MCTD - is it genetic?: I have recently been... - LUPUS UK

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MCTD - is it genetic?

Jennie_103 profile image
5 Replies

I have recently been diagnosed with Mixed Connective Tissue Disease and I forgot to ask at the appointment whether it is genetic? Will I pass this on to my kids?

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Jennie_103 profile image
Jennie_103
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5 Replies
janiceray profile image
janiceray

I don't think so,but check it out with GP

DPJ66 profile image
DPJ66

My daughter has just been diagnosed with Lupus at the age of 24 - I was diagnosed 8 years ago. Definitely worth asking about ...

Barnclown profile image
Barnclown

my consultant seems to think it's very likely most everything like this has at least some degree of genetics involved. talking to my sisters, in my family there is what i think is probably undiagnosed MCTD (i'm the only one who has had it bad enough to be diagnosed). certainly there is hypermobility around in my family, and that condition seems to have some sort of link with MCTD.

Jennie_103 profile image
Jennie_103 in reply to Barnclown

I am definitely hypermobile! I had no idea it was linked. I'm just starting to learn about this condition and there's not an enormous amount out there.

I suppose it's inevitable there will be a genetic component. If there was a certainty that my future kids would have as many health problems as me, then I don't think I would choose to have them. I'm lucky as a gay woman that we can make the decision for my partner to be the one to have them instead. Not a solution for many couples!

I will definitely put it on my list of questions for my next appointment in July!

Thanks

Jennie

Ninasnest profile image
Ninasnest

I am not sure if it is genetic. I can tell you that all of my paternal aunts have an autoimmune disease. My MCTD has evolved into Lupus. I was redial nosed in April of this year. I hope this helps you.

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