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Insurance company refusing to pay out saying my Lymphoma is related to my CLL
I was diagnosed with CLL 14 years ago and had been on W&W for 12 years before I needed medical intervention. I was successfully treated with Alcalbrutinib and my CLL has been under control ever since.As I am self employed, I took out an income protection policy about 5 years ago, knowing that my CLL
I was diagnosed with CLL 14 years ago and had been on W&W for 12 years before I needed medical intervention. I was successfully treated with Alcalbrutinib and my CLL has been under control ever since.As I am self employed, I took out an income protection policy about 5 years ago, knowing that my CLL
duncangarnham
in
CLL Support
1 year ago
Night shift work
I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell
Lymphomas
. Treatment will begin in the next several months.
I am on watch and wait, have stage two CLL with enlarged spleen and a large number of B-cell
Lymphomas
. Treatment will begin in the next several months.
Taza1
in
CLL Support
2 years ago
Blood Negative MRD
History: My husband learned he had CLL in March 2022 (he is muted TP53 and 17p depleted) - he was accepted in a Dana-Farber study for his particular CLL with treatments of A&O&V. (Acalabrutinib, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy
History: My husband learned he had CLL in March 2022 (he is muted TP53 and 17p depleted) - he was accepted in a Dana-Farber study for his particular CLL with treatments of A&O&V. (Acalabrutinib, obinutuzumab and venetoclax).He finished obinutuzumab. Currently: after 11 months, February 2023, of immunotherapy
spi3
in
CLL Support
2 years ago
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just back home from mD Anderson Both bone marrow and PET scan showed no detected cancer Hopefully this will last a long time Thanks everyone 😎
just back home from mD Anderson Both bone marrow and PET scan showed no detected cancer Hopefully this will last a long time Thanks everyone 😎
Cactusroadster
in
CLL Support
2 years ago
LLS.ORG (USA) WHAT ARE YOUR TOP PRIORITIES FOR 2023?
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
Dear Advocate, Whether it’s making sure every patient can afford health insurance that works for them or advancing better treatments, LLS is committed to working tirelessly to advance policies that serve the needs of blood cancer patients and their families. In 2023 we will continue to work closely
lankisterguy
Volunteer
in
CLL Support
2 years ago
Cancer link to nuclear base
It seems that the US Space Force as found that "The disproportionate number of missileers presenting with cancer; specifically lymphoma" is concerning. "There are indications of a possible association between cancer and missile combat crew service at Malmstrom." 9 military officers, Missileers, who
It seems that the US Space Force as found that "The disproportionate number of missileers presenting with cancer; specifically lymphoma" is concerning. "There are indications of a possible association between cancer and missile combat crew service at Malmstrom." 9 military officers, Missileers, who
SERVrider
in
CLL Support
2 years ago
Acetaminophen and Immunotherapy
Has anyone else heard of this? Does is have any bearing on CLL patients on BTK inhibitors? https://www.facebook.com/25998443394/posts/pfbid0k2eaDZbPHsL5FWcJPiaDWK12U2Ur8J5ADucKQVnSAxttczAcaijW9RxArTaM8cTHl/?mibextid=r5uJeJ
Has anyone else heard of this? Does is have any bearing on CLL patients on BTK inhibitors? https://www.facebook.com/25998443394/posts/pfbid0k2eaDZbPHsL5FWcJPiaDWK12U2Ur8J5ADucKQVnSAxttczAcaijW9RxArTaM8cTHl/?mibextid=r5uJeJ
210savannah
in
CLL Support
2 years ago
Lymphoma & CLL Highlights Virtual Workshop Jan 19, 2023 03:00 PM in London
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
lankisterguy
Volunteer
in
CLL Support
2 years ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
lankisterguy
Volunteer
in
CLL Support
2 years ago
Low MCHC
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
davidgrush
in
CLL Support
2 years ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
2 years ago
CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
2 years ago
Husband's last O Infusion rescheduled due to low Neutrophils and WBC
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
UPDATE: After a week off of all meds, Absolute Neutrofils have gone DOWN to .60, Absolute Eosinophils down to 0. He will start on GCSF Infusions tomorrow for 4 days. His Specialist is confident that his numbers will go up for FINAL infusion next week. At that point dosage of Venetoclax will be reduced
lisakc1
in
CLL Support
2 years ago
HOLIDAY INSURANCE.
Hello everyone, I was diagnosed with CLL in August 2018 and so far have remained on watch and wait. In September 2019, I had successful surgery for colon cancer, had a stoma for 6 months and then a reversal and have been "all clear" since then. Also, as a bonus, the chemo I had for the colon cancer
Hello everyone, I was diagnosed with CLL in August 2018 and so far have remained on watch and wait. In September 2019, I had successful surgery for colon cancer, had a stoma for 6 months and then a reversal and have been "all clear" since then. Also, as a bonus, the chemo I had for the colon cancer
donevning2213
in
CLL Support
2 years ago
genetic test results
Hello CLL fellows and Specialists, Hematologists I want to share my experience here. We have been fortunate to meet Dr. Christen Chen at the Princes Margaret Cancer Hospital in Toronto. She is very kind and friendly. She has ordered several tests one of them is a FISH test and it is reported as trisomy
Hello CLL fellows and Specialists, Hematologists I want to share my experience here. We have been fortunate to meet Dr. Christen Chen at the Princes Margaret Cancer Hospital in Toronto. She is very kind and friendly. She has ordered several tests one of them is a FISH test and it is reported as trisomy
Sagarcanada
in
CLL Support
2 years ago
Patient Power's MOST-READ ARTICLEs for 2022
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
lankisterguy
Volunteer
in
CLL Support
2 years ago
Latest Consultation/Bloods
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Divisidero
in
CLL Support
2 years ago
Mini Oven Recommendations
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
LhasaMomma
in
Fibromyalgia Action UK
2 years ago
Richters maybe
Well, the dreaded word Richters has come up. Next week going in for a lymph node biopsy and full body Pet/CT scan. Send positive thoughts my way please.
Well, the dreaded word Richters has come up. Next week going in for a lymph node biopsy and full body Pet/CT scan. Send positive thoughts my way please.
Alex830
in
CLL Support
2 years ago
Am Iwell?
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
Dawson21
in
CLL Support
2 years ago
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