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Mantle cell lymphoma (MCL)
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R-Chop failed with lymphoma, What's Next?
My wife (81 but in great physical shape) was diagnosed with stage 3 follicular lymphoma and began R-Chop therapy in August 2021, finished December. Pet scan late December showed a return of several nodes that an earlier Pet scan (October) showed "almost resolved". The Doctor is concerned that her condition
My wife (81 but in great physical shape) was diagnosed with stage 3 follicular lymphoma and began R-Chop therapy in August 2021, finished December. Pet scan late December showed a return of several nodes that an earlier Pet scan (October) showed "almost resolved". The Doctor is concerned that her condition
ronsolo306
in
CLL Support
3 years ago
Accessing new treatments against COVID19 and priority PCR home test kits
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Sumoldbloke
in
CLL Support
3 years ago
Liver function tests with Tocilizumab.
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
My Liver function tests are slightly out of range (0-35) mine were 42 last time and 46 recently. My Rheumatologist proposes that I come off Tocilizumab and start Methotrexate . It was my understanding that Metotrexate also caused raised liver enzymes. I don’t want to alienate my lovely Rheumatologist
SheffieldJane
in
PMRGCAuk
3 years ago
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immunohistochemistry need help understanding
Cell
Lymphoma
(Cyclin D1, PRAD-1) p53 Negative Mutated Tumor Suppressor Gene (PAb1801) MUM1 Rare Plasma Cells Positive Plasma Cells Post Germinal Center B-Cells, Activated T-Cells
Cell
Lymphoma
(Cyclin D1, PRAD-1) p53 Negative Mutated Tumor Suppressor Gene (PAb1801) MUM1 Rare Plasma Cells Positive Plasma Cells Post Germinal Center B-Cells, Activated T-Cells
kp58ny
in
CLL Support
3 years ago
Repress Cancer Cells
High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate Bradley S. Hanberry, Ryan Berger, and Jason A. Zastre Department of Pharmaceutical and Biomedical Sciences, College of Pharmacy, University of Georgia, R.C. Wilson Pharmacy Building, Athens, GA, 30602 USA
High Dose Vitamin B1 Reduces Proliferation in Cancer Cell Lines Analogous to Dichloroacetate Bradley S. Hanberry, Ryan Berger, and Jason A. Zastre Department of Pharmaceutical and Biomedical Sciences, College of Pharmacy, University of Georgia, R.C. Wilson Pharmacy Building, Athens, GA, 30602 USA
Hidden
in
Non Hodgkin's Lymphoma Friends
3 years ago
Iron Panel Results
Hello there, I'd be glad of some advice on my latest iron panel... results are below and comparisons with my last test 4 months ago. I have been taking 2 Solgar Gentle Iron 20mg tablets a day since then to raise my levels. Iron - 17.12 umol/L (Range: 5.8 - 34.5) - this has gone up from 11.0 TIBC
Hello there, I'd be glad of some advice on my latest iron panel... results are below and comparisons with my last test 4 months ago. I have been taking 2 Solgar Gentle Iron 20mg tablets a day since then to raise my levels. Iron - 17.12 umol/L (Range: 5.8 - 34.5) - this has gone up from 11.0 TIBC
Molly161018
in
Thyroid UK
3 years ago
Next-level Dose Given in Trial of Stem Cell Therapy for Bradykinesia
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
IMAC Holdings has completed dosing the second group of patients in its Phase 1 clinical trial testing umbilical cord-derived mesenchymal stem cell therapy for the treatment of bradykinesia due to Parkinson’s disease. About a year ago, a first group of five patients received a low dose of the therapy
Hidden
in
Cure Parkinson's
3 years ago
Dr. Koffman’s ASH 2021 Day 4 Highlights
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
CLL on colonoscopy polyp biopsy
The polyp biopsies were CD5 negative and were negative for cyclin -D1 (I think that rules out
Mantle
cell
lymphoma
), "CD 23 has patchy positivity, CD3 highlights background T cells". I am feeling very discouraged right now and angry at the poor communication from her office.
