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Getting off Madopar
I really want to get off Madopar and it’s augmentation, and try to treat my legs with diet alone. Any suggestions? Have you successfully broken the crazy cycle of taking Madopar for rls then having to take it for the rebound effect of the medication? TIA!!
I really want to get off Madopar and it’s augmentation, and try to treat my legs with diet alone. Any suggestions? Have you successfully broken the crazy cycle of taking Madopar for rls then having to take it for the rebound effect of the medication? TIA!!
Eponine53
in
Restless Legs Syndrome
6 years ago
Madopar CR
Has anyone had any experience with this? How does it compare with normal Madopar and would it be useful for bedtime?
Has anyone had any experience with this? How does it compare with normal Madopar and would it be useful for bedtime?
JeanieBeanie
in
Cure Parkinson's
6 years ago
Apo morphine - no effect
My consultant recently recommended I use apo-morphine via the Apo-go self injection pen . (I 've been dx 15 years and have v unpredictable and severe off periods) i had the tests to see how well i tolerated it lsdt week. I was in hospital fir a dsy with a dedicated apo nurse . We tried doses from 1 to
My consultant recently recommended I use apo-morphine via the Apo-go self injection pen . (I 've been dx 15 years and have v unpredictable and severe off periods) i had the tests to see how well i tolerated it lsdt week. I was in hospital fir a dsy with a dedicated apo nurse . We tried doses from 1 to
pen1
in
Cure Parkinson's
6 years ago
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Size of apo pump
Hi I was dx with young onset PD in 2003 aged 46. I'm now 62 and have kept on top of it by gradually upping the madopar . In the last few months madopar's effectiveness has dropped right off and my consultant says there is ni more room to tweak my medication or increase the madopar. To my distress
Hi I was dx with young onset PD in 2003 aged 46. I'm now 62 and have kept on top of it by gradually upping the madopar . In the last few months madopar's effectiveness has dropped right off and my consultant says there is ni more room to tweak my medication or increase the madopar. To my distress
pen1
in
Cure Parkinson's
6 years ago
Yom Kippur fasting while on Madopar?
Just wondering if anyone has advice for me, in first year of taking Madopar. I take 3 25/100 each day. Still early stage. Tonight/tomorrow is a 26 hour fast for the Yom Kippur Jewish holiday (yes, some holiday not eating or drinking!). In recent years, mainly because of getting older and being on some
Just wondering if anyone has advice for me, in first year of taking Madopar. I take 3 25/100 each day. Still early stage. Tonight/tomorrow is a 26 hour fast for the Yom Kippur Jewish holiday (yes, some holiday not eating or drinking!). In recent years, mainly because of getting older and being on some
ge1shh
in
Cure Parkinson's
6 years ago
Madopar cr?
Doesn't seem to work
Doesn't seem to work
chutney333
in
Cure Parkinson's
6 years ago
Overdose of Madopar CR - urgent help please
Please can someone answer or help. My Mum is in hospital and I discovered they’ve been giving her Madopar CR 100/25 (sustained release) all day instead of her Madopar 100/25 (blue and white) pills all day. If they’ve got it wrong at every dose, she’s probably had 4 Madopar CR during the day; she usually
Please can someone answer or help. My Mum is in hospital and I discovered they’ve been giving her Madopar CR 100/25 (sustained release) all day instead of her Madopar 100/25 (blue and white) pills all day. If they’ve got it wrong at every dose, she’s probably had 4 Madopar CR during the day; she usually
Harebell
in
Cure Parkinson's
6 years ago
Taking Madopar (2)
I'm not surprised you thought my post of a couple of days ago weird, Motherfather, I left out any mention of the medicine I've been on for some time now. So here's what I intended to write (I blame the PD!). I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse.
I'm not surprised you thought my post of a couple of days ago weird, Motherfather, I left out any mention of the medicine I've been on for some time now. So here's what I intended to write (I blame the PD!). I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse.
plainbob
in
Cure Parkinson's
6 years ago
Taking Madopar
I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse. She has suggested I take dispersible Madopar 62.5mgs on an ad hoc basis, maximum of one dose per day. I wondered if anybody on this site had experience of this. TIA Jim
I live in the UK and so am blessed to be under the care of a Parkinson's Disease Nurse. She has suggested I take dispersible Madopar 62.5mgs on an ad hoc basis, maximum of one dose per day. I wondered if anybody on this site had experience of this. TIA Jim
plainbob
in
Cure Parkinson's
6 years ago
Parkinsons and Osteoporosis medications
Hello all. I have both PD and osteoporosis. When I got my PD diagnosis last year, I was on a rest period from all osteoporosis treatments except Vitamin D. My recent bone density tests were not too bad, but the docs are concerned about my PD and want me to resume the osteo medication. This time they
Hello all. I have both PD and osteoporosis. When I got my PD diagnosis last year, I was on a rest period from all osteoporosis treatments except Vitamin D. My recent bone density tests were not too bad, but the docs are concerned about my PD and want me to resume the osteo medication. This time they
ge1shh
in
Cure Parkinson's
6 years ago
MyBeloved has taken madopar capsules at maximum dose daily for years. What happens next?
what consultant told him was maximum dose is 5x2 capsules (one is cr). If you reached the end of effectiveness what were you offered as choices?
what consultant told him was maximum dose is 5x2 capsules (one is cr). If you reached the end of effectiveness what were you offered as choices?
