Experiences with

Lymphomas

I was diagnosed with waldenstroms macroglobulinemia in June. Have had treatment and now waiting for a CT scan at the end of the month. It seems that this is a rare type of lymphoma.

Hi friends, my name is Nancy. I live in Pittsburgh PA. I'm new to this page. I was diagnosed with FNHL in may of 2012. After getting a partial remission in 2014 with retuxan, I relapsed extensively in 2015 requiring 5 cycles of bendamustine. I started retuxan maintenance treatment last month for 2 years

Except in cases where indications for aggressive lymphomas, most commonly for us DLBCL (Diffuse Large B Cell Lymphoma), are indicated. CT scans are not necessary for CLL diagnosis nor is a Bone Marrow Biopsy. CBC (Complete Blood Count) Blood work is all you need for CLL diagnosis period.

[i]'A Chinese group has become the first to inject a person with cells that contain genes edited using the revolutionary CRISPR–Cas9 technique.[/i] [i]On 28 October, a team led by oncologist Lu You at Sichuan University in Chengdu delivered the modified cells into a patient with aggressive lung cancer

I'm new here. Does anyone have or know of someone that has Cutaneous T Cell Lymphoma? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,

I was first diagnoised December 2012 was Agressive B Cell. I had 6 chop chemos every 3 weeks. Then 2 more, because it was still in bone marrow in my right leg. Clear PET and 8 days before 2 year diagnosis, I had Marginal Zone. 6 Rituxin drips every Friday for 6 weeks and the 1 every other month for 1

Hi everyone. I am 56 yr old female and am now 9 months cancer free!. I was diagnosed with Large B-cell NH lymphoma in June 2015. The biopsy showed Burkitt-like behavior so my dx was Burkitt's. The treatment plan was Hyper-CVAD alternating with High dose Methotrexate plus cytarabine with Rituxamab

Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem

From the CLL Global Research Foundation - October / November Issue [i]'Earlier this year CLL Global was approached by a donor interested in making a contribution that would be directed specifically towards research into cardiotoxicity associated with Bruton's tyrosine kinase (BTK) inhibitors such as

Hello thank you for allowing me to be part of your group. I was diagnosed in 2012 with lymphoma the cancer had attacked my L2 and I have a small hole in that bone. I had radiation and chemo. I also had 9 shots of ge a reclass drug. They did scans recently because I was having so much trouble with my

SMR > 1,000 for lymphomas, p < 0.001). The highest SMRs were typically within the first year after cancer diagnosis (SMRs 10 - 10,000, p < 0.001). Prostate cancer patients had increasing SMRs from Alzheimer's disease, as did testicular patients from suicide.

I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms

Hi my name is Theresa, I was diagnosed with low grade marginal Lymphoma almost 2 years ago,. At that time I had a mass on back for which I received radiation and rituxin infusion once every week for four weeks and a maintenance schedule of once every two months for a 2 year period. I was about 6 months

Hi Everyone - I am new to this online community. I am not a cancer patient, however I am a caregiver with substantial cancer experience. I provided primary care to both of my parents following their diagnosis and treatment for bladder cancer (both deceased). When my husband was diagnosed originally

I was diagnosed in July of 2015 with Low Grade Follicular Lymphoma. I had one node which was surgically removed. I am stage 1 Grade 1. I am in watch and wait. I wish there was some treatment that could cure this since I am in a low level but my oncologists says there is not. Although I am fine it

If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the pan­Canadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance

If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the pan­Canadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance

Hi all need some advice my 15 year old daughter is now attending a hospital school she has not been in full time education for 1half years now she's full time loves it there head has got her on 4 week trail everything was going great until last Tuesday since then couldn't attend going through a bad flare

Hi everyone, my name is Hildegard and I would like to introduce myself. I love to crochet and knit, and I had follicular Non Hodgkins Lymphoma stage 4 since 2004. I did 22 Radiation treatments after surgery to take out my salivary gland out. Then I went to almost 5 years and in 09 it came back it was

Hi, my name is Felicia. I was diagnosed at 24 yrs ago when I was 28 with Stage 1b DLBCL NHL. I had a football size encapsulated tumor in my chest cavity. I had 6 months of PROMACE CYTOBOM, (they don't even use that regiment anymore) & 4 wks of radiation. I was fine for 23 yrs. In Feb 2015, I found