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Experiences with
Mantle cell lymphoma (MCL)
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Can Iron Supplement cause rapid heart beat and anxiety?
I'm probably deficient in b12 as I have many of the relevant symptoms (including neurological) so I started b12 injection therapy in the advice of my Doctor. I'm using cianocoblamin 1000 mcg injection each alternate day. I'm also mildly deficient with Iron so I take the Solgar "Gentle Iron" - 25mg byglicinate
I'm probably deficient in b12 as I have many of the relevant symptoms (including neurological) so I started b12 injection therapy in the advice of my Doctor. I'm using cianocoblamin 1000 mcg injection each alternate day. I'm also mildly deficient with Iron so I take the Solgar "Gentle Iron" - 25mg byglicinate
Shajarin
in
Pernicious Anaemia Society
5 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Headache and GCA
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
LilyBark
in
PMRGCAuk
5 years ago
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Follicular Lymphoma Patient: 8-Year Treatment Experience
In November 2011, at the age of 64, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 4 years, she progressed after R-CHOP (6 cycles), bendamustine/rituximab
In November 2011, at the age of 64, my wife was diagnosed with follicular lymphoma Stage 4, Grade 3A. She had 50% bone marrow involvement. She is one of the 20% of follicular lymphoma patients who progress rapidly after treatments. In 4 years, she progressed after R-CHOP (6 cycles), bendamustine/rituximab
wmay13241
in
Non Hodgkin's Lymphoma Friends
5 years ago
Lung Illnesses Associated with Use of Vaping Products. FDA Warns Public to stop using those containing Tetrahydrocannabinol (THC)
Those of us wanting to quit smoking and using e-cigarettes to achieve this, or anyone vaping cannabinoids including THC (the psychoactive cannabinoid) need to be aware of recent concerns regarding their safety. [i]Both the U.S. Food and Drug Administration and the U.S. Centers for Disease Control and
Those of us wanting to quit smoking and using e-cigarettes to achieve this, or anyone vaping cannabinoids including THC (the psychoactive cannabinoid) need to be aware of recent concerns regarding their safety. [i]Both the U.S. Food and Drug Administration and the U.S. Centers for Disease Control and
AussieNeil
Partner
in
CLL Support
5 years ago
DA-EPOCH-R treatments
I was diagnosed with diffuse large cell B lymphoma in Sept. immediately hospitalized for DA-EPOCH-R 24 hour treatments. A real shock to me as I envisioned a day in the infusion center every 3 weeks. Made it thru 2 sessions and headed back next week for another week tethered to my chemo pole 😊. Anyone
I was diagnosed with diffuse large cell B lymphoma in Sept. immediately hospitalized for DA-EPOCH-R 24 hour treatments. A real shock to me as I envisioned a day in the infusion center every 3 weeks. Made it thru 2 sessions and headed back next week for another week tethered to my chemo pole 😊. Anyone
Msmerryc
in
CLL Support
5 years ago
Molybdenum
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
Hi, I was recently diagnosed as extremely deficient in B12, extremely high MMA and homecysteine. (highest MMA he has on record) The bio-chemist I am working with (lifelong research with B12 and B vitamins in general) insists that I need to get Molybdenum on board before effectively supplementing with
EiCa
in
Pernicious Anaemia Society
5 years ago
Gp review after b12 stopped
Hello 👋 I need some advice please. My gp practice carried out a generic review of b12 patients back in July and they decided I could no longer have b12 injections I was started on them in 2009 as I had neuro symptoms and chronic fatigue and after repeated visits to my gp I was finally advised my b12
Hello 👋 I need some advice please. My gp practice carried out a generic review of b12 patients back in July and they decided I could no longer have b12 injections I was started on them in 2009 as I had neuro symptoms and chronic fatigue and after repeated visits to my gp I was finally advised my b12
Twinklesthecat
in
Pernicious Anaemia Society
5 years ago
Vecabrutinib clinical trial?
Does anyone have any experience on the vecabrutinib clinical trial from a company called sunesis? I believe it is being developed for those who are or have become resistant to ibrutinib for cll and other B cell cancers.
Does anyone have any experience on the vecabrutinib clinical trial from a company called sunesis? I believe it is being developed for those who are or have become resistant to ibrutinib for cll and other B cell cancers.
Asclepiusone
in
CLL Support
5 years ago
Putting things in perspective
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
shueswim
in
Advanced Prostate Cancer
5 years ago
Accelerated Dental Decay
Any info on accelerated dental decay following CLL, lymphoma and/or chemo (RCHOP, intrathecal methraxoate)? Is this likely to be an effect of the cancer; a direct effect of the chemo; a side effect or the result of a compromised immune system?
