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Mepacrine
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I started mepacrine today. 50mg x 3 times a week. In addition to hydroxy and MMF.
At last I have started
mepacrine
, as prescribed by Dr K in April. So that's the first point on my treatment plan ticked off.
At last I have started
mepacrine
, as prescribed by Dr K in April. So that's the first point on my treatment plan ticked off.
Wendy39
in
LUPUS UK
7 years ago
And so my saga continues.......
No
mepacrine
and no local Rheumy to take charge. 😬😬
No
mepacrine
and no local Rheumy to take charge. 😬😬
Wendy39
in
LUPUS UK
7 years ago
Summer is coming......
Hi everyone...i have an autoimmune condition with symptoms in line with Lupus..i attend Guys Hospital and just wanted to share a product i have found helpful.. i have been taking
Mepacrine
for two years now and just started prednisone which does help... i dread the sunny weather and heat and cheery weather
Hi everyone...i have an autoimmune condition with symptoms in line with Lupus..i attend Guys Hospital and just wanted to share a product i have found helpful.. i have been taking
Mepacrine
for two years now and just started prednisone which does help... i dread the sunny weather and heat and cheery weather
tjo52
in
LUPUS UK
7 years ago
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No treatment options available to me
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that
mepacrine
could be an option but it is much less likely to work and I could suffer similar adverse effects.
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that
mepacrine
could be an option but it is much less likely to work and I could suffer similar adverse effects.
riannabri
in
LUPUS UK
7 years ago
Crying - why?
Since they have now cancelled my appointment and heavens knows if and when I will get another: if you are taking
Mepacrine
how have you found it?
Since they have now cancelled my appointment and heavens knows if and when I will get another: if you are taking
Mepacrine
how have you found it?
denden
in
LUPUS UK
9 years ago
Questions about lupus
Hello my name is Katie I was told I have a connitive tissue disease and they are pretty sure it's SLE . I am 27yrs old and found this out in March of this year. I have also been told I have fibromyalgia, and neuropathy. All of my joints hurt and my skin hurts to touch . I keep telling my doctors about
Hello my name is Katie I was told I have a connitive tissue disease and they are pretty sure it's SLE . I am 27yrs old and found this out in March of this year. I have also been told I have fibromyalgia, and neuropathy. All of my joints hurt and my skin hurts to touch . I keep telling my doctors about
urkatzmeow
in
LUPUS UK
10 years ago
low white cell counts and neutrophils
He is taking Hydroxychloroquine and
Mepacrine
. His white cell counts and neutrophils have dropped a couple years after his diagnosis and remained low since. Are the low counts due to his medication or his disease? Can anybody advise? Thanks
He is taking Hydroxychloroquine and
Mepacrine
. His white cell counts and neutrophils have dropped a couple years after his diagnosis and remained low since. Are the low counts due to his medication or his disease? Can anybody advise? Thanks
stroseoflimas
in
LUPUS UK
10 years ago
Hydroxychloroquine and fatigue
Hey everyone, im on 200mg hydroxy and wondered if it was increased would it help with fatigue, also on mycophenalate lyrica
mepacrine
palexia sertraline vit d cetrizine lansoprazole.
Hey everyone, im on 200mg hydroxy and wondered if it was increased would it help with fatigue, also on mycophenalate lyrica
mepacrine
palexia sertraline vit d cetrizine lansoprazole.
biddy75
in
LUPUS UK
10 years ago
Does anyone have any experience of Mepacrine?
I have SLE and have been taking Hydroxychloroquine with no relief, there seems very little info out there on
Mepacrine
so any info would be appreciated. Many thanks
I have SLE and have been taking Hydroxychloroquine with no relief, there seems very little info out there on
Mepacrine
so any info would be appreciated. Many thanks
wigglemac
in
LUPUS UK
10 years ago
Sixth cranial nerve palsy
Current taking 14 mg warfarin to maintain INR of 4 Hydroxychloroquine 400mg
Mepacrine
50mg mom, wed , fri Clexane 120 mg daily Baclofen 10mg qds Dann
Current taking 14 mg warfarin to maintain INR of 4 Hydroxychloroquine 400mg
Mepacrine
50mg mom, wed , fri Clexane 120 mg daily Baclofen 10mg qds Dann
Dann
in
Hughes Syndrome APS Forum
10 years ago
Hi, any advice welcome, I suffer from Discoid Lupus, I'm on Mepacrine, recently the butterfly rash as flared up, any suggestions?
