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Metrozol
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New to the Forum
Hi, I’m Teddie, and I was 53 years old and post menopausal when I was diagnosed with bone mets in Dec 2017 (x2 hotspots in pelvis – left iliac bone, and left inferior pubic ramus). I turned 54 years young this January, and had my first normal mammogram at the age of 50. I was devastated when told
Hi, I’m Teddie, and I was 53 years old and post menopausal when I was diagnosed with bone mets in Dec 2017 (x2 hotspots in pelvis – left iliac bone, and left inferior pubic ramus). I turned 54 years young this January, and had my first normal mammogram at the age of 50. I was devastated when told
Teddielottie
in
SHARE Metastatic Breast Cancer
7 years ago
Im new! About to try IUI but have irregular periods and AF is nowhere to be seen
Hi guys, Im new on here and I need to speak to people who might understand or have experienced similiar things. I wonder if anyone can help. I have weird periods- I basically have spotting for about 10 days then 5 days of medium/ heavy bleeding. Then I have about 9 days off then im spotting again
Hi guys, Im new on here and I need to speak to people who might understand or have experienced similiar things. I wonder if anyone can help. I have weird periods- I basically have spotting for about 10 days then 5 days of medium/ heavy bleeding. Then I have about 9 days off then im spotting again
ems1111
in
Fertility Network UK
7 years ago
levothyroixine dosage
Hi, I cant get to know the right dosage or get my thyroid to normal levels.Every month I am checking and below are the levels.I am TTC since 5 months after miscarriage and on letrozole with no luck yet.So frustrated.When TSH appeared to be in range of .5 in Nov, my T4 was elevated to 6.3(but actually
Hi, I cant get to know the right dosage or get my thyroid to normal levels.Every month I am checking and below are the levels.I am TTC since 5 months after miscarriage and on letrozole with no luck yet.So frustrated.When TSH appeared to be in range of .5 in Nov, my T4 was elevated to 6.3(but actually
HYPOUSER
in
Thyroid UK
7 years ago
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Anyone on SRA737 (Sierra) phase 1/2 trial?
I am likely to be eligible for this trial of this drug (a kinase inhibitor) and have to decide whether to go for it or alternatively try Letrozole as a maintenance drug. Waiting to talk to my oncologist about the options, but interested to hear from anyone who is on the trial about experiences/side effects
I am likely to be eligible for this trial of this drug (a kinase inhibitor) and have to decide whether to go for it or alternatively try Letrozole as a maintenance drug. Waiting to talk to my oncologist about the options, but interested to hear from anyone who is on the trial about experiences/side effects
AlisonBoyd
in
My Ovacome
7 years ago
Caelyx not worked
Found out on Friday that my two rounds of Caelyx have not worked. My CA125 is now a little over 23,000. So glad I pushed for a review before I had the 3rd infusion. Have had carbo/taxol and then weekly taxol over last 2 years with regrowth happening quickly or in case of taxol before the cycle had
Found out on Friday that my two rounds of Caelyx have not worked. My CA125 is now a little over 23,000. So glad I pushed for a review before I had the 3rd infusion. Have had carbo/taxol and then weekly taxol over last 2 years with regrowth happening quickly or in case of taxol before the cycle had
Teresa_K
in
My Ovacome
7 years ago
Still at it .