MylovedhasPd
in
Cure Parkinson's
6 years ago
Anyone taking Madopar cr?
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
I was do 2013, resisted meds until now. I'm beginning to think I need to take it. Has anyone taken MadaparCR? This is what my neurologist recommend. Does anyone have any experience of this drug? Thank you.
Nutbeam
in
Cure Parkinson's
6 years ago
Pain
My husband has had his Madopar cut by a lot which is fine but he now needs analgesic for the bad pain Going to GP Monday but wondering what other people take
My husband has had his Madopar cut by a lot which is fine but he now needs analgesic for the bad pain Going to GP Monday but wondering what other people take
9284
in
Cure Parkinson's
6 years ago
Always learning
Hello Everyone, Please could you help me to understand Sifrol ER? I am confused about when it can be taken, the information leaflet seems unclear to me, (I was not gifted with an abundance of intelligence). Should Sifrol ER be taken at one time during the day? Can Sifrol ER be taken twice during the
Hello Everyone, Please could you help me to understand Sifrol ER? I am confused about when it can be taken, the information leaflet seems unclear to me, (I was not gifted with an abundance of intelligence). Should Sifrol ER be taken at one time during the day? Can Sifrol ER be taken twice during the
october61
in
Cure Parkinson's
6 years ago
Paranoid, nasty , heartless
Hello everyone I'm sorry if I am going to sound horrible but I'm finding things really hard at moment My husband was diagnosed late 2015 but probably had for a long time He started hallucinating and confused 3 weeks ago and I thought he must have an infection but it was too much Madopar so the neurologist
Hello everyone I'm sorry if I am going to sound horrible but I'm finding things really hard at moment My husband was diagnosed late 2015 but probably had for a long time He started hallucinating and confused 3 weeks ago and I thought he must have an infection but it was too much Madopar so the neurologist
9284
in
Cure Parkinson's
6 years ago
JUST CURIOUS
Since joining this forum I have been so well educated and so well informed, but still I find myself coming up with questions. I am beginning to realise that maybe I have been very lucky, in that I have been taking very heavy medications for many, many years, and it's only now that I'm heading towards
Since joining this forum I have been so well educated and so well informed, but still I find myself coming up with questions. I am beginning to realise that maybe I have been very lucky, in that I have been taking very heavy medications for many, many years, and it's only now that I'm heading towards
TEAH35
in
Restless Legs Syndrome
6 years ago
Sifrol ER
Hello everyone, May I ask for some advice or guidance please? I have been taking Madopar Dispersible only which, I have been told by one of the Nurses at Parkinson’s UK that this is inadequate to control my symptoms. My Neurologist has prescribed Sifrol ER 0.375 mg which is to be taken at night, the
Hello everyone, May I ask for some advice or guidance please? I have been taking Madopar Dispersible only which, I have been told by one of the Nurses at Parkinson’s UK that this is inadequate to control my symptoms. My Neurologist has prescribed Sifrol ER 0.375 mg which is to be taken at night, the
october61
in
Cure Parkinson's
6 years ago
Medication storage
The hot weather in the UK continues and I note that Madopar, and probably other medications as well, should not be kept above 25*c. Not easy unless you have a/c. Can prolonged high temps affect the effectiveness of the medication and can it be kept in the fridge?
The hot weather in the UK continues and I note that Madopar, and probably other medications as well, should not be kept above 25*c. Not easy unless you have a/c. Can prolonged high temps affect the effectiveness of the medication and can it be kept in the fridge?
Buckholt
in
Cure Parkinson's
6 years ago
Confused
Letters from hospital keep saying Diagnosis probabe Parkinson's disease but they want to increase my tablets ( Madopar 62.5 mg three times a day to 125 mg ) so is it Parkinson's or not?
Letters from hospital keep saying Diagnosis probabe Parkinson's disease but they want to increase my tablets ( Madopar 62.5 mg three times a day to 125 mg ) so is it Parkinson's or not?
Hidden
in
Cure Parkinson's
6 years ago
Madopar instead of Sinemet
Hi Everyone Has anyone changed their Sinemet for Madopar? My friend currently takes one Madopar in the morning and 4 x Sinemet during the day but is'nt getting much relieve from the Sinemet like she used to ( diagnosed for 5 years) She also takes 1 x Opicapone in the evening She seems to be getting
Hi Everyone Has anyone changed their Sinemet for Madopar? My friend currently takes one Madopar in the morning and 4 x Sinemet during the day but is'nt getting much relieve from the Sinemet like she used to ( diagnosed for 5 years) She also takes 1 x Opicapone in the evening She seems to be getting
Seashore60
in
Cure Parkinson's
6 years ago
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