Search
Search
About
Log in
Join
Experiences with
Lymphomas
Posts
Communities
773 public posts
Filter results
AIHA and ITP
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
I just started treatment with Rituxan and Bendeka for my CLL. After the first treatment I had to have 4 blood transfusions and started on high dose steroids for my low RBC and Platelet count. My Oncologist/hematologist said I have developed AIHA and ITP. I am not stable enough for splenectomy but that
J-girl
in
CLL Support
7 years ago
RITUXIMAB
Hi there eveyone I am starting on Rituximab next week with my first infusion and I am a little nervous to say the least! Just wanting to know if anyone who is on it as any info on side effects etc. As we all know some Consultants/Specialist Nurses seem to gloss over the bad bits and only tell you
Hi there eveyone I am starting on Rituximab next week with my first infusion and I am a little nervous to say the least! Just wanting to know if anyone who is on it as any info on side effects etc. As we all know some Consultants/Specialist Nurses seem to gloss over the bad bits and only tell you
Bakbre
in
LUPUS UK
7 years ago
Low lipid HDL and lymphoma /SLL
I recently had my lipids checked with my family doctor and she found my HDL on the abnormally low side. Also my absolute lymphocytes increased, they have been fairly stable. I found several 'older' articles ex https://www.ncbi.nlm.nih.gov/pubmed/17522388 that show a relationship between low HDL and
I recently had my lipids checked with my family doctor and she found my HDL on the abnormally low side. Also my absolute lymphocytes increased, they have been fairly stable. I found several 'older' articles ex https://www.ncbi.nlm.nih.gov/pubmed/17522388 that show a relationship between low HDL and
Elle_V
in
Lymphoma Canada
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Can Ibrutinib affect the vagus nerve and digestion?
So glad for you. Moms scan from September 27 shows no sign of recurrent or new mantle cell lymphoma. For past few weeks though has had nausea more loss of hearing and fatigue. Dr does not think imbruvica causing these, but I’m wondering if it can affect the vagus nerve and the ? Gastroparesis. The first
So glad for you. Moms scan from September 27 shows no sign of recurrent or new mantle cell lymphoma. For past few weeks though has had nausea more loss of hearing and fatigue. Dr does not think imbruvica causing these, but I’m wondering if it can affect the vagus nerve and the ? Gastroparesis. The first
9229Schaeffer
in
CLL Support
7 years ago
Mantle cell-imbruvica
Mom diagnosed with mantle cell lymphoma. Taking imbruvica 3capsules daily for a year. Within last couple months noticed bad nausea after eating. Have been on very limited diet. Dr thinks possible gastroparesis. Has anyone else experienced this?
Mom diagnosed with mantle cell lymphoma. Taking imbruvica 3capsules daily for a year. Within last couple months noticed bad nausea after eating. Have been on very limited diet. Dr thinks possible gastroparesis. Has anyone else experienced this?
9229Schaeffer
in
CLL Support
7 years ago
Biopsy report
My mom had MRM two months back.stage 2a, nodes negative (0/20) with grade3 and her2 positive.i have some doubts regarding report i.e., 1.tumor shows large areas of necrosis& focal lymphocytic response 2.focal intraductal carcinoma of solid & camedo type of high nuclear grade is seen,content of which
My mom had MRM two months back.stage 2a, nodes negative (0/20) with grade3 and her2 positive.i have some doubts regarding report i.e., 1.tumor shows large areas of necrosis& focal lymphocytic response 2.focal intraductal carcinoma of solid & camedo type of high nuclear grade is seen,content of which
Ch_balaji
in
Breast Cancer India
7 years ago
ROR1 Update
Does anyone know if there are any preliminary results from any of the clinical trials involving ROR1? From what I understand, ROR1 is found on 90% or so if CLL and very little on healthy cells. I heard there is an anti-ROR1 medication in at least one clinical trial, and another trial is being planned
Does anyone know if there are any preliminary results from any of the clinical trials involving ROR1? From what I understand, ROR1 is found on 90% or so if CLL and very little on healthy cells. I heard there is an anti-ROR1 medication in at least one clinical trial, and another trial is being planned
DaleFL
in
CLL Support
7 years ago
Desensitization with Rituxan
Has anyone done the desensitization protocol with Rituxan? I have had two anaphylactic reactions from prior Rituxan so I'm very apprehensive. I have splenic marginal zone lymphoma/ CLL. Let me know your experience please.
