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Modopar
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Madopar instead of Sinemet
Hi Everyone Has anyone changed their Sinemet for Madopar? My friend currently takes one Madopar in the morning and 4 x Sinemet during the day but is'nt getting much relieve from the Sinemet like she used to ( diagnosed for 5 years) She also takes 1 x Opicapone in the evening She seems to be getting
Hi Everyone Has anyone changed their Sinemet for Madopar? My friend currently takes one Madopar in the morning and 4 x Sinemet during the day but is'nt getting much relieve from the Sinemet like she used to ( diagnosed for 5 years) She also takes 1 x Opicapone in the evening She seems to be getting
Seashore60
in
Cure Parkinson's
6 years ago
Symptoms Changing
I’m apprehensive The last 2 days I have deteriorated somewhat frightenly. From coping to not coping. My feet and calves have spasmned and twisted upon getting out of bed. I just want to collapse. Can manage a quick bathroom visit before it hits. Today with grabbing walking frame for support managed
I’m apprehensive The last 2 days I have deteriorated somewhat frightenly. From coping to not coping. My feet and calves have spasmned and twisted upon getting out of bed. I just want to collapse. Can manage a quick bathroom visit before it hits. Today with grabbing walking frame for support managed
Bridielena
in
Cure Parkinson's
6 years ago
Moods
My husband is 75 with PD and diagnosed late2015 but I think has had for many years He has Madopar and has a lot of restless legs He doesn't manage very well The worse thing about him is his moods and acting like a spoilt brat especially if I pay my daughter and grandaughter attention He picks fault with
My husband is 75 with PD and diagnosed late2015 but I think has had for many years He has Madopar and has a lot of restless legs He doesn't manage very well The worse thing about him is his moods and acting like a spoilt brat especially if I pay my daughter and grandaughter attention He picks fault with
9284
in
Cure Parkinson's
6 years ago
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Restless Legs
Hi I am new, have had RLS for 19 years and was on pramipexole which gave me augmentation, I am now on Madopar and only 1 week into it, still not getting a lot of sleep. Any Ideas?
Hi I am new, have had RLS for 19 years and was on pramipexole which gave me augmentation, I am now on Madopar and only 1 week into it, still not getting a lot of sleep. Any Ideas?
fishodave
in
Restless Legs Syndrome
6 years ago
Share your vacation tips
[i]I was diagnosed with PD for about 10 years and have been quiet in this group for a long time. I finally retired in last November. I recently went on a cruise trip with my husband. The trip was carefully selected to allow flexibility to my PD. The trip was largely enjoyable. However, at some points
[i]I was diagnosed with PD for about 10 years and have been quiet in this group for a long time. I finally retired in last November. I recently went on a cruise trip with my husband. The trip was carefully selected to allow flexibility to my PD. The trip was largely enjoyable. However, at some points
cheerspark
in
Cure Parkinson's
6 years ago
15 hour a day peg feed blocking madopar?
Having had problems with swallowing I’m on direct tube feed to stomach. My diet consists of high nutrition liquid feed for 15 hours a day. My PD medication consists of 180mg madopar 3 Times a day plus 8mg Repinex , all fed by the tube. I wondered why my tremors were worse than before my swallowing problems
Having had problems with swallowing I’m on direct tube feed to stomach. My diet consists of high nutrition liquid feed for 15 hours a day. My PD medication consists of 180mg madopar 3 Times a day plus 8mg Repinex , all fed by the tube. I wondered why my tremors were worse than before my swallowing problems
Jmorri567
in
Cure Parkinson's
6 years ago
rotogotine ???is it that bad ?
im new ...hello...been dx for a bout 3 yrs..i have only tremors and really thats it..well feel abit nervous now and i think im going through wering off...my nurse / neuro put me on levadopa 3 x 25/100 a year ago now im on 4x 25/100 and she has gave me Madopar for at night sometimes dont need it ! Its
im new ...hello...been dx for a bout 3 yrs..i have only tremors and really thats it..well feel abit nervous now and i think im going through wering off...my nurse / neuro put me on levadopa 3 x 25/100 a year ago now im on 4x 25/100 and she has gave me Madopar for at night sometimes dont need it ! Its
hazewell123
in
Cure Parkinson's
6 years ago
B1/Thiamin - What's the situation?
