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Colon cancer secondary to CLL
I had posted that I was diagnosed with stage 3 colon cancer and I’ve since had the mass successfully removed. Out of 16 lymph nodes analyzed 1 had cancer. So it’s off to chemo therapy in two weeks. For three months. Is there anyone in the group who’s experiencing this ? And does anyone have experience
I had posted that I was diagnosed with stage 3 colon cancer and I’ve since had the mass successfully removed. Out of 16 lymph nodes analyzed 1 had cancer. So it’s off to chemo therapy in two weeks. For three months. Is there anyone in the group who’s experiencing this ? And does anyone have experience
angelikab
in
CLL Support
11 months ago
Need help understanding results
My bf is newly diagnosed and doesn’t have next doctor’s appt for a few days. He just got the results for the CLL FISH panel and I’m trying to get a preliminary sense of what the implications may be. Thanks for any help! “RESULT: POSITIVE FISH RESULT for TRISOMY 12 and DELETION of 13q14.3; NEGATIVE FISH
My bf is newly diagnosed and doesn’t have next doctor’s appt for a few days. He just got the results for the CLL FISH panel and I’m trying to get a preliminary sense of what the implications may be. Thanks for any help! “RESULT: POSITIVE FISH RESULT for TRISOMY 12 and DELETION of 13q14.3; NEGATIVE FISH
karmacrepe
in
CLL Support
1 year ago
CLL is a lymphoid stem cell cancer so why are my myleloid stem cell products falling so much?
I am on Acal for 10 months after 8 years on W&W, 13q unmutated. Doing well with minimal side effects. ALC coming down from >200,000 to less than 30,000 after 9 months in April. Going to Dana Farber next week. My question is: if CLL is a lymphocyte cancer and lymphocytes come from lymphoid stem cells
I am on Acal for 10 months after 8 years on W&W, 13q unmutated. Doing well with minimal side effects. ALC coming down from >200,000 to less than 30,000 after 9 months in April. Going to Dana Farber next week. My question is: if CLL is a lymphocyte cancer and lymphocytes come from lymphoid stem cells
CaptRon1976
in
CLL Support
1 year ago
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Colon cancer as secondary cancer
Hi I just got diagnosed with colon cancer last week and I am lucky I will have the operation to remove it on Tuesday - a very good Kaiser surgeon got me in quickly. It's not clear if it has advanced - I hope not- so we will see. I had a CT scan for the CLL in March when they saw something in the colon
Hi I just got diagnosed with colon cancer last week and I am lucky I will have the operation to remove it on Tuesday - a very good Kaiser surgeon got me in quickly. It's not clear if it has advanced - I hope not- so we will see. I had a CT scan for the CLL in March when they saw something in the colon
angelikab
in
CLL Support
1 year ago
Latest bloodwork
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
My past 3 cbc's have shown a rise in specific areas that seem to indicate that I'm no longer in remission. I'm hoping I can attach results as I have questions about some elements. I have been on a low dose of (140mg) for the past 5 years and was previously treated with FCR in 2013. I will see my oncologist
rubberlegs68
in
CLL Support
1 year ago
Story from The Guardian about gas stoves and links to lymphomas and leukaemias.
https://www.theguardian.com/environment/2023/jun/20/gas-stoves-benzene-levels-study
https://www.theguardian.com/environment/2023/jun/20/gas-stoves-benzene-levels-study
MAP44
in
MPN Voice
11 months ago
Foundation One heme blood test results
Hi, I wonder if somebody knows about this topic. My platelets have been high for six years; the bone marrow biopsy was incomplete because the nurse could not obtain the solid part. Anyway, the liquid aspiration was analyzed, and the bone marrow looked normal; the next-generation sequencing panel from
Hi, I wonder if somebody knows about this topic. My platelets have been high for six years; the bone marrow biopsy was incomplete because the nurse could not obtain the solid part. Anyway, the liquid aspiration was analyzed, and the bone marrow looked normal; the next-generation sequencing panel from
Cusube1967
in
CLL Support
1 year ago
The current status and challenges of CAR-T therapy in CLL
A few members of this group are scheduled for CAR-T and others might find themselves in the same situation in the future so I thought this would be of interest. "[i]In recent years, novel immunotherapies, including CAR-T cell therapy, have greatly improved treatment options for patients with hematological
A few members of this group are scheduled for CAR-T and others might find themselves in the same situation in the future so I thought this would be of interest. "[i]In recent years, novel immunotherapies, including CAR-T cell therapy, have greatly improved treatment options for patients with hematological
Jm954
Administrator
in
CLL Support
1 year ago
An indicator in the blood could guide lupus treatment
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