Hello warriors !! Well still on ibrance and letrozole along with getting my zometa once a month. Oncologist says i cant have surgery on my breast due to tumor has shrunk,and due to my 9 lesions on my spine, Also found another one on my sternum and left lung ( small) said nothing to worry about. Confused
Hello warriors !! Well still on ibrance and letrozole along with getting my zometa once a month. Oncologist says i cant have surgery on my breast due to tumor has shrunk,and due to my 9 lesions on my spine, Also found another one on my sternum and left lung ( small) said nothing to worry about. Confused
Bubba_6
in
SHARE Breast Cancer Support
7 years ago
Primary Peritoneal Cancer
Hi, I’m new here. Diagnosed November 18, 2016 with Primary Peritoneal Cancer, staged at 3C. This was found during exploratory surgery. I’d had a completely normal ultrasound and then a completely normal CT scan. But my CA125 was 5800+. I knew something was wrong before any of my tests. So trust yourself
Hi, I’m new here. Diagnosed November 18, 2016 with Primary Peritoneal Cancer, staged at 3C. This was found during exploratory surgery. I’d had a completely normal ultrasound and then a completely normal CT scan. But my CA125 was 5800+. I knew something was wrong before any of my tests. So trust yourself
Jules_PPC
in
SHARE Ovarian Cancer Support
7 years ago
Aches, pains on Ibrance + Letrozole
Hello. Does anyone experience all kinds of aches or pains in muscles or anywhere else while taking Ibrance and Letrozole? I’m ending 3rd cycle of 75 mgs of Ibrance and the area towards my left shoulder is killing me! Seems this whole left arm aches upon moving it. Also I’ve had pain on the right side
Hello. Does anyone experience all kinds of aches or pains in muscles or anywhere else while taking Ibrance and Letrozole? I’m ending 3rd cycle of 75 mgs of Ibrance and the area towards my left shoulder is killing me! Seems this whole left arm aches upon moving it. Also I’ve had pain on the right side
Kats2
in
SHARE Metastatic Breast Cancer
7 years ago
New treatment
Hi all, I just had my first scan after being on Ibrance and Letrozole for almost 5 cycles. Good and bad news. Some tumors had shrunk while others had grown. My doctor is going to change my treatment to the following; Aromasin, Ribociclib which he says are similar to what I have been taking but they
Hi all, I just had my first scan after being on Ibrance and Letrozole for almost 5 cycles. Good and bad news. Some tumors had shrunk while others had grown. My doctor is going to change my treatment to the following; Aromasin, Ribociclib which he says are similar to what I have been taking but they
Kimr2081
in
SHARE Metastatic Breast Cancer
7 years ago
Too many worries
I've Been on ibrance and letrozole for 10 rounds. I would like to know if anyone has bee on it for more than two years, after having stage 4 BC. I find it very scary to think about how much these drugs may end up costing me financially. Too many things to worry about, side effects, cancer recurring
I've Been on ibrance and letrozole for 10 rounds. I would like to know if anyone has bee on it for more than two years, after having stage 4 BC. I find it very scary to think about how much these drugs may end up costing me financially. Too many things to worry about, side effects, cancer recurring
Mimiholl
in
SHARE Metastatic Breast Cancer
7 years ago
Side effects
Hi! My mom was diagnosed with metastatic breast cancer a year and a half ago and has been on ibrance and letrozole and gets monthly Xgeva. She has been doing well but seems to have more side effects now than when she first started. Aches and pains (back and hips) headaches, and hair thinning/dryness.
Hi! My mom was diagnosed with metastatic breast cancer a year and a half ago and has been on ibrance and letrozole and gets monthly Xgeva. She has been doing well but seems to have more side effects now than when she first started. Aches and pains (back and hips) headaches, and hair thinning/dryness.
emilyklein
in
SHARE Metastatic Breast Cancer
7 years ago
Really red roseacea
Hi, Im a 16 year old girl and I was diagnosed with rosacea last year. I went to the doctor last year to get some treatments, and I was prescribed with doxycycline and metrogel I used it for 2months but nothing really changed. The bumps were lessened but the really red flushing is still there :(( It really
Hi, Im a 16 year old girl and I was diagnosed with rosacea last year. I went to the doctor last year to get some treatments, and I was prescribed with doxycycline and metrogel I used it for 2months but nothing really changed. The bumps were lessened but the really red flushing is still there :(( It really
Jungshook
in
MY SKIN
7 years ago
Hello 2018! anyone with stage 3c low grade serous carcinoma
Hi my name is Lisa. I was diagnosed with stage 3c low grade serous carcinoma in 2015. Since then had my debunking surgery and 6 rounds of chemo my cancer returned with in three months. I have been on a study and different chemo .the last one was doxile and avastin . Well the doxil was to hard on my kidneys
Hi my name is Lisa. I was diagnosed with stage 3c low grade serous carcinoma in 2015. Since then had my debunking surgery and 6 rounds of chemo my cancer returned with in three months. I have been on a study and different chemo .the last one was doxile and avastin . Well the doxil was to hard on my kidneys
LDBottoms
in
My Ovacome
7 years ago
Cold
I’m worried that I’ve given my sister a bad cold. I was fine when I saw her but a day later I was in bed with a terrible cold a day later I’m feeling better but now she has a cold. She isn’t having chemo just now but is on letrozole and I’m having terrible thoughts that I will have caused serious effects
I’m worried that I’ve given my sister a bad cold. I was fine when I saw her but a day later I was in bed with a terrible cold a day later I’m feeling better but now she has a cold. She isn’t having chemo just now but is on letrozole and I’m having terrible thoughts that I will have caused serious effects
Stephgrey
in
My Ovacome
7 years ago
When liver enzymes elevate???
