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Hospice Journey 12/3/21
Another week down on this hospice journey. Actually it has started to be slightly boring. I lay down in my bed almost 24 hours a day. I primarily do that because it hurts so much to do anything else. So, each morning I wake up to the same routine. I have noticed some physical and psychological changes
Another week down on this hospice journey. Actually it has started to be slightly boring. I lay down in my bed almost 24 hours a day. I primarily do that because it hurts so much to do anything else. So, each morning I wake up to the same routine. I have noticed some physical and psychological changes
JimBarringer
in
Advanced Prostate Cancer
3 years ago
How to manage depression and other side effects from methadone/clonazepam for RLS
I transitioned successfully from 700 mg lyrica/2 mg clonazepam, to 10mg methadone/ .5mg clonazepam - and for 2 months now I am mostly symptom free. This is the really good news. I sleep solid 8 hour/nights. At a glance, 10mg meth .5mg clom. are a great combo. I mostly feel like my old self again. Memory
I transitioned successfully from 700 mg lyrica/2 mg clonazepam, to 10mg methadone/ .5mg clonazepam - and for 2 months now I am mostly symptom free. This is the really good news. I sleep solid 8 hour/nights. At a glance, 10mg meth .5mg clom. are a great combo. I mostly feel like my old self again. Memory
Steino
in
Restless Legs Syndrome
3 years ago
getting off a low dose of pramipexole
I was on Permax and Mirapex at .05 mg for rls for about 20 years, before augmentation set in. I reduced the Mirapex slowly, then went off completely for 7 months. Experiencing depression and anxiety, and sleep interrupted by rls , I went back on 3 years ago and have stayed on .125 by taking a 14 day
I was on Permax and Mirapex at .05 mg for rls for about 20 years, before augmentation set in. I reduced the Mirapex slowly, then went off completely for 7 months. Experiencing depression and anxiety, and sleep interrupted by rls , I went back on 3 years ago and have stayed on .125 by taking a 14 day
Cather
in
Restless Legs Syndrome
3 years ago
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Hospice again
Well it has been a few days since my last post about my particular hospice journey. I will try to update every Friday if possible. I have to say that the last five days have been rather difficult. My pain has increased significantly. I'm currently on a 75 mcg/h fentanyl patch, 15mg methadone three
Well it has been a few days since my last post about my particular hospice journey. I will try to update every Friday if possible. I have to say that the last five days have been rather difficult. My pain has increased significantly. I'm currently on a 75 mcg/h fentanyl patch, 15mg methadone three
JimBarringer
in
Advanced Prostate Cancer
3 years ago
Gabapentin and methadone.
I'm currently on 1100 mg of Gabapentin, to no effect at all. I've used Gaba twice before, backing out each time it stopped working so there's probably embedded resistance now. I'm minded to try Methadone at a low dosage. Should I back out of the Gaba completely first or could I begin the Methadone alongside
I'm currently on 1100 mg of Gabapentin, to no effect at all. I've used Gaba twice before, backing out each time it stopped working so there's probably embedded resistance now. I'm minded to try Methadone at a low dosage. Should I back out of the Gaba completely first or could I begin the Methadone alongside
dickJones
in
Restless Legs Syndrome
3 years ago
Tapered off Mirapex about 8 weeks ago, new meds causing morning sedation and anxiety. Do I just have to cope with that?
Hi all- my first real post here, thought I should introduce myself! I have a lot of questions... I've had RLS since I was 12. Have been taking Mirapex for 30 years maybe? Up to about 1mg/day, was augmenting. Was tapered off, last dose in late Sep 2021. I see an RLS doctor at Yale, he seems pretty
Hi all- my first real post here, thought I should introduce myself! I have a lot of questions... I've had RLS since I was 12. Have been taking Mirapex for 30 years maybe? Up to about 1mg/day, was augmenting. Was tapered off, last dose in late Sep 2021. I see an RLS doctor at Yale, he seems pretty
Aeonkontiki
in
Restless Legs Syndrome
3 years ago
Anyone care to interpret this article?
