MCTD - is it genetic?: I have recently been... - LUPUS UK

LUPUS UK

32,676 members28,939 posts

MCTD - is it genetic?

Jennie_103 profile image
5 Replies

I have recently been diagnosed with Mixed Connective Tissue Disease and I forgot to ask at the appointment whether it is genetic? Will I pass this on to my kids?

Written by
Jennie_103 profile image
Jennie_103
To view profiles and participate in discussions please or .
5 Replies
janiceray profile image
janiceray

I don't think so,but check it out with GP

DPJ66 profile image
DPJ66

My daughter has just been diagnosed with Lupus at the age of 24 - I was diagnosed 8 years ago. Definitely worth asking about ...

EOLHPC profile image
EOLHPC

my consultant seems to think it's very likely most everything like this has at least some degree of genetics involved. talking to my sisters, in my family there is what i think is probably undiagnosed MCTD (i'm the only one who has had it bad enough to be diagnosed). certainly there is hypermobility around in my family, and that condition seems to have some sort of link with MCTD.

Jennie_103 profile image
Jennie_103 in reply toEOLHPC

I am definitely hypermobile! I had no idea it was linked. I'm just starting to learn about this condition and there's not an enormous amount out there.

I suppose it's inevitable there will be a genetic component. If there was a certainty that my future kids would have as many health problems as me, then I don't think I would choose to have them. I'm lucky as a gay woman that we can make the decision for my partner to be the one to have them instead. Not a solution for many couples!

I will definitely put it on my list of questions for my next appointment in July!

Thanks

Jennie

Ninasnest profile image
Ninasnest

I am not sure if it is genetic. I can tell you that all of my paternal aunts have an autoimmune disease. My MCTD has evolved into Lupus. I was redial nosed in April of this year. I hope this helps you.

Not what you're looking for?

You may also like...

MCTD and all that goes with it!

Hi, after being diagnosed for MCTD with Lupus Myositis, Raynaud's and I don't know how many more on...

Is MCTD covered by the Equaity Act?

I am one of many having a change to my lupus label. My most recent appointment with a new...
Petey profile image

Thinning hair because of mctd

Hello, about a year ago i was diagnosed with mctd and i have lost about half of the amount of hair...
stonehard profile image

MCTD and Fatigue and sleep

Hi I'm never sure which group to post these in because I have overlap autoimmune so if there is a...
Awwy profile image

Help! Tinnitus and MCTD Drugs

I was diagnosed with MCTD Feb 20 after starting with Raynauds, joint point and fatigue. I tried...

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.