Sorry - I've tried searching but there are so many posts with just a mention in passing its hard to wade through to the facts - I just wanted to get a summary of what the thinking is behind taking this supplement. At present I'm on 3 x 100/25 Madopar pd and 1mg Rasagiline. I often don't take the full
Sorry - I've tried searching but there are so many posts with just a mention in passing its hard to wade through to the facts - I just wanted to get a summary of what the thinking is behind taking this supplement. At present I'm on 3 x 100/25 Madopar pd and 1mg Rasagiline. I often don't take the full
Marcomando
in
Cure Parkinson's
6 years ago
DR. COSTANTINI & DR. COLANGELI ANSWER 58 FREQUENTLY ASKED QUESTIONS (FAQs) ABOUT HDT / THIAMINE / B1 PROTOCOL / Email : carapetata@libero.it
Very briefly, If anyone has asked questions of Dr. Costantini and have gotten a reply concerning his thiamine/ B1 protocol, please add them to this list if you think they are relevant! Art ::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::
Very briefly, If anyone has asked questions of Dr. Costantini and have gotten a reply concerning his thiamine/ B1 protocol, please add them to this list if you think they are relevant! Art ::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::::
Hidden
in
Cure Parkinson's
6 years ago
Waking up with frozen limb EG arml
I don't mean not able to initiate movement but not able to straighten even by using the other arm.. this is alarming as it could be both legs? Anyone else had anything like this. I had a situation where my eyelids would not open on waking f'or about 18 months but this resolved itself and I suppose it
I don't mean not able to initiate movement but not able to straighten even by using the other arm.. this is alarming as it could be both legs? Anyone else had anything like this. I had a situation where my eyelids would not open on waking f'or about 18 months but this resolved itself and I suppose it
paddyfield
in
Cure Parkinson's
6 years ago
Thiamine experience
Hi everybody,i hope you doing well,i did contact Dr C's for my mom ,and she started thiamine as He said ,3 capsules of 500 mg ,which is 1500 mg p day,? Today is the fourth day with no changes in her previous madopar doses,but no improvement after taking thiamine ?the first day she has a severe headache
Hi everybody,i hope you doing well,i did contact Dr C's for my mom ,and she started thiamine as He said ,3 capsules of 500 mg ,which is 1500 mg p day,? Today is the fourth day with no changes in her previous madopar doses,but no improvement after taking thiamine ?the first day she has a severe headache
Bayane8753
in
Cure Parkinson's
6 years ago
Travelling issue
Hi PWP I am an Australian travelling at present in the USA and sent some baggage to my next destination. I will not get there for another week. I realised that I sent my Madopar 250 (3 x daily) with the baggage by mistake. I organised an MD visit and there is no Madopar in the USA. I have been given
Hi PWP I am an Australian travelling at present in the USA and sent some baggage to my next destination. I will not get there for another week. I realised that I sent my Madopar 250 (3 x daily) with the baggage by mistake. I organised an MD visit and there is no Madopar in the USA. I have been given
Bron60
in
Cure Parkinson's
6 years ago
I think i am overmedicated .. what do you think?
i have been diagnosed with PD in 2013 but I had the symptoms for a lot longer. I think the medics did think I could have PD as I was in a good shape. once diagnosed I started with Selegiline but gradually ended up with the cocktail shown below. I am still having off times but i can manage. I have been
i have been diagnosed with PD in 2013 but I had the symptoms for a lot longer. I think the medics did think I could have PD as I was in a good shape. once diagnosed I started with Selegiline but gradually ended up with the cocktail shown below. I am still having off times but i can manage. I have been
Xabojuro2
in
Cure Parkinson's
6 years ago
Essential tremour
Has anyone had any joy from using Gabapentin for Essential tremour. I have tried Mysoline , which 'spaced me out', Propanalol, Pramipixole, and Madopar, none of which work. Am interested in anything that works !
