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RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
2 months ago
TSH Level
hiya( again š) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than Iām to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
hiya( again š) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than Iām to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
Forumjunkie
in
Thyroid UK
2 months ago
Results ?
Hi all you wonderful people , diagnosed with cirrhosis back in April , and ended up back in hospital for the whole of August with a bile duct infection , moving on now to November , bloods taken , no results given , figure wise only that , bloods are stable and improving , feeling 100% better , eating
Hi all you wonderful people , diagnosed with cirrhosis back in April , and ended up back in hospital for the whole of August with a bile duct infection , moving on now to November , bloods taken , no results given , figure wise only that , bloods are stable and improving , feeling 100% better , eating
wp69
in
British Liver Trust
6 months ago
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A puzzle
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
MrsMarigold
in
LUPUS UK
2 months ago
Really bad stomach and bowel cramps
Dry mouth and and all over pain stomach cramps and bowel cramps 111 just playing piped music for 15 minutes I think it's the lactulose cause it really fatigued also nausea blood pressure 153/90 pulse rate 106 111 was no help really feel sick and dizzy and I'm really thirsty blood pressure is still sky
Dry mouth and and all over pain stomach cramps and bowel cramps 111 just playing piped music for 15 minutes I think it's the lactulose cause it really fatigued also nausea blood pressure 153/90 pulse rate 106 111 was no help really feel sick and dizzy and I'm really thirsty blood pressure is still sky
Sheliabee
in
British Liver Trust
6 months ago
Autoimmune diseases and mental health
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
random901
in
PMRGCAuk
2 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
2 months ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
2 months ago
Lupus and Fibromyalgia with Sjogren syndrome
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
Denise1219
in
LUpus Patients Understanding and Support
2 months ago
PSA increase nearly one year after triplet therapy (mHSPC), what's next?
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Sissel25
in
Advanced Prostate Cancer
6 months ago
Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
2 months ago
PSA analysis 6 months after radiation
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
In January I will be 6 months post radiation to the prostrate and complete pelvic area. I was on Lupron for 6 months - 1 month prior and 5 months post radiation. I also was on Casodex for one month prior to the start of Lupron to lessen the flare. At 3 months post radiation PSA and Testosterone were
Mgtd
in
Advanced Prostate Cancer
6 months ago
Hi everyone
Hi, itās been a while but Iām still getting on with it , just out of hospital yet again with pericarditis again! Iām now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they havenāt cleared since December, I canāt remember the spelling but itās a nasty bug.
Hi, itās been a while but Iām still getting on with it , just out of hospital yet again with pericarditis again! Iām now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they havenāt cleared since December, I canāt remember the spelling but itās a nasty bug.
Numptybrain
in
Lung Conditions Community Forum
2 months ago
Morning all!
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
Alliekat65
in
PMRGCAuk
2 months ago
psoriatic arthritis
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Beata0102
in
NRAS
2 months ago
Is this a lupus rash?
this is a rash on my leg it is appearing everywhere!
this is a rash on my leg it is appearing everywhere!
Jolevans
in
LUPUS UK
2 months ago
HRT anyone?
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
NewLupusdiag
in
LUPUS UK
2 months ago
Fibroscan update
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Dontworrydarling
in
British Liver Trust
6 months ago
Ambroxol update
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinsonās and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinsonās. Preclinical data in models
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinsonās and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinsonās. Preclinical data in models
CuriousMe12
in
Cure Parkinson's
6 months ago
B12 result after 6 monthsā¦
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
2 months ago
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