I finished taking a full round of Gazyva last December after being diagnosed in June. I had no previous warning until night sweats and fevers hit last spring and I quickly went into full symptom mode. My results were almost instant with my first Gazyva treatment and all my blood numbers started to improve. I've been feeling great (walking several miles everyday & exercise classes) , all my blood work has been good including a flow cytometry 4 months ago. BUT, I have now developed what appears to be a tumor on my right jaw area, CT scan this weekend will confirm lymph nodes I assume. So my question is has anyone experienced something similar and what were your treatment options?
I'm obviously devastated by this turn of events as I thought I'd be in a long remission after the Gazyva appeared to have worked so well. I was originally diagnosed with CLL/SLL and mantle cell lymphoma by one doctor an another said it was splenic marginal zone lymphoma. Your thoughts would be much appreciate right now.