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Experiences with
Madopar CR
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I have horrid nightmares and often wake myself up screaming......3 times in the one night last week. On Madopar and Sifrol ER.
Usual other symptoms........an imaginary wind at my back pushes me faster than I would like........light headed........jerking arm movements, one side only and only when its at rest and I am trying to relax.
Usual other symptoms........an imaginary wind at my back pushes me faster than I would like........light headed........jerking arm movements, one side only and only when its at rest and I am trying to relax.
Hidden
in
Cure Parkinson's
11 years ago
Is weight gain a Side effect of Madopar?
I was diagnosed with PD 8 years ago and was taking most recently Stalevo & Sifrol to control it thinking at the time Sifrol was doing me more harm than good. Last August I had DBS but still wound up on Sifrol And Sinemet. After a few months it was finally decided that I should wean myself off sifrol
I was diagnosed with PD 8 years ago and was taking most recently Stalevo & Sifrol to control it thinking at the time Sifrol was doing me more harm than good. Last August I had DBS but still wound up on Sifrol And Sinemet. After a few months it was finally decided that I should wean myself off sifrol
mag2908
in
Cure Parkinson's
11 years ago
Has anyone managed to lose weight by joining a Slimming club?
I have gained weight and cannot shift it. I am on Stalevo, Requip and Sinemet CR at night. I have recently developed sciatica. I need to lose weight. I have always been slim, now I am not. I am seriously considering joining Slimming World and was wondering if anyone has managed to lose any weight this
I have gained weight and cannot shift it. I am on Stalevo, Requip and Sinemet CR at night. I have recently developed sciatica. I need to lose weight. I have always been slim, now I am not. I am seriously considering joining Slimming World and was wondering if anyone has managed to lose any weight this
Court
in
Cure Parkinson's
11 years ago
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Madopar dosage
Is there any limit of dosage? What is the maximum?
Is there any limit of dosage? What is the maximum?
suetdumpling
in
Cure Parkinson's
11 years ago
Modopar
just met with my consultant and he has asked me to increase dosage through the night by taking slower release tablet to help me sleep, i take three times a day every five hours anyway. he says taking at correct time really important to halt progression of parkinsons anybody got any comments
just met with my consultant and he has asked me to increase dosage through the night by taking slower release tablet to help me sleep, i take three times a day every five hours anyway. he says taking at correct time really important to halt progression of parkinsons anybody got any comments
charlton
in
Cure Parkinson's
11 years ago
Selegiline a new drug for me!
I went to see my neurologist last week and he suggested I started to take selegiline. I'm already taking madopar and reprinerole. Is anyone else taking selegiline and what are your thoughts on this drug?.
I went to see my neurologist last week and he suggested I started to take selegiline. I'm already taking madopar and reprinerole. Is anyone else taking selegiline and what are your thoughts on this drug?.
camper
in
Cure Parkinson's
11 years ago
Anxiety attacks with Parkinson's making my life hell.
Since September when I went on stalevo and mirapexin my panic attacks have got very bad,.i wake op and feel I cann't move the panic sets in and takes me hours to get out of that freezing state it has got so bad it's effects most part of the day I also take 1 sinimrt ,a half sinimet , madopar 3 times
Since September when I went on stalevo and mirapexin my panic attacks have got very bad,.i wake op and feel I cann't move the panic sets in and takes me hours to get out of that freezing state it has got so bad it's effects most part of the day I also take 1 sinimrt ,a half sinimet , madopar 3 times
doddy
in
Cure Parkinson's
11 years ago
In 7 years of PD, never heard of Apokinin pump!
Hi, am living in France, have been treated for PD for nearly 7 years (am 48 y. old) with Requip (2X 8) and Modopar 125 (4 pills a day). This is not really effective so when I heard that the Apokinin pump could be efficient (TV news tonight) according to the person who gave the testimony, I began searching
Hi, am living in France, have been treated for PD for nearly 7 years (am 48 y. old) with Requip (2X 8) and Modopar 125 (4 pills a day). This is not really effective so when I heard that the Apokinin pump could be efficient (TV news tonight) according to the person who gave the testimony, I began searching
lydko
in
Cure Parkinson's
11 years ago
which is better... madopar or sinemet?
poloman
in
Cure Parkinson's
11 years ago
strange but true
hello all - it us very odd but i am now back on modoar and it seems to be having some effect- for thise who dont know me -i was on tons of drugs for PD and then told i had PSP IN NOVEMBER SO WAS OFF ALL MEDS UNTIL I WENT BACK TO SEE MY NEURO LAST WEEK - I TOLD HIM MY NECK WAS HURTING AND HE SAID
hello all - it us very odd but i am now back on modoar and it seems to be having some effect- for thise who dont know me -i was on tons of drugs for PD and then told i had PSP IN NOVEMBER SO WAS OFF ALL MEDS UNTIL I WENT BACK TO SEE MY NEURO LAST WEEK - I TOLD HIM MY NECK WAS HURTING AND HE SAID
shasha
in
Cure Parkinson's
11 years ago
Does anyone take Trihexyphenidyl?