Any info on accelerated dental decay following CLL, lymphoma and/or chemo (RCHOP, intrathecal methraxoate)? Is this likely to be an effect of the cancer; a direct effect of the chemo; a side effect or the result of a compromised immune system?
MaitreD
in
CLL Support
5 years ago
Clinical Utility of Chromosomal Microarray in Richter's Transformation
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Jm954
Administrator
in
CLL Support
5 years ago
My search for the perfect anti lymphoma diet
I had been diagnosed with
Mantle
cell
lymphoma
in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great.
I had been diagnosed with
Mantle
cell
lymphoma
in July 2015 and had R Chop and a stem cell transplant. One year ago I had just started a gluten free and dairy free diet and I felt great.
Maltipoo
in
Non Hodgkin's Lymphoma Friends
5 years ago
Bone Marrow at 65% after 6 months Imbruvica and ^ months of Gazyva
My question is centered on expectations and bone marrow results. What is the expected bone marrow cellularity after 8 months of Imbruvica and 6 months of Gazyva infusions? My bone bone marrow cellularity before initial treatment were at 95% and after now are at 65%. I was hoping for more of a obliteration
My question is centered on expectations and bone marrow results. What is the expected bone marrow cellularity after 8 months of Imbruvica and 6 months of Gazyva infusions? My bone bone marrow cellularity before initial treatment were at 95% and after now are at 65%. I was hoping for more of a obliteration
alijoel
in
CLL Support
5 years ago
YABTKi or Yet Another BTK inhibitor - the A to Z list of Bruton's Tyrosine Kinase Inhibitors for CLL following Ibrutinib's success
(SLL), and the treatment of patients with relapsed/refractory
mantle
cell
lymphoma
(MCL).
(SLL), and the treatment of patients with relapsed/refractory
mantle
cell
lymphoma
(MCL).
AussieNeil
Partner
in
CLL Support
5 years ago
Night sweats ONION SCENT
My wife has noted that my night sweats come with a strong onion scent in the air while I sleep ..I detected it on my clothes if I work and get a lather going I have smelled it also this is a new one on me I shower 2 times a day and am embarrassed by the New aroma I hope
My wife has noted that my night sweats come with a strong onion scent in the air while I sleep ..I detected it on my clothes if I work and get a lather going I have smelled it also this is a new one on me I shower 2 times a day and am embarrassed by the New aroma I hope
lacroixx1
in
CLL Support
5 years ago
My CLL adventure
In Vietnam 1965...now diagnosed with CLL. My local VA Dr is a terrific help... can’t say enough good about Dr Yutz. Now dealing with the VA for disability compensation for my stage 4. Undergoing immunotherapy that is helping. Good luck all you good people! Keep punching!!
In Vietnam 1965...now diagnosed with CLL. My local VA Dr is a terrific help... can’t say enough good about Dr Yutz. Now dealing with the VA for disability compensation for my stage 4. Undergoing immunotherapy that is helping. Good luck all you good people! Keep punching!!
JimboW
in
CLL Support
5 years ago
Cancer Fatigue and Getting Through the Holidays
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
lankisterguy
Volunteer
in
CLL Support
5 years ago
Imbruvica follow-up
Hi there, I’m a member for almost 1 year already of this great community, so far just reading about experiences and trying to keep positive about my husband’s evolution, diagnosed in June 2017 with Small B
Mantle
Cell
Non Hodgkin
Lymphoma
.
Hi there, I’m a member for almost 1 year already of this great community, so far just reading about experiences and trying to keep positive about my husband’s evolution, diagnosed in June 2017 with Small B
Mantle
Cell
Non Hodgkin
Lymphoma
.
AdrianNS
in
Non Hodgkin's Lymphoma Friends
5 years ago
Experience with Clinical Trial
I am about 2 months into a trial starting with debulking with bitimustin and immunotherapy, followed eventually by Venetoclax for about a year. I had several internal lymph nodes that were quite enlarged. I had a CT scan a few days ago and the good news is the scan showed no more enlarged nodes. However
I am about 2 months into a trial starting with debulking with bitimustin and immunotherapy, followed eventually by Venetoclax for about a year. I had several internal lymph nodes that were quite enlarged. I had a CT scan a few days ago and the good news is the scan showed no more enlarged nodes. However
Elam
in
CLL Support
5 years ago
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