsules. First there's a lot of 💩 fillers in it , as well as containing 0.2 ml of actual peppermint oil, it also contains the following. Gelatin, glycerol, purified water, titanium divide
Hi AGAIN everyone ❤️ This saga is beyond belief🤷♀️ just reading the leaflet accompanying the peppermint oil capsules. First there's a lot of 💩 fillers in it , as well as containing 0.2 ml of actual peppermint oil, it also contains the following. Gelatin, glycerol, purified water, titanium divide
birkie
in
Thyroid UK
8 days ago
High LFT results
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
Dexter786
in
British Liver Trust
7 months ago
New Mediterranean observational study
Mediterranean Diet Is Associated With Lower All-Cause and Cardiovascular Mortality Among Long-Term Cancer Survivors J Am Coll Cardiol CardioOnc. Jul 02, 2024. Epublished DOI: 10.1016/j.jaccao.2024.05.012 “High adherence to a traditional MD was independently associated with a substantial reduction
Mediterranean Diet Is Associated With Lower All-Cause and Cardiovascular Mortality Among Long-Term Cancer Survivors J Am Coll Cardiol CardioOnc. Jul 02, 2024. Epublished DOI: 10.1016/j.jaccao.2024.05.012 “High adherence to a traditional MD was independently associated with a substantial reduction
Graham49
in
Advanced Prostate Cancer
29 days ago
Pip help
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband 🫣 Thanks in advance ☺️
Hi lovely people I have a question i am waiting on a decision for pip and have just found out my Dr has diagnosed me with fibromyalgia amongst other ting do I need to tell pip now This is me not my husband 🫣 Thanks in advance ☺️
Suzeinwoody
in
Fibromyalgia Action UK
3 months ago
New Primary cancer
I have stage 4 metastatic breast cancer ER+ and her2 negative and been on Ibrance and letrozole for since December 2023 though I was diagnosed August 2023. Long story that I mentioned in a previous post. I had a recent biopsy of my upper left lung since I have lung mets. The last biopsy I had said it
I have stage 4 metastatic breast cancer ER+ and her2 negative and been on Ibrance and letrozole for since December 2023 though I was diagnosed August 2023. Long story that I mentioned in a previous post. I had a recent biopsy of my upper left lung since I have lung mets. The last biopsy I had said it
monkeygirl62
in
The Roy Castle Lung Cancer Foundation
30 days ago
New Primary cancer
I have stage 4 metastatic breast cancer ER+ and her2 negative and been on Ibrance and letrozole for since December 2023 though I was diagnosed August 2023. Long story that I mentioned in a previous post. I had a recent biopsy of my upper left lung since I have lung mets. The last biopsy I had said it
I have stage 4 metastatic breast cancer ER+ and her2 negative and been on Ibrance and letrozole for since December 2023 though I was diagnosed August 2023. Long story that I mentioned in a previous post. I had a recent biopsy of my upper left lung since I have lung mets. The last biopsy I had said it
monkeygirl62
in
SHARE Metastatic Breast Cancer
30 days ago
Is this decision right for me
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the PSA and its doubling time. A little background, I'm just short of 83 years old. I had prostatectomy in 2009, PSA undetectable until 2017. I had
old64horn
in
Advanced Prostate Cancer
1 month ago
AS is over:-(
On second biopsy GG 2 lesion found. :-( Thoughts welcome on next steps. ----------Biopsy results----------------------------------------- A. Right Apex Prostate: Needle Core Biopsy: Benign prostatic tissue B. Right Mid Prostate: Needle Core Biopsy: Benign prostatic tissue C. Right Base
On second biopsy GG 2 lesion found. :-( Thoughts welcome on next steps. ----------Biopsy results----------------------------------------- A. Right Apex Prostate: Needle Core Biopsy: Benign prostatic tissue B. Right Mid Prostate: Needle Core Biopsy: Benign prostatic tissue C. Right Base
witantric
in
Fight Prostate Cancer
1 month ago
The RLS nightmare
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
Miloboy23
in
Restless Legs Syndrome
7 months ago
plural effusion
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
I nave plural effusion in my left lung metastasis from ovarian cancer. I had a surgery last September 23 with WATS. Now I’m on strong chemo but this plural effusion is the same. I had five line of carboplatin, Bevacizumab, zentabun. Noting helps. I will try 3-4 more and if it’s not change I will stop
Green999
in
My Ovacome
1 month ago
Mays Cancer Center seeks HCC survivors/caregivers in South Texas
The
Mays Cancer Center
would like to speak with survivors and caregivers of cervical cancer,
liver cancer
, and pediatric leukemia
[i]
living in South Texas
[/i]
to identify, describe, and reflect on experiences around the delivery of care, care needs, and participating
The
Mays Cancer Center
would like to speak with survivors and caregivers of cervical cancer,
liver cancer
, and pediatric leukemia
[i]
living in South Texas
[/i]
to identify, describe, and reflect on experiences around the delivery of care, care needs, and participating
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
1 month ago
INR control
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
Hi don't know if this is of any interest to anyone ,but my INR has always been impossible to stabilize My heamatologist suggested taking a small dose of vitamin K and increasing the warfarin dose I didn't do this as don't want to be taking any more supplements, So I decided to massively increase my intake
mully
in
Hughes Syndrome APS Forum
7 months ago
results of nail biopsy
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
artydutch
in
MPN Voice
1 month ago
MRI prior to HDR Brachy and HDR intensity.
Hi Friends, Hey, I'm doing well to date in coping with HT and have just had 10 of my 23 VMAT radiation sessions. So far so good. BUT recently I was told that the radiation sessions are nothing compared to the "Brutal" HDR Brachy Boost I am having in mid-August. That wasn't what I wanted to hear, so
Hi Friends, Hey, I'm doing well to date in coping with HT and have just had 10 of my 23 VMAT radiation sessions. So far so good. BUT recently I was told that the radiation sessions are nothing compared to the "Brutal" HDR Brachy Boost I am having in mid-August. That wasn't what I wanted to hear, so
Mike58
in
Advanced Prostate Cancer
1 month ago
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