Update and 2nd opinion: Hello again, I... - Advanced Prostate...

Advanced Prostate Cancer

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Update and 2nd opinion

JD-guy profile image
6 Replies

Hello again, I have asked a couple questions at the beginning of this journey and it has been very helpful. I had only went to my Urologist and felt like he was not doing all that could be done. I went to UPMC--U of Pittsburg--Hillman Cancer Center--Harrisburg PA for a second opinion. I am very glad that I did, they are wanting to do radiation on some of my structural bone METS, and then start Chemo. (my Urologist wanted to just keep on lupron for now and then we will see what happens.) I am currently waiting on the MO to have Radiation Oncologist look at my bone scan to see how much etc. One of our son's is a nurse and helped us sort thru some of this.

My PSA continues to drop which I am most grateful.

started at 82.2, down to 5.45 now down to 3.53

if anyone has more advice, let me know,

I am so grateful the have the Peace of God in my heart thru this journey. This helps to keep a positive attitude thru it all.

thanks and have a good day.

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JD-guy
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Tall_Allen profile image
Tall_Allen

The radiation is palliative and will prevent fractures in the future. Consider combining Xofigo with the chemo. In one clinical trial, they were able to lower the docetaxel dose and increase effectiveness. See "Chemotherapy" section in the article about Xofigo below:

prostatecancer.news/2021/02...

Also, there is an ongoing clinical trial with sites at Ohio State in Columbus and Henry Ford in Detroit that you may want to get on:

clinicaltrials.gov/ct2/show...

Great move JD-guy in saving yourself friend. We must step up and self advocate . A Uro and a MO often have different approaches and takes on things.

tallguy2 profile image
tallguy2

I place my trust 100% on my urologic medical oncologist. I keep my urologist primarily to keep him informed about what’s going on at MD Anderson Cancer Center. He seems to appreciate it. (I also get my Eligard and Prolia shots from my urologist.)

Pianodude profile image
Pianodude

I am a patient at the Hillman in Pittsburgh. They have been incredible to work with, and I have had great results from my treatments.

JD-guy profile image
JD-guy in reply to Pianodude

I have had one consultation so far and have been impressed with their approach and helpfulness. thanks

Grebit profile image
Grebit

After surgery and radiation in 2017, 2 years later my PSA was elevated and scans showed Mets in my spine. I was started on Lupron and Zytiga. 3.months later my psa was undetectable, Scans a year later were clear of Mets. I continue on the same regimen and will see my oncologist at Mayo next week.

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