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Mantle cell lymphoma (MCL)
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Bone Marrow Transplant.
Hello fam! Im looking for info from anyone who has had a bone marrow transplant! Provided I have a viable doner I’m in line to get one. Not going to lie I’ve got all types of mixed emotions! The tough part is being told this procedure will take 3 months to complete. I will have to travel to Boston
Hello fam! Im looking for info from anyone who has had a bone marrow transplant! Provided I have a viable doner I’m in line to get one. Not going to lie I’ve got all types of mixed emotions! The tough part is being told this procedure will take 3 months to complete. I will have to travel to Boston
Seifert_09
in
AMN EASIER
5 years ago
Parents Advisory Board
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
fightald
Administrator
in
Parents of ALD Newborns
5 years ago
Mantle Cell Lymphoma
I have been cancer free for 12 years now. Taking Thalomide every day.
I have been cancer free for 12 years now. Taking Thalomide every day.
Mariguez
in
Non Hodgkin's Lymphoma Friends
5 years ago
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Update on previous post but cannot find it 🙄
Update MRI shows no new stroke so going with a flare up of gca. Back up to 20 mg pred daily and feeling loads better. My consultant is going to start me on tocilizumab soon just waiting for appointment. Weird symptoms for a flare and she's still suspicious of tia but hey as she keeps telling me I'm
Update MRI shows no new stroke so going with a flare up of gca. Back up to 20 mg pred daily and feeling loads better. My consultant is going to start me on tocilizumab soon just waiting for appointment. Weird symptoms for a flare and she's still suspicious of tia but hey as she keeps telling me I'm
Pamela60
in
PMRGCAuk
5 years ago
Parietal cell antibody test
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
I know I'm repeating myself but want to be clear. Is it correct that if you test negative for this it's reliable? I've not had the intrinsic factor test. I'm asking as I'm getting the vibe as one year in now the surgery want to decrease my B12 injections. B12 was put on my latest blood form after
Nackapan
in
Pernicious Anaemia Society
5 years ago
What are the-major-findings-of-the-united-kingdom-prospective-Diabetes-study-ukpds??
UKPDS has been conducting studies on Diabetes since 1977 and during last 42 years they have generated 93 original research papers based upon their trial studies on large number of Diabetes. It is a Bible on diabetes .. giving below few links.....the first link gives the brief summary ... and the second
UKPDS has been conducting studies on Diabetes since 1977 and during last 42 years they have generated 93 original research papers based upon their trial studies on large number of Diabetes. It is a Bible on diabetes .. giving below few links.....the first link gives the brief summary ... and the second
namaha
Administrator
in
Diabetes India
5 years ago
CLL, Spleen Recovery+recommendations
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
Hi All, I was hoping to draw on your knowledge, wisdom and experience in dealing with CLL. I was diagnosed in 7/2008 and for almost 11 years was doing quite well but 3 months ago my spleen started to get enlarged, wbc were 76K and swollen lymph nodes to say the least. I had my first dose of Gazyva or
SCE2AUX
in
CLL Support
5 years ago
Today’s WSJ essay on the abject failure of medical science’s progress in dealing with this family of diseases and what must change.
An apparent extension of a highly recommended book that I had read some 8 plus years ago,,,”The Emperor of All Maladies”,,,Now a Ken Burns PBS documentary. The thrust of both books being that intensive treatment of the vast majority of cancers has for many years(4,000 in the case of “The Emperor of
An apparent extension of a highly recommended book that I had read some 8 plus years ago,,,”The Emperor of All Maladies”,,,Now a Ken Burns PBS documentary. The thrust of both books being that intensive treatment of the vast majority of cancers has for many years(4,000 in the case of “The Emperor of
Sxrxrnr1
in
Advanced Prostate Cancer
5 years ago
Clinical trial to test potential new therapy for giant cell arteritis
Well... at least they're looking for options! https://medicalxpress.com/news/2019-09-clinical-trial-potential-therapy-giant.html
Well... at least they're looking for options! https://medicalxpress.com/news/2019-09-clinical-trial-potential-therapy-giant.html
Hidden
in
PMRGCAuk
5 years ago
Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto
Register today for Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients, caregivers, and healthcare professionals. https://mailchi.mp/lymphoma/5xojdggiv0-2556149?e=7b399e8498 Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2
Register today for Lymphoma Canada’s 3rd Annual National Conference for lymphoma patients, caregivers, and healthcare professionals. https://mailchi.mp/lymphoma/5xojdggiv0-2556149?e=7b399e8498 Saturday, September 21, 2019 8:00am - 5:00pm Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2
lankisterguy
Volunteer
in
CLL Support
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
CT scan results after 3 cycles BR
Hello all, My dad (12 trisomy and unmutated) has finished his 3rd BR cycle. The CT scan shows a reduction of the lymph nodes by 50%-60% (the biggest lymph node was 15 cm in his belly). The hematologist was happy with the results. What do you guys think about the results? We have 3 rounds left, is complete
Hello all, My dad (12 trisomy and unmutated) has finished his 3rd BR cycle. The CT scan shows a reduction of the lymph nodes by 50%-60% (the biggest lymph node was 15 cm in his belly). The hematologist was happy with the results. What do you guys think about the results? We have 3 rounds left, is complete
TOFK
in
CLL Support
5 years ago
Done with Lutetium
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
I completed five of the six infusions in the VISION clinical trial before I was excluded due to low hemoglobin. The initial and main cause of the low hemoglobin was my bone marrow transplant in late 2017, but the level continued dropping. Lutetium reduced my PSA by about 300 per infusion, in a linear
Beauxman
in
Advanced Prostate Cancer
5 years ago
Marginal zone lymphoma Facebook support group
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
https://www.facebook.com/groups/1734968436810226/?ref=share Hi, Hope you don’t mind my sharing a link to the marginal zone lymphoma Facebook site for the members on this site who have been diagnosed with a combo of CLL and mzl or mzl. This is a rarer lymphoma with much less research done so it is
Judyanne
in
CLL Support
5 years ago
Mother has Giant Cell Arteritis - what does the future hold?
Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxx
Having just been through a week of hospital after my mother has lost most her sight in one eye and is being treated for Giant Cell Arteritis - can anyone who has been through this tell me how the years play out after diagnosis? At the moment she’s terrified. Thank you zxxx
TheSmartestGiant70
in
PMRGCAuk
5 years ago
ATTENTION LYMPHOMA PATIENTS, CAREGIVERS, AND HEALTHCARE PROFESSIONALS - NATIONAL LYMPHOMA PATIENT CONFERENCE
Lymphoma Canada is pleased to be hosting its 3rd Annual National Conference for patients, caregivers, family members, friends and healthcare professionals. Saturday, September 21, 2019 Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2 Patient and Caregiver Rate: $35 Breakfast, lunch and
Lymphoma Canada is pleased to be hosting its 3rd Annual National Conference for patients, caregivers, family members, friends and healthcare professionals. Saturday, September 21, 2019 Hilton Toronto 145 Richmond St. West, Toronto, ON M5H 2L2 Patient and Caregiver Rate: $35 Breakfast, lunch and
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
5 years ago
Please watch Video (Giant Cell and PMR and Tocilizumab)
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
Forgive me if this has already been discussed on here but this is a video put out about a month ago called "Giant Cell Arteritis: Breaking Down Barriers to Optimal Management". In this webcast, Dr. John Stone discusses best practices for integrating the latest clinical evidence surrounding new and emerging
lemarie1
in
PMRGCAuk
5 years ago
18 month Follow up results with Ibrutinib/Venetoclax clinical trial
I have been for 18 months in the clinical trial for fixed duration of the phase 2 study of the combination of Ibrutinib plus Venetoclax for treatment naive patients. I became MRD negative after 8 months on the drugs and just got the results of my 3rd bone marrow biopsy: I am still MRD negative!!!
I have been for 18 months in the clinical trial for fixed duration of the phase 2 study of the combination of Ibrutinib plus Venetoclax for treatment naive patients. I became MRD negative after 8 months on the drugs and just got the results of my 3rd bone marrow biopsy: I am still MRD negative!!!
lamboman
in
CLL Support
5 years ago
CT Scan too close to BR Chemo date
So my Oncologist's office dropped the ball where I was to have a CT scan before my 4th BR chemo treatment. 3 weeks after the last treatment and just before the next BR treatment. So as it is the CT is scheduled for 3 days after the BR treatments. My question is whether the contrast material will be affected
So my Oncologist's office dropped the ball where I was to have a CT scan before my 4th BR chemo treatment. 3 weeks after the last treatment and just before the next BR treatment. So as it is the CT is scheduled for 3 days after the BR treatments. My question is whether the contrast material will be affected
DDay2012
in
Non Hodgkin's Lymphoma Friends
5 years ago
Relapsed after 40 months in remission
Several days ago a CT/PET detected lymphoma progression wife (72) who was in remission since her CAR-T infusion in March 2016. Monday she will get a lymph node biopsy to see whether her follicular lymphoma has transformed into something else. Any thoughts on the next treatment?
Several days ago a CT/PET detected lymphoma progression wife (72) who was in remission since her CAR-T infusion in March 2016. Monday she will get a lymph node biopsy to see whether her follicular lymphoma has transformed into something else. Any thoughts on the next treatment?
wmay13241
in
CLL Support
5 years ago
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