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Mantle cell lymphoma (MCL)
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A fascinating podcast on the history and current state of stem cell regeneration.
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Did you know humans make around 2 1/2 million red blood cells a second? Did you know the only the stem cell transplant that can currently be done is a bone marrow one? Did you know, at a guess, there have been something like 2 million bone marrow transplants to date. I came across this episode in the
Magentas
in
MPN Voice
3 years ago
Help make a drug to treat GvHD available to patients
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
You can help make a drug to treat GvHD available to patients in Canada, regardless of where you live. CLL Canada, along with an alliance of 8 other blood cancer organizations, is preparing patient input submissions for the Canadian Agency for Drugs and Technologies (CADTH) and Institut national d'excellence
CLL_Canada_Group
in
CLL Support
3 years ago
Covid Vaccine
Hi all hope you are all keeping safe a question i need some light on has anyone had the Covid vaccine with having a low platelet count (Thrombocytopenia )mine being 50 i have been hearing a lot who have had the vaccine and its made Platelet count drop i really dont want mine to drop any lower and
Hi all hope you are all keeping safe a question i need some light on has anyone had the Covid vaccine with having a low platelet count (Thrombocytopenia )mine being 50 i have been hearing a lot who have had the vaccine and its made Platelet count drop i really dont want mine to drop any lower and
cavi
in
PBC Foundation
3 years ago
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Update to ? Tocilizumab
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to normal so have started to taper my prednisone down again. However I have been having sharp pains in my head, Rt temporal area, but also above and
Hiland
in
PMRGCAuk
3 years ago
Ginger while on Warfarin?
I read a recent article about the positive effect of ginger on APS and Lupus in mice. Has anyone taken ginger supplements or ginger tea while on Warfarin? I know that ginger can interact with Warfarin but I am wondering if anyone has tried both at the same time. Thank you!
I read a recent article about the positive effect of ginger on APS and Lupus in mice. Has anyone taken ginger supplements or ginger tea while on Warfarin? I know that ginger can interact with Warfarin but I am wondering if anyone has tried both at the same time. Thank you!
Or81
in
Hughes Syndrome APS Forum
3 years ago
Hemoglobin
Dx in 2013 and have been treated with Ibrutinib then Venetoclax. Overall I have done well but over the last year my Hg has begun a slow trend of decrease, now in 11s. I realize that is not at all dangerous but I do get winded with any vigorous activity or when I travel to the mountains. I take the B
Dx in 2013 and have been treated with Ibrutinib then Venetoclax. Overall I have done well but over the last year my Hg has begun a slow trend of decrease, now in 11s. I realize that is not at all dangerous but I do get winded with any vigorous activity or when I travel to the mountains. I take the B
Fant1924
in
CLL Support
3 years ago
Organic apple cider vinegar "unpasteurized and unfiltered" ?
