bit scared staggered bumped head freezing episode

[kath33]

i staggered backwards doing it a lot scarey bumped head very dizzy twice then froze luckily was at friends she tried to help had freezing episode scared in case happens wen on my own keep on staggering not good does anyone take madopar for freezing worry about side effects thanks

[jillannf6]

Hi when were u dxd?

I hace PSP and fall Fwds normally but also freeze

It is scary but i am used to falling and wear knee pads 4 protection

Lol Jill

[kath33 in reply to jillannf6]

diagnosed abot 3 years ago was a shock was told arthritis my gp noticed other symtoms referred me to nuero he said defininite parkinsons wen u were u diagnosed the nuero said im young to get it im 53 i used to nurse people with this nursing aux then cant do it now. bit dissapoinment wanted to do that job again im from blackpool i try and be positive i go out dance wen i can

[kath33 in reply to jillannf6]

thanks where did u get knee pads tried motability shop none in

[soup]

Life with Parkinson's is a circus act. We juggle with the side effects of L-Dopa therapies and the worries about falls and freezing. Who am I to say where you should draw the line? BUT not everbody get's dyskinsesias with L-Dopa therapy and I feel that while you have a life to lead why not live it to the full?

[kath33 in reply to soup]

thanks u are right we shud not let it beat us i go out and i dance wen i dont feel too bad i force myself i think it important to be positive and not let the disease win

[Hidden in reply to kath33]

Nice to see that positive attitude. Do you dance at the Tower Ballroom in Blackpool?

Many years since I tripped the Flight lantastic on the sprung floor to old Reggie Dixon at the Organ

Eebygum Happy days and foggy neets.

[camper]

I freeze all the time. I take Madopar and have just started on Roprinerole.I came off Madopar a while ago and freezing got worse. I think it's a job to treat freezing, something we have to put up with.I have no problems taking Madopar. Roprinerole made me feel sick to begin with but after a fortnight I was ok. Best of luck whatever you decide!

[kath33 in reply to camper]

thanks very helpful may try madopar im on mirapexin stavelo nadolol and anti sickness given tramadol for pain bad reaction hope u go on ok with ropinerole i cudnt keep takng it u may be ok im not that good with tabllets

[Pete-1 in reply to kath33]

Stalevo includes the active reagent that is in Madopar. So, effectively you have already tried Madopar.

[jillannf6]

hi good that you still go dancing - swimming and dancing are things of the pas tfor me now#(not sour grapes) so do whq tyou cn ahwen you can and try and make somehtign of each day

i was dxd de 2010 and 2 yearson am sitll here upright msot of the tiem

just been dxd with breast cancer age d66 and get the result sof thre op on dec 19th

so if myjh no is on it-not a lot i can do about it

lol Jill

and a smile as it is a nice dya here

[jillannf6]

should be a

-)

[Pete-1]

I take Madopar which is more or less the same thing as Sinemet, also refered to as Co-beneldopa. This stops me freezing and being at risk of falling.

Not everybody gets side effects. Reading posts on this website gives you the impression that they are more common than they are. Naturally people tend to talk about problems more than if those problems don't `emerge. With Levodopa it seems to be fairly normal to suffer a bit of nausea. That generally fades after a while. The bad side effects only seem to be a problem if you overdose or if you have been taking it for quite a while, that is in terms of years.

So, you may never get any side effects, I haven't, and I have seen some posts on this site saying that "I've been taking Levodopa for X number of years with no problems". Substitute X for 25 in one case.

The main problem is that after a number of years when your PD has progressed too far, the Levodopa looses its efficacy.

[PatV]

I take dance classes and Alexander Technique for pwp's. We practice techniques for catching yourself when losing balance and techniques for how to get moving when freezing. SO helpful. And fun. One teacher is a professional dancer with PD. You can find her on Youtube: Pamela Quinn. You got to moveit, moveit, moveit