I had an appointment with my Consultant yesterday as my usual cocktail of Stalevo, Requip XL and Sinemet CR are not controlling my tremor. After discussing various options I was asked to try one of the above tablets twice a day. As I have never heard of this drug I wondered whether anyone had had
I had an appointment with my Consultant yesterday as my usual cocktail of Stalevo, Requip XL and Sinemet CR are not controlling my tremor. After discussing various options I was asked to try one of the above tablets twice a day. As I have never heard of this drug I wondered whether anyone had had
Court
in
Cure Parkinson's
11 years ago
Change
i have just reduced requip and increased modopar to deal with OCD behaviour. Ive been warned about becoming depressed as a result anybody had similar experience?
i have just reduced requip and increased modopar to deal with OCD behaviour. Ive been warned about becoming depressed as a result anybody had similar experience?
charlton
in
Cure Parkinson's
11 years ago
Medications
I take Madopar rapid for my RLS. But every 6 months I have to take a 2 week break. Initially I was prescribed Paxam but have to take so many that I am like a zombie the following day. I've recently been prescribed Pregabalin for these breaks, but the effects are worse - I have difficulty waking & the
I take Madopar rapid for my RLS. But every 6 months I have to take a 2 week break. Initially I was prescribed Paxam but have to take so many that I am like a zombie the following day. I've recently been prescribed Pregabalin for these breaks, but the effects are worse - I have difficulty waking & the
Pabula
in
Restless Legs Syndrome
11 years ago
is anybody having troube leaning
is anybody having diff iculties with leaning over sideways. My neurologist said its the "Pizza Syndronme"and it is do do with the Madopar that I am taking so he has got me to come off them. I am down to two a da y now but I don't feel any better. I am still leaning over and in fact I feel worse
is anybody having diff iculties with leaning over sideways. My neurologist said its the "Pizza Syndronme"and it is do do with the Madopar that I am taking so he has got me to come off them. I am down to two a da y now but I don't feel any better. I am still leaning over and in fact I feel worse
pokoono
in
Cure Parkinson's
11 years ago
bit scared staggered bumped head freezing episode
i staggered backwards doing it a lot scarey bumped head very dizzy twice then froze luckily was at friends she tried to help had freezing episode scared in case happens wen on my own keep on staggering not good does anyone take madopar for freezing worry about side effects thanks
i staggered backwards doing it a lot scarey bumped head very dizzy twice then froze luckily was at friends she tried to help had freezing episode scared in case happens wen on my own keep on staggering not good does anyone take madopar for freezing worry about side effects thanks
kath33
in
Cure Parkinson's
11 years ago
HI IS THERE AWAY OF PAYING FOR SOME MADOPAR , NO QUESTIONS ASK,T
I get my drugs weekly very weekly . If I get constipation the pills don't work .so need more. try'd talking to GP . Also if one pill last 3 hours it do not mean the next one will. Feel its time to go on the black market yours EXPORT
I get my drugs weekly very weekly . If I get constipation the pills don't work .so need more. try'd talking to GP . Also if one pill last 3 hours it do not mean the next one will. Feel its time to go on the black market yours EXPORT
export
in
Cure Parkinson's
11 years ago
Anyone know how long the waiting list is for DBS at the National Hospital for Neurology and Neurosurgery, Queen Square, London?
I am adding in Amantadine to my daily regime of
Madopar
CR
and
Madopar
dispersible every 5 hours. Any feedback on this? Has anyone had their DBS done through Queen Square Neurology?
I am adding in Amantadine to my daily regime of
Madopar
CR
and
Madopar
dispersible every 5 hours. Any feedback on this? Has anyone had their DBS done through Queen Square Neurology?
Yogibear
in
Cure Parkinson's
12 years ago
Sinemet CR
I have recently been prescribed Sinemet CR in addition to my usual meds of Stalevo and Requip XL to help with sleep problems. However, in addition to them not helping with sleep my tremor seems to be quite a bit worse. I go back to the hospital next week and wondered if my tremor problems would be due
I have recently been prescribed Sinemet CR in addition to my usual meds of Stalevo and Requip XL to help with sleep problems. However, in addition to them not helping with sleep my tremor seems to be quite a bit worse. I go back to the hospital next week and wondered if my tremor problems would be due
Court
in
Cure Parkinson's
12 years ago
2 x Madopar CR, 100mg taken 11pm tonight - ambulance called at 2am? Why did this happen?
My GP suggested that I try 2 x
Madopar
CR
for bedtime dose to see if that helped. I took them at about 11:30pm (I also had Baclofen in my system to calm painful leg dystonia). I fell asleep.
My GP suggested that I try 2 x
Madopar
CR
for bedtime dose to see if that helped. I took them at about 11:30pm (I also had Baclofen in my system to calm painful leg dystonia). I fell asleep.
Yogibear
in
Cure Parkinson's
12 years ago
Is efficiency of meds affected by weather?
I realise that this sounds a stupid question, but was wondering if anyone has found this to be the case? I have been away in my caravan over the last weekend. When I am there my meds usually last longer, but this time my tremor has been much worse. I don't know if this is because it was extremely cold
I realise that this sounds a stupid question, but was wondering if anyone has found this to be the case? I have been away in my caravan over the last weekend. When I am there my meds usually last longer, but this time my tremor has been much worse. I don't know if this is because it was extremely cold
Court
in
Cure Parkinson's
12 years ago
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