Has anyone done the desensitization protocol with Rituxan? I have had two anaphylactic reactions from prior Rituxan so I'm very apprehensive. I have splenic marginal zone lymphoma/ CLL. Let me know your experience please.
Jackieyar
in
Non Hodgkin's Lymphoma Friends
7 years ago
Lymphoma may have returned already?
I finished taking a full round of Gazyva last December after being diagnosed in June. I had no previous warning until night sweats and fevers hit last spring and I quickly went into full symptom mode. My results were almost instant with my first Gazyva treatment and all my blood numbers started to improve
I finished taking a full round of Gazyva last December after being diagnosed in June. I had no previous warning until night sweats and fevers hit last spring and I quickly went into full symptom mode. My results were almost instant with my first Gazyva treatment and all my blood numbers started to improve
skinkade
in
CLL Support
7 years ago
Posting on CAR-T, BLAM, WLADand improved PFS with Venetoclax =R versus Bendamustine +R
Hi, I have been little too busy and way too sick with a slowly resolving chest infection to stay well engaged with the list, but I have been posting almost twice a week on our website in honor of Blood Cancer Awareness Month (#BCAM) and World Lymphoma Awareness Day (#WLAD). I am trying to rest but
Hi, I have been little too busy and way too sick with a slowly resolving chest infection to stay well engaged with the list, but I have been posting almost twice a week on our website in honor of Blood Cancer Awareness Month (#BCAM) and World Lymphoma Awareness Day (#WLAD). I am trying to rest but
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Love your life!
My name is Alyssa, I'm 27 years old. Mother of three amazing kids! I was diagnosed with nonhodgkins lymphoma in January 2017. I underwent 4 months of chemotherapy and now I've been in remission for 4 months. I still have questions as to how I got cancer but I'm also grateful to be alive and that my body
My name is Alyssa, I'm 27 years old. Mother of three amazing kids! I was diagnosed with nonhodgkins lymphoma in January 2017. I underwent 4 months of chemotherapy and now I've been in remission for 4 months. I still have questions as to how I got cancer but I'm also grateful to be alive and that my body
Hidden
in
Non Hodgkin's Lymphoma Friends
7 years ago
I refused Chemo 2 months ago and I am trying the natural path
Call me crazy but after alot of research and many nights up late thinking about my situation I decided to tell the pros at MD Anderson that I would wait instead of starting a clinical trial that they recommended. I really don't know how all of this will turn out but I have faith that I have made the
Call me crazy but after alot of research and many nights up late thinking about my situation I decided to tell the pros at MD Anderson that I would wait instead of starting a clinical trial that they recommended. I really don't know how all of this will turn out but I have faith that I have made the
BCTexas
in
CLL Support
7 years ago
Verastem, with Phase 3 Results, to Request FDA Approve Oral Duvelisib to Treat Advanced CLL and SLL
Verastem’s duvelisib was seen to outperform Arzerra (ofatumumab) in a Phase 3 trial of patients with relapsed or refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL), the company announced. The oral therapy nearly halved the risk of disease progression or death, and held
Verastem’s duvelisib was seen to outperform Arzerra (ofatumumab) in a Phase 3 trial of patients with relapsed or refractory chronic lymphocytic leukemia (CLL) or small lymphocytic lymphoma (SLL), the company announced. The oral therapy nearly halved the risk of disease progression or death, and held
wmay13241
in
CLL Support
7 years ago
Rituximab vs abatacept-- any thoughts?