I was diagnosed last July with Met Breast Cancer of the Liver. I have been taking IBrance and Letrozole since August. The lastest MRI in November showed some improvement. My latest labs in December showed some increase in my liver enzymes. Now I'm afraid the drugs are not working. I'm up and moving daily
I was diagnosed last July with Met Breast Cancer of the Liver. I have been taking IBrance and Letrozole since August. The lastest MRI in November showed some improvement. My latest labs in December showed some increase in my liver enzymes. Now I'm afraid the drugs are not working. I'm up and moving daily
alannananegos
in
SHARE Metastatic Breast Cancer
7 years ago
Advice for a woman from Tennessee
One of our helpline callers, in remission for stage IV breast cancer needs information. One of her doctors in Tennessee where she recently moved, feels that it was no longer necessary for her to be on disability took her off it as she is now NED. She has been physically devastated by the chemos that
One of our helpline callers, in remission for stage IV breast cancer needs information. One of her doctors in Tennessee where she recently moved, feels that it was no longer necessary for her to be on disability took her off it as she is now NED. She has been physically devastated by the chemos that
daf10
in
SHARE Metastatic Breast Cancer
7 years ago
Word in the street - which could be better for low grade Caelyx or weekly taxol
Hi I’m being screened for LOGS. My original tumour was NF1 positive so it suggests a MEK inhibitor response. My question, if I get the control arm, do I go for: weekly taxol - I only got a slight response with taxol/ carbo and recurred within e-6 months after finishing treatment. But this will be weekly
Hi I’m being screened for LOGS. My original tumour was NF1 positive so it suggests a MEK inhibitor response. My question, if I get the control arm, do I go for: weekly taxol - I only got a slight response with taxol/ carbo and recurred within e-6 months after finishing treatment. But this will be weekly
Agility
in
My Ovacome
7 years ago
Muscle and joint pain
Just wondering has anyone had the pain in just one leg? I have had it in both but this this it's just been in one leg. Hurts!! I should have also asked if you are on letrozole. I understand that causes muscle and bone pain. I had it off and on, but this has been persistent.
Just wondering has anyone had the pain in just one leg? I have had it in both but this this it's just been in one leg. Hurts!! I should have also asked if you are on letrozole. I understand that causes muscle and bone pain. I had it off and on, but this has been persistent.
tmills64
in
SHARE Metastatic Breast Cancer
7 years ago
Just starting ibrance
I was originally diagnosed in 2002 and had a bilateral mastectomy and then in 2006 it moved to my bone and had 28 rounds of radiation. 11 years with no evidence of cancer then in August it reared its ugly head. I am not on ibrance and Letrozole. I honestly do not feel any different so it seems that
I was originally diagnosed in 2002 and had a bilateral mastectomy and then in 2006 it moved to my bone and had 28 rounds of radiation. 11 years with no evidence of cancer then in August it reared its ugly head. I am not on ibrance and Letrozole. I honestly do not feel any different so it seems that
Kimr2081
in
SHARE Metastatic Breast Cancer
7 years ago
Chemo brain?
I was diagnosed with stage 3 breast cancer. I had chemo,surgery & then radiation. I’m now on letrozole. Yes with all the side effects, but now I’v noticed some much memory loss. The friends are also noticing it. I’m really getting worried. Any advice
I was diagnosed with stage 3 breast cancer. I had chemo,surgery & then radiation. I’m now on letrozole. Yes with all the side effects, but now I’v noticed some much memory loss. The friends are also noticing it. I’m really getting worried. Any advice
Debkelly
in
SHARE Breast Cancer Support
7 years ago
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