Recent Dermatology appointment suggested I use Cutivate followed by Protopic! I dont feel happy about these :(
Recent Dermatology appointment suggested I use Cutivate followed by Protopic! I dont feel happy about these :(
Silverlady51
in
LUPUS UK
11 years ago
Has anyone been on Quinacrine? If so, any bad side affects?
Hi, I've been diagnosed with Lupus sense 1993 & I've been on placquinil sense with no real issues. Now I'm having a flare they want me to start taking Quinacrine. Question, to my fellow Lupus family, has any one been on it, tried it and if so did u have any negative side effects? And if so what were
Hi, I've been diagnosed with Lupus sense 1993 & I've been on placquinil sense with no real issues. Now I'm having a flare they want me to start taking Quinacrine. Question, to my fellow Lupus family, has any one been on it, tried it and if so did u have any negative side effects? And if so what were
Ceeceelove
in
LUPUS UK
11 years ago
Has anyone been able to return to work and a "normal" life after diagnosis?
I still live in hope that once my medication is sorted , now on MMF, Hydro,
mepacrine
and steroids, that I will be able to manage with out a carer and that I will get my legs and my independence back.
I still live in hope that once my medication is sorted , now on MMF, Hydro,
mepacrine
and steroids, that I will be able to manage with out a carer and that I will get my legs and my independence back.
tiredmum
in
LUPUS UK
11 years ago
new here and have questions hope you guys can help
I have been taking methotrexate for 2 months now so i know i am new to this. But it seems that i feel ok with the meth but when i take the folic acid it kicks my butt. I get so nauseated and tired i could sleep for days. I have had lupus for several years I am also taking cymbalta, quinacrine 100mg daily
I have been taking methotrexate for 2 months now so i know i am new to this. But it seems that i feel ok with the meth but when i take the folic acid it kicks my butt. I get so nauseated and tired i could sleep for days. I have had lupus for several years I am also taking cymbalta, quinacrine 100mg daily
donam
in
LUpus Patients Understanding and Support
11 years ago
lupus meth/folic acid feeling like crap
I have been taking methotrexate for 2 months now so i know i am new to this. But it seems that i feel ok with the meth but when i take the folic acid it kicks my butt. I get so nauseated and tired i could sleep for days. I have had lupus for several years I am also taking cymbalta, quinacrine 100mg
I have been taking methotrexate for 2 months now so i know i am new to this. But it seems that i feel ok with the meth but when i take the folic acid it kicks my butt. I get so nauseated and tired i could sleep for days. I have had lupus for several years I am also taking cymbalta, quinacrine 100mg
donam
in
NRAS
11 years ago
Anyone else take Mepacrine?
I was put on
Mepacrine
by the Prof in 2002 because allergic to Plaquenil. I have horrid black marks on my nails and what look like bruises on my legs which apparently is due to taking it.
I was put on
Mepacrine
by the Prof in 2002 because allergic to Plaquenil. I have horrid black marks on my nails and what look like bruises on my legs which apparently is due to taking it.
panda60
in
Hughes Syndrome APS Forum
11 years ago
Total meltdown
Can't take plaquenil because I'm very allergic but take
Mepacrine
instead, but wondering if after 11yrs it is losing its effect. My doctor suggested I may have depression but I don't think I have although am wavering over his suggestion of CBT to help me cope day to day..
Can't take plaquenil because I'm very allergic but take
Mepacrine
instead, but wondering if after 11yrs it is losing its effect. My doctor suggested I may have depression but I don't think I have although am wavering over his suggestion of CBT to help me cope day to day..
panda60
in
Hughes Syndrome APS Forum
11 years ago
dose any 1 take mepacrine 100mg tab twice a week if so what side affects do you get .
joshsammy
in
LUPUS UK
12 years ago
Low blood count
I am on mycophenate motofil (Cellcept) and
mepacrine
. I feel ok except from being really tired which I've put down to other medication. She is chasing up my rhuemie appointment but I wondered what do they do in these circumstances? Thank you.
I am on mycophenate motofil (Cellcept) and
mepacrine
. I feel ok except from being really tired which I've put down to other medication. She is chasing up my rhuemie appointment but I wondered what do they do in these circumstances? Thank you.
KTWells
in
Vasculitis UK
12 years ago
Methotrexate
I am also on
mepacrine
and preds but don't get any side effects from these at all. Also, does anyone drink alcohol when on this? I have Cutaneous Lupus but suffer with joint ache, tiredness etc, my skin flares really badly.
I am also on
mepacrine
and preds but don't get any side effects from these at all. Also, does anyone drink alcohol when on this? I have Cutaneous Lupus but suffer with joint ache, tiredness etc, my skin flares really badly.
maffwad
in
LUPUS UK
12 years ago
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