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Mantle cell lymphoma (MCL)
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FISH Results
FISH Results: I have stage 4 non Hodgkin lymphoma. Specifically, I have CLL/SLL. I got the FISH results back and they show 16% positive for deletion ATM. The report goes on to say “Deletion of ATM is associated with marked lymphadenopathy and rapid disease progression in chronic lymphocytic leukemia
FISH Results: I have stage 4 non Hodgkin lymphoma. Specifically, I have CLL/SLL. I got the FISH results back and they show 16% positive for deletion ATM. The report goes on to say “Deletion of ATM is associated with marked lymphadenopathy and rapid disease progression in chronic lymphocytic leukemia
DylanPxxx
in
Non Hodgkin's Lymphoma Friends
4 years ago
An Early Look at When CAR-T Therapy Fails Patients With CLL
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Jm954
Administrator
in
CLL Support
4 years ago
Mantle Cell Lymphoma Treatment
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
writepa
in
Non Hodgkin's Lymphoma Friends
5 years ago
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please is anyone treating MCL (mantle cell lymphoma) ?
MCL on Ibrutinib only
MCL on Ibrutinib only
1susiE
in
CLL Support
5 years ago
Mantle Cell Lymphoma
I met the doctor and he diagnosed my husband with
Mantle
Cell
Lymphoma
. Although still need Fish test to confirm but he seems certain. As MCL explains why it is so sudden and the spleen is big. What a difficult path a head.
I met the doctor and he diagnosed my husband with
Mantle
Cell
Lymphoma
. Although still need Fish test to confirm but he seems certain. As MCL explains why it is so sudden and the spleen is big. What a difficult path a head.
writepa
in
CLL Support
5 years ago
MRD Testing after treatment. Help!
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
Is this good? Have to wait until tomorrow to actually speak to someone. Peripheral blood, flow cytometric immunophenotyping: Normal immunophenotyping results. No monotypic B-cell population identified. Comment: Minimal residual disease (MRD) analysis is intended to detect small clonal populations of
AuntHelen
in
CLL Support
4 years ago
Mantle Cell Lymphoma - Window 2 clinical trial
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
Just wonder if anyone participates in Window 2 clinical trial of MD Anderson where patients receive Ibrutinib in the first 4 months, combine with Rituximab and add Venetoclax in month 5. Chemo will be followed if in the medium and high risk. Then another 2-3 years in maintenance with Ibrutiniv, Venetoclax
writepa
in
CLL Support
5 years ago
Options other than transplant?
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Gemini1967
in
Leukaemia Support
4 years ago
I have to withhold my tocilizumab
I was taken into hospital again with cellulitis on my leg put on intravenous antibiotics and am now at home on antibiotic tablets. This means that I have to withhold my tocilizumab. My concern is that if I have a flare what should I do. Increase my pred and by how much? I am now on 8mgms. Tried to reduce
I was taken into hospital again with cellulitis on my leg put on intravenous antibiotics and am now at home on antibiotic tablets. This means that I have to withhold my tocilizumab. My concern is that if I have a flare what should I do. Increase my pred and by how much? I am now on 8mgms. Tried to reduce
Teekay2
in
PMRGCAuk
4 years ago
Mantle cell lymphoma
is anyone coping with
Mantle
cell
lymphoma
? I'm trying to track down some Lactobacillus Johnsonii which has been said to be helpful
is anyone coping with
Mantle
cell
lymphoma
? I'm trying to track down some Lactobacillus Johnsonii which has been said to be helpful
1susiE
in
CLL Support
5 years ago
Remission
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
SwiftT
in
CLL Support
5 years ago
Small B cell lymphoma
Hi. My tests still not confirmed but suggestive of small B cell lymphoma. Does anyone know much about this and prognosis treatment ect.
Hi. My tests still not confirmed but suggestive of small B cell lymphoma. Does anyone know much about this and prognosis treatment ect.
Jenny2020
in
CLL Support
5 years ago
Do I self treat now?
Hello - long post ahead. I posted here last year, prior to seeing a neurologist as I was (and still am having) neuro symptoms: occasional tremor in hands, constant pins and needles in hands and feet, numbness (hands mostly). I have Hashimotos Thyroiditis and psoriasis. I was diagnosed as B12 deficient
Hello - long post ahead. I posted here last year, prior to seeing a neurologist as I was (and still am having) neuro symptoms: occasional tremor in hands, constant pins and needles in hands and feet, numbness (hands mostly). I have Hashimotos Thyroiditis and psoriasis. I was diagnosed as B12 deficient
Hidden
in
Pernicious Anaemia Society
4 years ago
Immunotherapy and Gene Modification of T Cells
I'm diagnosed as of April 2018, and like so many others in the Watch and Wait phase. I hate this approach, but I understand why it is taken. In essence the current treatments available are as dangerous as the disease, so the doctors wait until the enemy is deep in your territory. Sort of waiting until
I'm diagnosed as of April 2018, and like so many others in the Watch and Wait phase. I hate this approach, but I understand why it is taken. In essence the current treatments available are as dangerous as the disease, so the doctors wait until the enemy is deep in your territory. Sort of waiting until
wizzard166
in
CLL Support
5 years ago
Ppfe
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Kcn3
in
Lung Conditions Community Forum
4 years ago
NEW TREATMENT: RITUXIMAB AND BENDAMUSTINE
Hello, After Ibrutinib stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
Hello, After Ibrutinib stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
pollyg2016
in
Non Hodgkin's Lymphoma Friends
5 years ago
Sickle Cell Trait and menstrual cycle
For years I suffered from fainting and blackouts right before or during my periods. I recently met another woman who had a similar experience and she mentioned that it was because she has the sickle cell trait. I am wondering if this has happened to anyone else?
For years I suffered from fainting and blackouts right before or during my periods. I recently met another woman who had a similar experience and she mentioned that it was because she has the sickle cell trait. I am wondering if this has happened to anyone else?
MsLady0
in
Sickle Cell Society
5 years ago
Where can I buy Vitamin B complex for intramuscular injections
Hi, just wanting some advise please. I was ill whilst in South Africa last year and was given Vitamin B complex injections as part of my wellness plan. I was given the bottle with the remaining doses to bring back to the UK. I have been getting this injected regularly from a pharmacist thats qualified
Hi, just wanting some advise please. I was ill whilst in South Africa last year and was given Vitamin B complex injections as part of my wellness plan. I was given the bottle with the remaining doses to bring back to the UK. I have been getting this injected regularly from a pharmacist thats qualified
Volta
in
Pernicious Anaemia Society
5 years ago
Urea and Electrolytes
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
prunus
in
PMRGCAuk
4 years ago
How important is it to have full time care taker when recovering from bone marrow transplant
I have to have bone marrow transplant. Problem is i live in New England. My family is out west(Seattle) , i only have my ex wife and 16 y.o son near me so i don't have anyone to help take care of me. Suggestions,
I have to have bone marrow transplant. Problem is i live in New England. My family is out west(Seattle) , i only have my ex wife and 16 y.o son near me so i don't have anyone to help take care of me. Suggestions,
hossbball
in
CLL Support
4 years ago
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