Has anyone had any joy from using Gabapentin for Essential tremour. I have tried Mysoline , which 'spaced me out', Propanalol, Pramipixole, and Madopar, none of which work. Am interested in anything that works !
Frank41
in
National Tremor Foundation
6 years ago
Madopar vs Sinemet (& mucuna)
Neuro just put my husband on Madopar (one of the side effects being nausea...for some reason he didn't prescribe Sinemet) We were hoping to supplement with mucuna once his body gets used to the drug. My understanding is that mucuna needs the carbidopa in Sinemet to be able to cross the BBB. Does
Neuro just put my husband on Madopar (one of the side effects being nausea...for some reason he didn't prescribe Sinemet) We were hoping to supplement with mucuna once his body gets used to the drug. My understanding is that mucuna needs the carbidopa in Sinemet to be able to cross the BBB. Does
Jennyjenny2
in
Cure Parkinson's
6 years ago
Bad reaction to Madopar
My husband has been taking Madopar for the last 5 years and has started getting bad reactions an hour after taking. He says it feel like every nerve in his body is being electrocuted and pulled out with tweezers. They also knock him out for 2 hours and I can see him writhing in agony. This usually
My husband has been taking Madopar for the last 5 years and has started getting bad reactions an hour after taking. He says it feel like every nerve in his body is being electrocuted and pulled out with tweezers. They also knock him out for 2 hours and I can see him writhing in agony. This usually
Fontaine
in
Cure Parkinson's
6 years ago
Sinemet MG Conversion to Zandopa MG Conversion to Madopar. Synergy between Mucuna Pruriens & Withania somnifera. B12/thiamne thoughts...
The first link is to an article about a woman who combined Zandopa with Madopar and cups of green tea for her PD symptoms. The article has to be downloaded to read the complete article (which I cut the Sinemet = Mucuna Powder = Madopar image). https://www.researchgate.net/publication/304658036_The_clinical_effects_of_mucuna_and_green_tea_in_combination_with_levodopa-benserazide_in_advanced_Parkinson
The first link is to an article about a woman who combined Zandopa with Madopar and cups of green tea for her PD symptoms. The article has to be downloaded to read the complete article (which I cut the Sinemet = Mucuna Powder = Madopar image). https://www.researchgate.net/publication/304658036_The_clinical_effects_of_mucuna_and_green_tea_in_combination_with_levodopa-benserazide_in_advanced_Parkinson
silvestrov
in
Cure Parkinson's
6 years ago
THIAMINE : STOP
I became awake around 6 am still under the effect of Leximil all day only being woken by my wife every 2 hours to take a
Modopar
125. I have decided to stop taking Thiamide for the time being. I am disappointed because the favourable posts recently had built up my hopes.
I became awake around 6 am still under the effect of Leximil all day only being woken by my wife every 2 hours to take a
Modopar
125. I have decided to stop taking Thiamide for the time being. I am disappointed because the favourable posts recently had built up my hopes.
ecurb
in
Cure Parkinson's
6 years ago
General Anaesthetic
General Anaesthetic and repercussions. Was doing ok until 3 weeks ago when I had to have minor operation involving anaesthetic. Have been on Byetta for 6 months giving me some brilliant days... that is/was ....now I’m back to maximum dosegases of Madopar. I’m praying it’s a set back only and once the
General Anaesthetic and repercussions. Was doing ok until 3 weeks ago when I had to have minor operation involving anaesthetic. Have been on Byetta for 6 months giving me some brilliant days... that is/was ....now I’m back to maximum dosegases of Madopar. I’m praying it’s a set back only and once the
Bridielena
in
Cure Parkinson's
6 years ago
TRAMADOL
After reading many many posts on this site, I have formed the consensus that most of you are either taking or have taken Tramadol as a med for RLS. Unfortunately down here in Oz, the medical practitioners I have seen have been reluctant to prescribe this for me. Are there any people on this site from
After reading many many posts on this site, I have formed the consensus that most of you are either taking or have taken Tramadol as a med for RLS. Unfortunately down here in Oz, the medical practitioners I have seen have been reluctant to prescribe this for me. Are there any people on this site from
Phogan
in
Restless Legs Syndrome
6 years ago
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