https://www.researchgate.net/publication/267734343_Striatal_dopamine_D1_and_D2_receptors_are_differentially_regulated_following_buprenorphine_or_methadone_treatment This is incredibly important for people taking either buprenorphine or methadone. It might mean all the difference in the world. It sounds
https://www.researchgate.net/publication/267734343_Striatal_dopamine_D1_and_D2_receptors_are_differentially_regulated_following_buprenorphine_or_methadone_treatment This is incredibly important for people taking either buprenorphine or methadone. It might mean all the difference in the world. It sounds
Hidden
in
Restless Legs Syndrome
3 years ago
Please advise:What should I take for RLS after getting off Pramipexole and Ropinirole?
Hi, All, and thank you for your help in this forum! As of mid-August, I am off Pram and ROP after many years of being on them and also trying everything else! My neurologist gave me low-dose Methadone to get through it. I have only a couple of 10 mg Methadone pills left and I still get jerking in my
Hi, All, and thank you for your help in this forum! As of mid-August, I am off Pram and ROP after many years of being on them and also trying everything else! My neurologist gave me low-dose Methadone to get through it. I have only a couple of 10 mg Methadone pills left and I still get jerking in my
TeddiJ
in
Restless Legs Syndrome
3 years ago
Stomach pain/crohns
I’m having a problem with upstream small bowel dilatition causing severe hold up, I have stomach aches with little appetite but when I need to open my bowels or if I have wind I get the most excruciating cramping burning pain They are a 11/10 pain, sharp and uncontrollable. I sometimes darent move for
I’m having a problem with upstream small bowel dilatition causing severe hold up, I have stomach aches with little appetite but when I need to open my bowels or if I have wind I get the most excruciating cramping burning pain They are a 11/10 pain, sharp and uncontrollable. I sometimes darent move for
Crohnwarrior
in
Crohn's and Colitis Support
3 years ago
Lord,Lord,What’s next?
Myhubby58 is yet holding on with hospice care,but now he is bed wetting and his face is swollen and legs and feet to.. he is losing his memory but the methadone and dexamethadone is making him eat like crazy,but he mostly wants sweet stuff to eat and when I tested his blood sugar it was 360..I just don
Myhubby58 is yet holding on with hospice care,but now he is bed wetting and his face is swollen and legs and feet to.. he is losing his memory but the methadone and dexamethadone is making him eat like crazy,but he mostly wants sweet stuff to eat and when I tested his blood sugar it was 360..I just don
Myhubby58
in
Advanced Prostate Cancer
3 years ago
Moving from lyrica/clonazapam to methadone
I have had RLS for 25 years. In a couple weeks I will be transitioning from 400mg lyrica (at 4pm) and .5mg clonazapam (night time) to 5mg methadone. It took me over 6 months to get off 6mg er after 7 years of usage (2 years of this period I had nightly augmentation). Lyrica/clonazapam makes me walk like
I have had RLS for 25 years. In a couple weeks I will be transitioning from 400mg lyrica (at 4pm) and .5mg clonazapam (night time) to 5mg methadone. It took me over 6 months to get off 6mg er after 7 years of usage (2 years of this period I had nightly augmentation). Lyrica/clonazapam makes me walk like
Steino
in
Restless Legs Syndrome
3 years ago
Buprenorphine/ Subutex,, Temgesic,CBD, THC , Traumeel injections
I can’t not emphasis this enough Anyone starting Buprenorphine / Subutex Or the micro dose version Temgesic. You will not get this advice from your doctors but I urge you to start in this manor. Buy a pill cutter and nightly cut you sublingual tablet into about 8 /10 tiny little crumbs. These medications
I can’t not emphasis this enough Anyone starting Buprenorphine / Subutex Or the micro dose version Temgesic. You will not get this advice from your doctors but I urge you to start in this manor. Buy a pill cutter and nightly cut you sublingual tablet into about 8 /10 tiny little crumbs. These medications
Shumbah
in
Restless Legs Syndrome
3 years ago
It seems to be working
Well guess what, when Myhubby58 was in the delirium stage, the Hospice Nurse figured out it was the lorazepam that was making him have hallucinations. And now that she took him off of that, he is no longer having them.. Thank You Jesus.. Now they have him on dextamethazone, methadone, and oxycodene,
Well guess what, when Myhubby58 was in the delirium stage, the Hospice Nurse figured out it was the lorazepam that was making him have hallucinations. And now that she took him off of that, he is no longer having them.. Thank You Jesus.. Now they have him on dextamethazone, methadone, and oxycodene,
Myhubby58
in
Advanced Prostate Cancer
3 years ago
My life with RLS, and the lengths I will go to for relief!