The polyp biopsies were CD5 negative and were negative for cyclin -D1 (I think that rules out
Mantle
cell
lymphoma
), "CD 23 has patchy positivity, CD3 highlights background T cells". I am feeling very discouraged right now and angry at the poor communication from her office.
peacethruthestorm
in
CLL Support
3 years ago
Can I quote you?
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
Hey experts … PMRpro, DorsetLady et al, My local Member of Parliament has just visited me to get information to put to our Federal Health Minister in an attempt to get an exemption so that I can have my allocation of tocilizumab extended, or indeed get the drug made available as it is for RA. Among
LemonZest11
in
PMRGCAuk
3 years ago
Researchers report third case of HIV remission after stem cell transplant using umbilical cord blood
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
Farooqji
in
Cure Parkinson's
3 years ago
Anyone else stopping RITUXIMAB
Hi everyone I hope ur all well. I am interested to know if anyone has been advised to stop RITUXIMAB infusions? I went for my infusion on Thursday (it was 5 weeks late as I had a third dose of vaccine in between time) My consultant told me patients on ritux who contracted covid had no efficacy. The vaccines
Hi everyone I hope ur all well. I am interested to know if anyone has been advised to stop RITUXIMAB infusions? I went for my infusion on Thursday (it was 5 weeks late as I had a third dose of vaccine in between time) My consultant told me patients on ritux who contracted covid had no efficacy. The vaccines
Maverick77
in
LUPUS UK
3 years ago
No Hodgkins Lymphoma infusion
Has any one gone through infusion cycles using Obinitusamab and bendamustine 6 cycles. What side effects and how did you deal with side effect symptoms.
Has any one gone through infusion cycles using Obinitusamab and bendamustine 6 cycles. What side effects and how did you deal with side effect symptoms.
Spascal
in
Non Hodgkin's Lymphoma Friends
3 years ago
Is this possibly GCA again?
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
I am looking for some advice please. I was diagnosed with PMR 4four years ago and this was followed by Giant Cell Arteritis. I was given 60 mgs Prenisolone and gradually tapered down. Unfortunately I had a flare a few months later and I was not given appropriate advice and the sight in my left eye
pamela4215
in
PMRGCAuk
3 years ago
Pred sick day rules.
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
I'm currently on 2mg of Pred and weekly Tocilizumab and doing Ok as far as PMR and GCA symptoms go. However I've caught the dratted cold that's doing the rounds and wonder whether this means I should increase the Pred in line with the Sick Day Rules leaflet. I'm only using Paracetamol for the cold so
PastelsinArt
in
PMRGCAuk
3 years ago
Cord blood donation Northern Ireland
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Does anyone know much about this? I’m very early on in pregnancy but heard about this years ago when beother in law had to have a stem cell transplant. I’m not sure if it’s available in Northern Ireland. Does it have to be donated or can it be froze for possible future use for child?
Babytwinkle
in
Pregnancy and Parenting Support
3 years ago
WARWICK's Latest Update on his POST ASCT journey thus far...
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
Post by MPN-MATE Admin » Sat Feb 12, 2022 10:39 pm Evening all... :D As some of you may recall, sometime ago in 2021, Warwick, (one of our committee members), underwent his Allogenic Stem Cell Transplant (ASCT) journey. While his condition is deemed a success, the journey itself remains ongoing w/
socrates_8
in
MPN Voice
3 years ago
10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
lankisterguy
Volunteer
in
CLL Support
3 years ago
Assistance with Potential misdiagnosis.
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
smileysammi
in
Pernicious Anaemia Society
3 years ago
JCVI advice recommending a fourth Covid jab for LVV-GCA patients on Tocilizumab?
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
I have been on (self-injected) Ro Actemra (Tocilizumab) since July 2019 for LVV-GCA, and it enabled me to cease all other medications (mainly the dreadful Prednisolone) over the course of the first 9 months.( All of my blood results have been totally normal from 2 weeks after starting Tocilizumab and
Suzita76
in
PMRGCAuk
3 years ago
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