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Mastectomy after 7 years of MBC
Today I met with a surgeon and will have a double
mastectomy
in early January. My oncologist said she never had a patient that has been metastatic free for this long and just now the tumor is no longer stable. Has anyone else had a
mastectomy
after being diagnosed MBC? Thank you
Today I met with a surgeon and will have a double
mastectomy
in early January. My oncologist said she never had a patient that has been metastatic free for this long and just now the tumor is no longer stable. Has anyone else had a
mastectomy
after being diagnosed MBC? Thank you
Gmaoftriplets
in
SHARE Metastatic Breast Cancer
6 months ago
Sex and rls
I already take this daily for nerve damage to my back after
mastectomy
and reconstruction.Thank you
I already take this daily for nerve damage to my back after
mastectomy
and reconstruction.Thank you
Ceramicist
in
Restless Legs Syndrome
1 year ago
Must manage your own healthcare
Had double
mastectomy
and found macrometatastisis in my sentinel lymph node. Had 4 rounds of AC and 12 rounds of Taxol. Had 25 rounds of radiation. Was told in May 2023 that it was time to start on Letrozole and at that same appointment I asked for a PET scan to confirm I was cancer free.
Had double
mastectomy
and found macrometatastisis in my sentinel lymph node. Had 4 rounds of AC and 12 rounds of Taxol. Had 25 rounds of radiation. Was told in May 2023 that it was time to start on Letrozole and at that same appointment I asked for a PET scan to confirm I was cancer free.
B17865
in
SHARE Metastatic Breast Cancer
10 months ago
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Afinitor side effects
I have been in treatment for breast cancer since 2006 and have done the drill - lumpectomy, lymph nodes removal, chemo, radiation, herceptin, Arimidex for six years… then in 2019 a
mastectomy
, more hormone blockers, and three years of various combinations with Ibrance, which has sadly stopped working
I have been in treatment for breast cancer since 2006 and have done the drill - lumpectomy, lymph nodes removal, chemo, radiation, herceptin, Arimidex for six years… then in 2019 a
mastectomy
, more hormone blockers, and three years of various combinations with Ibrance, which has sadly stopped working
Whitaker
in
SHARE Metastatic Breast Cancer
11 months ago
never adjusted
I had a
mastectomy
three years ago and I've never gotten over this deep seated shock as to how it looks. Don't bother writing if all you can think to say is I'm lucky the cancer is gone.
I had a
mastectomy
three years ago and I've never gotten over this deep seated shock as to how it looks. Don't bother writing if all you can think to say is I'm lucky the cancer is gone.
fdale
in
SHARE Breast Cancer Support
1 year ago
why do some MBC get mastectomies?
Hi All, Why do some MBC’ers get a
mastectomy
? Even some that are not Oglio’s? Do you think there is a benefit? I know they say there isn’t but I’m seeing those who had it done seem to have longevity. If you had a
mastectomy
how long have you had MBC?
Hi All, Why do some MBC’ers get a
mastectomy
? Even some that are not Oglio’s? Do you think there is a benefit? I know they say there isn’t but I’m seeing those who had it done seem to have longevity. If you had a
mastectomy
how long have you had MBC?
DDIL1
in
SHARE Metastatic Breast Cancer
1 year ago
travel insurance (again)
This is sort of academic as I can’t get insurance anyway at present due to pending operations that might never actually happen (
mastectomy
/mitral valve repair). But I’m always hopeful.
This is sort of academic as I can’t get insurance anyway at present due to pending operations that might never actually happen (
mastectomy
/mitral valve repair). But I’m always hopeful.
bikebabe
in
SHARE Metastatic Breast Cancer
4 months ago
PMR AND ANASTROZOLE
I had an operation for breast cancer (
Mastectomy
with reconstruction) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets.
I had an operation for breast cancer (
Mastectomy
with reconstruction) in mid December. Thankfully I don’t need any more treatment other than anti oestrogen tablets.
GwenTheHen16
in
PMRGCAuk
4 months ago
Breast cancer - mastectomy or not
I'm weighing up
mastectomy
versus yearly mammograms and self-examination. I'd be really grateful to hear from anyone who's been in a similar position x
I'm weighing up
mastectomy
versus yearly mammograms and self-examination. I'd be really grateful to hear from anyone who's been in a similar position x
Demelzatheseagull
in
My Ovacome
1 year ago
Coming off Pramipexole
A year ago I had a single
mastectomy
, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along with Lisinopril and Indapamide for high BP, Atorvastatin for high cholesterol and Cetirizine and Beconase spray for seasonal rhinitis.
A year ago I had a single
mastectomy
, am on Anastrazole oestrogen suppressant hormone treatment and a Calcium/D3 supplement for that, along with Lisinopril and Indapamide for high BP, Atorvastatin for high cholesterol and Cetirizine and Beconase spray for seasonal rhinitis.
