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OCALIVA
Hello! Anyone is taking OCALIVA in addition to Ursodiol to lower ALP? Does it work? Do you have any side-effects? How long have you been taking it? My ALP jump quite a bit and my doctor mentioned OCALIVA. I don't like what I read about the side-effects. I'd appreciate your input. Thanks!
Hello! Anyone is taking OCALIVA in addition to Ursodiol to lower ALP? Does it work? Do you have any side-effects? How long have you been taking it? My ALP jump quite a bit and my doctor mentioned OCALIVA. I don't like what I read about the side-effects. I'd appreciate your input. Thanks!
iagra
in
PBCers Organization
10 months ago
Gabapentin and Oxycodone
Hi I'm back, looking for more advice from the wise ones on HealthUnlocked. I recently came off Pramipexole and persuaded my (UK NHS) neurologist to prescribed Oxycodone/Nalazone. I take 10mgs in the morning and 20 about 7.00pm (any later and it doesn't work). This led to an improvement, but my sleep
Hi I'm back, looking for more advice from the wise ones on HealthUnlocked. I recently came off Pramipexole and persuaded my (UK NHS) neurologist to prescribed Oxycodone/Nalazone. I take 10mgs in the morning and 20 about 7.00pm (any later and it doesn't work). This led to an improvement, but my sleep
RLSHell
in
Restless Legs Syndrome
10 months ago
reclast/zoledronic acid
been reading on canceractive regarding bisphosphonates for osteoporosis and that they make brittle bones worse, and increase fractures and stop bones from remodeling, why don't oncologists tell you this instead of promoting bisphosphonates.i have severe osteoporosis I am ok at the moment but what can
been reading on canceractive regarding bisphosphonates for osteoporosis and that they make brittle bones worse, and increase fractures and stop bones from remodeling, why don't oncologists tell you this instead of promoting bisphosphonates.i have severe osteoporosis I am ok at the moment but what can
Radars
in
Bone Health and Osteoporosis UK
10 months ago
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Alendronic Acid
I was told in my recent medication review not to take Adcal on the day I take Alendronic acid as they bind together and are lost- any thoughts? Been doing it wrong for five years!
I was told in my recent medication review not to take Adcal on the day I take Alendronic acid as they bind together and are lost- any thoughts? Been doing it wrong for five years!
Daffodilia
in
PMRGCAuk
10 months ago
Is it really necessary to take Alendronic Acid with these results?
I am 72 years old and have been diagnosed with osteoporosis/osteoporotic (Iam not sure which as the report refers to both). The results of my tests and recommendations are as follows:- Indication: PTH Risk Factor: Excess alcohol, fractured wrist age 64, maternal hip fracture, Secondary Osteoporosis
I am 72 years old and have been diagnosed with osteoporosis/osteoporotic (Iam not sure which as the report refers to both). The results of my tests and recommendations are as follows:- Indication: PTH Risk Factor: Excess alcohol, fractured wrist age 64, maternal hip fracture, Secondary Osteoporosis
NowandAgain
in
Bone Health and Osteoporosis UK
10 months ago
Is it really necessary to take Alendronic Acid with these results?
I am 72 years old and have been diagnosed with osteoporosis/osteoporotic (Iam not sure which as the report refers to both). The results of my tests are as follows:- Indication: PTH Risk Factor: Excess alcohol, fractured wrist age 64, maternal hip fracture, Secondary Osteoporosis (PTH) Medication
I am 72 years old and have been diagnosed with osteoporosis/osteoporotic (Iam not sure which as the report refers to both). The results of my tests are as follows:- Indication: PTH Risk Factor: Excess alcohol, fractured wrist age 64, maternal hip fracture, Secondary Osteoporosis (PTH) Medication
NowandAgain
in
PMRGCAuk
10 months ago
Alendronic Acid
I wondered if there is a suggestion on how long one should take Alendronic Acid. I started when i was about 64 ( I am now 79). I worked as a nurse in the interventional Radiology department and when the new dexa scan arrived all females working were able to have a scan to give a little more experience
I wondered if there is a suggestion on how long one should take Alendronic Acid. I started when i was about 64 ( I am now 79). I worked as a nurse in the interventional Radiology department and when the new dexa scan arrived all females working were able to have a scan to give a little more experience
Booge_15
in
PMRGCAuk
10 months ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
4 months ago
Osteoporosis and PV
Hi , I was recently diagnosed with osteoporosis with a Dexa scan,after the MRI showed sacral fractures ,which had caused quite severe back pain for sometime. I am about to start taking Ruxolitinib for my PV.(Unfortunately Peg interferon caused paraesthesia + after taking it for 18months,so I stopped
Hi , I was recently diagnosed with osteoporosis with a Dexa scan,after the MRI showed sacral fractures ,which had caused quite severe back pain for sometime. I am about to start taking Ruxolitinib for my PV.(Unfortunately Peg interferon caused paraesthesia + after taking it for 18months,so I stopped
Bobadog
in
MPN Voice
10 months ago
bone mets
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
Does anybody here has obsteoblastic lesion on the first diagnosis then osteolytic and sclerotic lesion after some few years on bone mets? How are you managing bone mets? Xgeva? Zoledronic acid? Xofigo? Appreciate your inputs in here. My dad is on 1st line ADT since 2021 and just started 2nd line(abiraterone
dnmrk
in
Advanced Prostate Cancer
10 months ago
Alendronic Acid
When I saw a new rhuemy yesterday she mentioned Alendronic Acid. I had not heard of it. I take Calcium D3 because a DXA scan showed osteopenia in my lower back. Would Alendronic Acid be helpful with Calcium D3 or instead of it?