I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider vinegar" which "unpasteurized and unfiltered" ? I have CLL under near normal CBC control with IMBRUVICA. Also, what if any benefit would any small
I am starting to use a very small quantity (spoons full ) of organic apple cider vinegar to spice-up vegetable puree. Can I use the "organic apple cider vinegar" which "unpasteurized and unfiltered" ? I have CLL under near normal CBC control with IMBRUVICA. Also, what if any benefit would any small
janvog
in
CLL Support
3 years ago
11q and 17p
I have read on the Fact Sheet about Test Before Treat that if a Fish Test shows a deletion of the 17 chromosome or del(17P) that BR treatment will not be effective and should be avoided. I am 11q deleted and had one treatment of BR some 23 months ago (March 2019) with a severe reaction. I have not had
I have read on the Fact Sheet about Test Before Treat that if a Fish Test shows a deletion of the 17 chromosome or del(17P) that BR treatment will not be effective and should be avoided. I am 11q deleted and had one treatment of BR some 23 months ago (March 2019) with a severe reaction. I have not had
Joffre1
in
CLL Support
3 years ago
Clinical trial with Acalabrutinib and Obinutuzumab
I have the opportunity to be part of a clinical trial. The purpose of the study is to understand if early intervention (people on W&W in the high or very high risk group of needing treatment in the next 2 years but current protocol would not yet be treated) of CLL/SLL using targeted therapy will lead
I have the opportunity to be part of a clinical trial. The purpose of the study is to understand if early intervention (people on W&W in the high or very high risk group of needing treatment in the next 2 years but current protocol would not yet be treated) of CLL/SLL using targeted therapy will lead
Reflectionofsky
in
CLL Support
3 years ago
Journey update: LVV/GCA, tocilizumab and exercise
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
I have been diagnosed with LVV/GCA beginning of February (though MRI/MRA and PET/CT were not fully conclusive). With the help of Tocilizumab I now arrived at 12.5 mg prednisolone per day. I know that this is a very fast taper but it worked well until now and from now on the steps will become much smaller
DeepThought2
in
PMRGCAuk
3 years ago
Covid vaccine & PMR
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Having had my vaccine today, I asked the nurse if my antibodies would produce equally as well as someone who didn’t have autoimmune issues. She said probably not but the only way to find out that would be to have an antibody test after the 2nd vaccine. I have thyroid issues, hashimotos, and PMR, has
Daisy1624
in
PMRGCAuk
3 years ago
Supplement timing
Hello lovely people! I was just wondering if my timeline for taking my meds/ supplements is ok: 7:00am Levothyroxine 8:30 am fruit breakfast and hydrolysed beef protein powder taken with some water. 12:30pm salad with some protein 7:00pm veggies and protein with Vit C and some fats 8:00pm fruit
Hello lovely people! I was just wondering if my timeline for taking my meds/ supplements is ok: 7:00am Levothyroxine 8:30 am fruit breakfast and hydrolysed beef protein powder taken with some water. 12:30pm salad with some protein 7:00pm veggies and protein with Vit C and some fats 8:00pm fruit
Flowerpot108
in
Thyroid UK
3 years ago
post stem cell transplant covid question
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
Dodders
in
MPN Voice
3 years ago
Stem cell replacement
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Grizly
in
MPN Voice
3 years ago
CAR-T THERAPY FAIL
Hi folks, We've just had the sad news today that my husband's CAR-T therapy treatment has failed. He has Mantel Cell Lymphomia. To say we are very sad about this is an understatement. We both had high hopes for this treatment and saw it as the last opportunity to be clear of the cancer. He went
Hi folks, We've just had the sad news today that my husband's CAR-T therapy treatment has failed. He has Mantel Cell Lymphomia. To say we are very sad about this is an understatement. We both had high hopes for this treatment and saw it as the last opportunity to be clear of the cancer. He went
pollyg2016
in
Non Hodgkin's Lymphoma Friends
3 years ago
Nobody Wants Cancer. But a ‘Big C’ Label Has Surprising Upsides.
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
Manouche
in
MPN Voice
3 years ago
Update after 6th RCHOP for follicular NHL
Hi, I had my PET scan last week after my 6th cycle of RCHOP. It came back clear with not activity, so I'm officially in now in remission! Have to get a shot of Rituximab in belly every 3 months for 2 years. This is for maintenance to make sure it doesn't come back. A 15 minute jab. Chemo is a feared
Hi, I had my PET scan last week after my 6th cycle of RCHOP. It came back clear with not activity, so I'm officially in now in remission! Have to get a shot of Rituximab in belly every 3 months for 2 years. This is for maintenance to make sure it doesn't come back. A 15 minute jab. Chemo is a feared
Russ70
in
Non Hodgkin's Lymphoma Friends
3 years ago
Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
3 years ago
Questions about stents and support
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
SomersetJo
in
British Heart Foundation
3 years ago
Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Iupiter
in
CLL Support
3 years ago
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