A clinical trial (called “BEAT-Lupus”) has found that using a combination of two biologic treatments, rituximab and belimumab, may be more effective than using rituximab alone in patients who have not responded well to other treatment. They also found that people with a particular indicator in their
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Brother’s passing away
it is with great devastation and heartbreak that my 65 yo brother passed on Monday 13/3/23. He was released from his 10th hospital admit in recent weeks and was approaching the chemist area when he collapsed. The staff made a valiant attempt to revive him. The ambulance medics kept doing CPR he
it is with great devastation and heartbreak that my 65 yo brother passed on Monday 13/3/23. He was released from his 10th hospital admit in recent weeks and was approaching the chemist area when he collapsed. The staff made a valiant attempt to revive him. The ambulance medics kept doing CPR he
honeybug
in
Fibromyalgia Action UK
1 year ago
8 week check up
Had an 8 week check up at Herbert Herman Cancer Center today. Doc says I'm doing excellent. He ordered a PET scan a month after my final Gazyva infusion 3/20. Is this normal procedure for those on O&V 12 month course? I though I wouldn't have any more scary test until the end of treatment. On bright
Had an 8 week check up at Herbert Herman Cancer Center today. Doc says I'm doing excellent. He ordered a PET scan a month after my final Gazyva infusion 3/20. Is this normal procedure for those on O&V 12 month course? I though I wouldn't have any more scary test until the end of treatment. On bright
Gradyboy
in
CLL Support
1 year ago
Insurance company refusing to pay out saying my Lymphoma is related to my CLL
I was diagnosed with CLL 14 years ago and had been on W&W for 12 years before I needed medical intervention. I was successfully treated with Alcalbrutinib and my CLL has been under control ever since.As I am self employed, I took out an income protection policy about 5 years ago, knowing that my CLL
I was diagnosed with CLL 14 years ago and had been on W&W for 12 years before I needed medical intervention. I was successfully treated with Alcalbrutinib and my CLL has been under control ever since.As I am self employed, I took out an income protection policy about 5 years ago, knowing that my CLL
duncangarnham
in
CLL Support
1 year ago
Night shift work
I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell
Lymphomas
. Treatment will begin in the next several months.
I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell
Lymphomas
. Treatment will begin in the next several months.
Taza1
in
CLL Support
1 year ago
Blood Negative MRD
History: My husband learned he had CLL in March 2022 (he is muted TP53 and 17p depleted) - he was accepted in a Dana-Farber study for his particular CLL with treatments of A&O&V. (Acalabrutinib, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy
History: My husband learned he had CLL in March 2022 (he is muted TP53 and 17p depleted) - he was accepted in a Dana-Farber study for his particular CLL with treatments of A&O&V. (Acalabrutinib, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy
spi3
in
CLL Support
1 year ago
follow up !!!
just back home from mD Anderson Both bone marrow and PET scan showed no detected cancer Hopefully this will last a long time Thanks everyone 😎
just back home from mD Anderson Both bone marrow and PET scan showed no detected cancer Hopefully this will last a long time Thanks everyone 😎
Cactusroadster
in
CLL Support
1 year ago
LLS.ORG (USA) WHAT ARE YOUR TOP PRIORITIES FOR 2023?
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
lankisterguy
Volunteer
in
CLL Support
1 year ago
Cancer link to nuclear base
It seems that the US Space Force as found that "The disproportionate number of missileers presenting with cancer; specifically lymphoma" is concerning. "There are indications of a possible association between cancer and missile combat crew service at Malmstrom." 9 military officers, Missileers, who
It seems that the US Space Force as found that "The disproportionate number of missileers presenting with cancer; specifically lymphoma" is concerning. "There are indications of a possible association between cancer and missile combat crew service at Malmstrom." 9 military officers, Missileers, who
SERVrider
in
CLL Support
1 year ago
Acetaminophen and Immunotherapy
Has anyone else heard of this? Does is have any bearing on CLL patients on BTK inhibitors? https://www.facebook.com/25998443394/posts/pfbid0k2eaDZbPHsL5FWcJPiaDWK12U2Ur8J5ADucKQVnSAxttczAcaijW9RxArTaM8cTHl/?mibextid=r5uJeJ
Has anyone else heard of this? Does is have any bearing on CLL patients on BTK inhibitors? https://www.facebook.com/25998443394/posts/pfbid0k2eaDZbPHsL5FWcJPiaDWK12U2Ur8J5ADucKQVnSAxttczAcaijW9RxArTaM8cTHl/?mibextid=r5uJeJ
210savannah
in
CLL Support
1 year ago
Lymphoma & CLL Highlights Virtual Workshop Jan 19, 2023 03:00 PM in London
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
lankisterguy
Volunteer
in
CLL Support
1 year ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
lankisterguy
Volunteer
in
CLL Support
1 year ago
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