When I saw a new rhuemy yesterday she mentioned Alendronic Acid. I had not heard of it. I take Calcium D3 because a DXA scan showed osteopenia in my lower back. Would Alendronic Acid be helpful with Calcium D3 or instead of it?
SudsSuds
in
PMRGCAuk
10 months ago
First BMD in 8 years
I got a BMD and have been considering echolyte in the year ahead to inform my numbers with more information. I wonder what some of your concerns for me might be as I debate medication or no medication. I am an active 68 year old woman. I walked 920 miles in 8 weeks in a wellness competition. I am
I got a BMD and have been considering echolyte in the year ahead to inform my numbers with more information. I wonder what some of your concerns for me might be as I debate medication or no medication. I am an active 68 year old woman. I walked 920 miles in 8 weeks in a wellness competition. I am
Mindy777
in
Osteoporosis Support
3 months ago
sleep aid
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
RCHD
in
Restless Legs Syndrome
4 months ago
R-alpha Lipoic Acid
I read in the Autumn 2023 ME Association magazine that R-Alpha Lipoic Acid could be helpful for someone with ME. I use Methotrexate for my RA. Has anyone used this supplement with Methotrexate?
I read in the Autumn 2023 ME Association magazine that R-Alpha Lipoic Acid could be helpful for someone with ME. I use Methotrexate for my RA. Has anyone used this supplement with Methotrexate?
64notout
in
NRAS
10 months ago
Vital Role of B12 and Folate
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
B12life
in
Pernicious Anaemia Society
7 months ago
Help! Raised serum organic phosphate levels
Hello everyone... A month ago I posted after being concerned about a raised organic serum level. 1.89. After a change of diet and a retest there is no significant difference it’s now 1.84. The normal range is 1.40. All other bone profile and renal rests are fine as is the parathyroid level. I know
Hello everyone... A month ago I posted after being concerned about a raised organic serum level. 1.89. After a change of diet and a retest there is no significant difference it’s now 1.84. The normal range is 1.40. All other bone profile and renal rests are fine as is the parathyroid level. I know
Pangolin43
in
PMRGCAuk
10 months ago
Thank you to all who helped ref Alendronic Acid
I am pleased to tell you, following my email to my Rheumatology Team, I had a telephone call from my Consultant who was very understanding relating to my unwillingness to take Alendronic Acid as prescribed and issued. Your repsonses gave me the courage I needed to continue objecting to it. He is
I am pleased to tell you, following my email to my Rheumatology Team, I had a telephone call from my Consultant who was very understanding relating to my unwillingness to take Alendronic Acid as prescribed and issued. Your repsonses gave me the courage I needed to continue objecting to it. He is
Knip
in
Bone Health and Osteoporosis UK
10 months ago
Comprehensive CKD and healthy Diet app
If you are aware of any reputable comprehensive apps to help track food intake for CKD patients. I would love a recommendation. Kidney diet tracking is complicated and it would be invaluable to have a toolset for those of us trying to implement dietary changes that are comprehensive. By comprehensive
If you are aware of any reputable comprehensive apps to help track food intake for CKD patients. I would love a recommendation. Kidney diet tracking is complicated and it would be invaluable to have a toolset for those of us trying to implement dietary changes that are comprehensive. By comprehensive
2023CKD
in
Kidney Disease
7 months ago
Bleeding for holiday
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Hello everyone, I have posted on here before, in summary I am 39 years of age, on waiting list for a Hysterectomy hopefully in the coming months. My symptoms are pelvic pain and heavy bleeding, currently managed via low dose of Provera. I have tried Norethisterone but experienced side effects including
Kittie5117
in
Endometriosis UK
10 months ago
Dental work
I have recently had my 2nd alendronic acid infusion and so far so good! However I am due to have some dental work in November, which could involve extraction. When I went for my last infusion I was told not to have any work done for a while after this. I have spoken to the dentist who still wants me
I have recently had my 2nd alendronic acid infusion and so far so good! However I am due to have some dental work in November, which could involve extraction. When I went for my last infusion I was told not to have any work done for a while after this. I have spoken to the dentist who still wants me
YorkshireOAP
in
Bone Health and Osteoporosis UK
10 months ago
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