I have had Lupus (MCTD) for the past 10 years -- diagnosed anyways. I recently went to my Dr and a few weeks ago I had a flare- but was feeling much better my prednisone intake went from 20 mg to 10mg and the Dr says that is a very high dose(I dont agree). So she has changed my medication - even though I told her I was leaving on holiday on April 1st and could we wait till I get back. So last week I started MMF 500mg a day- I used to take 100mg of Imuran. Well went back in to flare and feel terrible.And now I am on 15mg of prednisone instead of 10. I am so angry cause I wanted to go and see my family and enjoy my holiday now I dont know how I will feel. She even said that i should get blood work while I am in America. I said I have no health insurance for america, no Dr to tell me the results or treat me if I do have have the blood test. She just thinks I can go to the hospital and say oh by the way I need blood work. I will only be home for 2 weeks after a year of not being home.
Now when i called them last week she asked me to see the Nurse on Wednesday and said she would call me later to tell me a time. I have not received any phone call and that was from last wednesday.
I will be going for blood work on Wednesday at the hospital- so I just plan to see if Diane is in to see me. Plus if the blood work is ok- she wants me to increase the dose to 500mg X2 a day on the MMF- when will I get a prescription to take with me on Holiday.
This is so very frustrating!