GreyMaus
in
Restless Legs Syndrome
10 months ago
Ovarian cancer recurrence
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Guitarplayinghobbit
in
My Ovacome
5 months ago
Has anyone been taking Verzenio for more than 2 years?
I had a
mastectomy
, chemo and radiatin and my scans showed no further evidence of cancer. I have been on anastrazole and in May 2021 I was started on Verzenio. They said it is only approved to be used for 2 years. My question is why stop taking it after 2 years?
I had a
mastectomy
, chemo and radiatin and my scans showed no further evidence of cancer. I have been on anastrazole and in May 2021 I was started on Verzenio. They said it is only approved to be used for 2 years. My question is why stop taking it after 2 years?
alwayslearningmore
in
SHARE Metastatic Breast Cancer
2 months ago
Endometrioma and IVF
Just wondering anyone that has had endometriomas and IVF how big they were to continue with IVF? I have had 2 opinions from two hospitals so feel confused what to do! 1 has advised to have the cysts removed and then go straight into IVF whilst the other is reluctant to do surgery due to my AMH but
Just wondering anyone that has had endometriomas and IVF how big they were to continue with IVF? I have had 2 opinions from two hospitals so feel confused what to do! 1 has advised to have the cysts removed and then go straight into IVF whilst the other is reluctant to do surgery due to my AMH but
Amy2106
in
Fertility Network UK
2 days ago
No period after endo excision
Hi, I had a cystectomy in 2018 to remove a large cyst from right ovary. Surgeon advised no endometriosis as this was a concern due to family history. Fast forward to 2023, severe pain again. Send for scans, further large cysts were found again in my right ovary. When I had catch up with GP she advised
Hi, I had a cystectomy in 2018 to remove a large cyst from right ovary. Surgeon advised no endometriosis as this was a concern due to family history. Fast forward to 2023, severe pain again. Send for scans, further large cysts were found again in my right ovary. When I had catch up with GP she advised
Bekiibee
in
Endometriosis UK
2 days ago
husband Fibro and interstitial cystiyis
my husband age 63 today is struggling with the pain of both Fibro and IC even though on duloxetine, mirabegron , high dose Gabapentin , tonne of paracetamol …(hospital will no longer supply the Elmiron pentosan polysulphate). Guys urology in London offered bladder removal or bladder lesion laser - I
my husband age 63 today is struggling with the pain of both Fibro and IC even though on duloxetine, mirabegron , high dose Gabapentin , tonne of paracetamol …(hospital will no longer supply the Elmiron pentosan polysulphate). Guys urology in London offered bladder removal or bladder lesion laser - I
Fibrofibrofibro
in
Fibromyalgia Action UK
8 days ago
Private health insurance
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
has anyone been successful in getting a laparoscopy or cystectomy (cyst removal) in uk on private health insurance after already having had fertility treatment? I'm thinking of taking some out to check for silent endometriosis but worried they won't accept me as they will class fertility treatment as
Flora14
in
Fertility Network UK
2 months ago
update
this is an update on the pregnancy scare I’ve taken now 5 urine tests all neg, still no period I am now 7 days late. But I want to also thank everyone that took the time to comment. I’m hoping it’s just hormones or stress. I am stressed and even more thinking I’m pregnant. I have a blood tests scheduled
this is an update on the pregnancy scare I’ve taken now 5 urine tests all neg, still no period I am now 7 days late. But I want to also thank everyone that took the time to comment. I’m hoping it’s just hormones or stress. I am stressed and even more thinking I’m pregnant. I have a blood tests scheduled
Icantwaittobemeagain
in
Anxiety and Depression Support
9 days ago
urethral constriction
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Had chemo and then cystectomy 10 years ago. Last few years, kidney stones then UTIs, until lithotripsy for the stones. But have urethral constriction, so every 4 month I have stents put through my stoma. Has anyone heard of, or had the procedure done for the constriction using Optilume? Supposedly
Phillip46
in
Kidney Disease
3 months ago
PSA level vs vasectomy question
When I had my tubes cut, they were not sewn up or cauterized which I believe is standard practice (in states), I elected to just have a .375" chunk cut out of each of them then and everything stuffed back inside and sewn back scrotum. I did this so they would never be able to be reconnected or reversed
When I had my tubes cut, they were not sewn up or cauterized which I believe is standard practice (in states), I elected to just have a .375" chunk cut out of each of them then and everything stuffed back inside and sewn back scrotum. I did this so they would never be able to be reconnected or reversed
Nwdx
in
Advanced Prostate Cancer
2 months ago
Burning pain to side of scapular post several breast ops - anyone have this too?
mastectomy
scar line in March 2023.
mastectomy
scar line in March 2023.
DJK99
in
SHARE Breast Cancer Support
1 year ago
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