Hi, any advice welcome, I suffer from Discoid Lupus, I'm on Mepacrine, recently the butterfly rash as flared up, any suggestions?

[Silverlady51]

Recent Dermatology appointment suggested I use Cutivate followed by Protopic! I dont feel happy about these

[Elle-26]

Hi Silverlady51, do you have any other symptoms apart from the discoid rash?

[Silverlady51 in reply to Elle-26]

Hi Elle-26, my joint aches together with a slight hair loss, unfortunatley Im going through the menopause! so this offsets the immune system.

[Elle-26]

Sounds as if your Lupus is having a flare ... I say this as Ive lost nearly all my hair and diagnosed with Discoid Lupus with Lupus Erythematosus systemic symptoms. I was put on Quinoric & iron by my Dermatologist and GP put me on painkillers and Amitriptyline also Colofac as the Lupus triggered stomach and bowel problems. Now got an appointment to see Rheumatologist next month due to my joint and muscle pain and inflammation. Do you suffer from photosensitivity? As this brings on my flares and can be an aggravating factor in Discoid Lupus x

[Silverlady51 in reply to Elle-26]

Hi, thanks so much for this, so sorry to hear about your hair loss, try Betacarotine (6mg) just 1 tablet every day its purely to help maintain hair, nails its been good for me, Holland & Barrett. Yes i do suffer from photosensitivity.... x

[kovrcava]

Hey, I also have discoid lupus for almost 5 years. When I was diagnosed, my dermatologist said that for long period of time is better to use ointments such as Protopic and not corticostereoids. I was using Protopic for two and half years and it really helps with one big flare on my head where hair was fallen off.