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Lynch syndrome
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16 week midwife appointment
I went for my 16 week midwife appointment yesterday. All she did was BP and check my urine was kind of hoping she would check for babies heartbeat with the doppler but no. Is this normal? I have a high risk pregnancy for various reasons but main one being twins so just a bit worried. The rest of my appointments
I went for my 16 week midwife appointment yesterday. All she did was BP and check my urine was kind of hoping she would check for babies heartbeat with the doppler but no. Is this normal? I have a high risk pregnancy for various reasons but main one being twins so just a bit worried. The rest of my appointments
Tarasunny
in
Pregnancy and Parenting Support
11 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
10 months ago
autoimmunity
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
rebtar
in
Cure Parkinson's
11 months ago
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buprenorphine study
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
707twitcher
in
Restless Legs Syndrome
10 months ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
10 months ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
8 months ago
Co-codamol any good for RLS or PLMD?
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
pianoplayerPLMD
in
Restless Legs Syndrome
10 months ago
Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
10 months ago
Success Story (so far, anyway)
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
buzzin247
in
Restless Legs Syndrome
10 months ago
One Small Setback...
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
vikkitennis
in
Restless Legs Syndrome
10 months ago
I make trying to suppress EBV a leg of my supplement strategy.
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
I replied to a comment with this comment, then decided to share it as a post also:
As somebody who has been exposed to EBV (mono), I make trying to suppress EBV a leg of my supplement strategy. I need to write up everything I think helps with EBV, but here is a short list: -
Lactobacillus
Bolt_Upright
in
Cure Parkinson's
8 months ago
Oxycodone OR Bupenerole
I have RLS and have been taking the hell tablet Pramipexole for over 20 years. I am now down to 2.5 tablets a day 0.088mg at night. I also take 20mg Oxycodone, one in the morning and one at night. My biggest problem at present is that at certain times of the day, I am fatigued to the point where I cannot
I have RLS and have been taking the hell tablet Pramipexole for over 20 years. I am now down to 2.5 tablets a day 0.088mg at night. I also take 20mg Oxycodone, one in the morning and one at night. My biggest problem at present is that at certain times of the day, I am fatigued to the point where I cannot
JoeR
in
Restless Legs Syndrome
10 months ago
Ferritin level
Hi all. I am a 74 year old man and I have had RLS for about 30 years. Resently it has become quite severe. I take .5mg of ropinirole at 7am, 12 noon, 5pm along with 480mg magnesium and at 8pm I take 1mg ropinirole along with 200 mg of gabapentin. I am having issues controling RLS and am unable to get
Hi all. I am a 74 year old man and I have had RLS for about 30 years. Resently it has become quite severe. I take .5mg of ropinirole at 7am, 12 noon, 5pm along with 480mg magnesium and at 8pm I take 1mg ropinirole along with 200 mg of gabapentin. I am having issues controling RLS and am unable to get
Hotrodder
in
Restless Legs Syndrome
10 months ago
taking collagen
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement
Curry55
in
My Ovacome
8 months ago
Restless legs.
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
Trish8433
in
Restless Legs Syndrome
10 months ago
Devestated - empty looking sac at 7 week scan
Hello, I’ve had a whirlwind of a few weeks which included a totally unselected BFP following our last round of ovulation induction before moving to IVF in the new year. Of course I was anxious but really thought this could be my lucky break and naturally got carried away imagining future baby. Today
Hello, I’ve had a whirlwind of a few weeks which included a totally unselected BFP following our last round of ovulation induction before moving to IVF in the new year. Of course I was anxious but really thought this could be my lucky break and naturally got carried away imagining future baby. Today
CarlottaD27
in
Fertility Network UK
1 year ago
Gum Restore Plus
Since taking Suboxone I have been reading a lot of articles concerning the damaging effects on tooth and gum. To say the least, I am worried about the toothless future in my old age. Fortunately I stumbled upon a product, Gum Restore Plus by Tierra Essential, It seems to address the problems relating
Since taking Suboxone I have been reading a lot of articles concerning the damaging effects on tooth and gum. To say the least, I am worried about the toothless future in my old age. Fortunately I stumbled upon a product, Gum Restore Plus by Tierra Essential, It seems to address the problems relating
halperinchen
in
Restless Legs Syndrome
10 months ago
How to use the prone position more efficiently
In a post on HealthUnlocked https://healthunlocked.com/rlsuk/posts/150167349/could-this-be-why-some-of-us-have-less-rls-while-sleeping-in-the-prone-position?responses=150181979&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response , it's mentioned that the prone position is
In a post on HealthUnlocked https://healthunlocked.com/rlsuk/posts/150167349/could-this-be-why-some-of-us-have-less-rls-while-sleeping-in-the-prone-position?responses=150181979&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response , it's mentioned that the prone position is
VladimirF
in
Restless Legs Syndrome
10 months ago
A tooth with a life of it's own!
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
orangemax
in
PMRGCAuk
1 year ago
4 months post TT
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
Rfranzoni
in
Thyroid UK
10 months ago
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