I end my rheumatologist suspect that Enbrel has stopped working for me. She suggested changing to rituximab or abatacept. Anyone here have experience with this change? Did you have good results?
I end my rheumatologist suspect that Enbrel has stopped working for me. She suggested changing to rituximab or abatacept. Anyone here have experience with this change? Did you have good results?
shareasmile
in
LUPUS UK
7 years ago
Balooning lymph nodes
Male 62y, 7.5 years since diagnosis, last wbc at 60k which was 20k higher than about 18 months previously. Lymph node swellings in neck and shoulders have increased at an alarming pace in the last couple of months after being progressively stable for the last 3-4 years, although generally I still feel
Male 62y, 7.5 years since diagnosis, last wbc at 60k which was 20k higher than about 18 months previously. Lymph node swellings in neck and shoulders have increased at an alarming pace in the last couple of months after being progressively stable for the last 3-4 years, although generally I still feel
Redlion
in
CLL Support
7 years ago
Lymphoma?
I've just seen Rheumy yesterday and it's the first time he's ever mentioned in 5yrs that I'm at increased risk of lymphoma. I'm useless when they just randomly say something and I'm like yeah ok. I didn't even ask why he thought this or what it was. He just said if I started getting night sweats and
I've just seen Rheumy yesterday and it's the first time he's ever mentioned in 5yrs that I'm at increased risk of lymphoma. I'm useless when they just randomly say something and I'm like yeah ok. I didn't even ask why he thought this or what it was. He just said if I started getting night sweats and
Ljay
in
LUPUS UK
7 years ago
Feedback please
How quickly do swollen lymph nodes respond to BR? What are your experiences in hair loss? Same re: side effects? I will be starting treatment soon. Thanks.
How quickly do swollen lymph nodes respond to BR? What are your experiences in hair loss? Same re: side effects? I will be starting treatment soon. Thanks.
4365jan
in
CLL Support
7 years ago
Is there a fix for Dermatitis Herpetiformis.
After living with DH for 3 years and being on Dapsone the same, I am wondering if anyone has a good practitioner who understands this condition and can help get to a solution. I'm very discouraged regarding my lack of progress, and the probability that taking Dapsone may be causing permanent damage
After living with DH for 3 years and being on Dapsone the same, I am wondering if anyone has a good practitioner who understands this condition and can help get to a solution. I'm very discouraged regarding my lack of progress, and the probability that taking Dapsone may be causing permanent damage
dwaage1
in
Gluten Free Guerrillas
7 years ago
Sam
FDA have approved ibrutinib for CLL, she, and lymphoplsmocytic
lymphomas
lymphoma . I have never been Tx before. I appreciate any feed back from those folks that been have problems with ibrutinib, for cll or other kinds of NHL lymphoma.
FDA have approved ibrutinib for CLL, she, and lymphoplsmocytic
lymphomas
lymphoma . I have never been Tx before. I appreciate any feed back from those folks that been have problems with ibrutinib, for cll or other kinds of NHL lymphoma.
Sam-1
in
CLL Support
7 years ago
MZL - DLB Cell LYMPHOMA
Hello All Just wondering if anyone else has had a similar experience to mine In December 2016 i was diagnosed with a MZL (abdominal Mass) stage 3, had treatment of 8 cycles of RCVP, mid term scan showed abdominal mass had shrunk by a third, at the end of the treatment the final scan was showing what
Hello All Just wondering if anyone else has had a similar experience to mine In December 2016 i was diagnosed with a MZL (abdominal Mass) stage 3, had treatment of 8 cycles of RCVP, mid term scan showed abdominal mass had shrunk by a third, at the end of the treatment the final scan was showing what
Blueb
in
Non Hodgkin's Lymphoma Friends
7 years ago
1
...
20
21
22
...
39
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
CLL Support
463 results
Non Hodgkin's Lymphoma Friends
117 results
Lymphoma Canada
34 results
View top 10 communities
Sort by
Most Relevant
Newest