I am 58, and I have had RLS for 13 years. Or I was diagnosed 13 years ago. My story is crazy , and I'm sure some won't believe it. About 15 years ago I started having bad panic attacks! I would go to the ER. Several times a week. I was treated with Xanax. It worked well for me. But then I started getting
I am 58, and I have had RLS for 13 years. Or I was diagnosed 13 years ago. My story is crazy , and I'm sure some won't believe it. About 15 years ago I started having bad panic attacks! I would go to the ER. Several times a week. I was treated with Xanax. It worked well for me. But then I started getting
1Master11
in
Restless Legs Syndrome
3 years ago
Life after Ropinirole.
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Hello. I've had RLS my whole life. 30 years ago I was put on prozac for depression. My RLS got a bit worse but it wasn't a huge problem until I started hormone replacement. My symptoms became chronic and I started taking Ropinirole without any knowledge of the horrors of this drug. Three years ago, after
Birdland
in
Restless Legs Syndrome
3 years ago
First ten days in hospice
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
WildRose6
in
Advanced Prostate Cancer
3 years ago
Spinal Stimulator - a new ray of hope?
https://pubmed.ncbi.nlm.nih.gov/30947223/ It's a VERY small study but I noticed a post on a US RLS forum by someone who has suffered chronic rls for years which was treated with methadone. She had the stimulator fitted in Feb and appears now to have her rls under control and is off methadone!!!
https://pubmed.ncbi.nlm.nih.gov/30947223/ It's a VERY small study but I noticed a post on a US RLS forum by someone who has suffered chronic rls for years which was treated with methadone. She had the stimulator fitted in Feb and appears now to have her rls under control and is off methadone!!!
involuntarydancer
in
Restless Legs Syndrome
3 years ago
Addiction
As I have an extremely addictive personality, when I had a bad back, my Dr gave me tramadol. 3 year later, after faking situations, manipulating Drs and even threatening them, my body and mind was so conditioned with opiates, tht I would take 300 endone, 100 codeine, 150 palexia every month. During
As I have an extremely addictive personality, when I had a bad back, my Dr gave me tramadol. 3 year later, after faking situations, manipulating Drs and even threatening them, my body and mind was so conditioned with opiates, tht I would take 300 endone, 100 codeine, 150 palexia every month. During
Goingnuts75
in
CHADD's Adult ADHD Support
3 years ago
Dopamine agonists and their aftermath - A Survey
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Parminter
in
Restless Legs Syndrome
3 years ago
RLS and Azelastine HCL nose spray
Suddenly I started getting RLS, even on low dose Methadone. I am thinking it is the Azelastine as it is an antihistamine, but I cannot find any literature on it. The only other thing that changed was a slight reduction in Lithium. I don't have any discontinuation symptoms, so I don't think it is that
Suddenly I started getting RLS, even on low dose Methadone. I am thinking it is the Azelastine as it is an antihistamine, but I cannot find any literature on it. The only other thing that changed was a slight reduction in Lithium. I don't have any discontinuation symptoms, so I don't think it is that
tinabuglaw
in
Restless Legs Syndrome
3 years ago
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