Search
Search
About
Log in
Join
Experiences with
Lymphocytic leukemia
Posts
Communities
3,092 public posts
Filter results
NCBI Journal - Cannabis Extract Treatment for Terminal Acute Lymphoblastic Leukemia with a Philadelphia Chromosome Mutation
Hi, I am new here and I stumbled across this site whilst researching and thought this information may be of interest here. I found this paper a while back whilst researching information about Waldenstrom's Macroglobulinemia (WM), I am currently taking Ibrutinib (Ibruvica) for this condition, which is
Hi, I am new here and I stumbled across this site whilst researching and thought this information may be of interest here. I found this paper a while back whilst researching information about Waldenstrom's Macroglobulinemia (WM), I am currently taking Ibrutinib (Ibruvica) for this condition, which is
Khenet
in
CLL Support
5 years ago
CLL, Bladder Cancer and BCG coming up for me
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of extreme hemolytic reaction. Chemo infusions again in 2015, worked for a couple of years. Started Ibrutinib in April 2018. Prostate resection in D3cemer 2018.
I've been on Ibrutinib for about 1 year, diagnosed in 2009, first round of chemo in 2012 at Duke Med on a clinical trial stopped because of extreme hemolytic reaction. Chemo infusions again in 2015, worked for a couple of years. Started Ibrutinib in April 2018. Prostate resection in D3cemer 2018.
Jvanfire
in
CLL Support
5 years ago
CLL is no longer dormant
I live in Hamilton and being followed by a Hematologist at Mc Master. I have had my condition for 8 years and have never had a risk assessment. I had another blood test done and I am seeing my specialist Tuesday. This last year has not been so good . Should I request a Fish test, CT scan etc or what
I live in Hamilton and being followed by a Hematologist at Mc Master. I have had my condition for 8 years and have never had a risk assessment. I had another blood test done and I am seeing my specialist Tuesday. This last year has not been so good . Should I request a Fish test, CT scan etc or what
Mamouchi
in
CLL Support
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hospice / Pallative Care / Supportive Care for Blood Cancer patients is not suggested soon enough
Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2018 Publish date: December 20, 2018 By Randy Dotinga Hematology News - SAN DIEGO – When it comes to aggressive care at the end of life, hematologists stand alone. ASH paper by Dr. David Hui of MD Anderson Cancer Center
Hematologists are outliers in care at the end of life EXPERT ANALYSIS FROM ASH 2018 Publish date: December 20, 2018 By Randy Dotinga Hematology News - SAN DIEGO – When it comes to aggressive care at the end of life, hematologists stand alone. ASH paper by Dr. David Hui of MD Anderson Cancer Center
lankisterguy
Volunteer
in
CLL Support
5 years ago
Starting Bendamustine tomorrow
Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as I start the chemo? I’ve read up on all of the possibilities but thought I should ask some real warriors! Thanks so much 🙏🏼
Hi there! I’m a bit anxious about what’s to come - just dx w Stage 3a Follicular NHL. I had Rituxan 2 days ago and it went pretty well. What can I expect as I start the chemo? I’ve read up on all of the possibilities but thought I should ask some real warriors! Thanks so much 🙏🏼
Finschick
in
CLL Support
5 years ago
ibrutinib, opposite effect.
Hi there everyone, Hope everyone is doing well. Happy New Year! I am writing this post because my dad just started ibrutinib on December 19 2018 and has went for two weekly blood tests, and each time his white blood count levels have gone down ( we were told it would skyrocket.) His WBC was at 406 in
Hi there everyone, Hope everyone is doing well. Happy New Year! I am writing this post because my dad just started ibrutinib on December 19 2018 and has went for two weekly blood tests, and each time his white blood count levels have gone down ( we were told it would skyrocket.) His WBC was at 406 in
aj33
in
CLL Support
5 years ago
Antioxidants: good, bad or indifferent...
How well, I remember my Merlot cure of 2012... Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with fludarabine... [i]Antioxidants and their putative beneficial effects on health have been in the medical news for as long as I can remember. Antioxidants act as ‘free
How well, I remember my Merlot cure of 2012... Resveratrol a stilbenoids, has been looked at in CLL, and seems to have some sinergy with fludarabine... [i]Antioxidants and their putative beneficial effects on health have been in the medical news for as long as I can remember. Antioxidants act as ‘free
Cllcanada
Top Poster CURE Hero
in
CLL Support
5 years ago
Want to help my dad
My dad has had essential thrombocythemia jak 2 positive for a year. He used to work and be fairly active, but this seems to be getting the better of him and he's always fatigued and it's getting him down. How can I help him start finding some enjoyment out of life again? Is there a fitness, diet or hobby
My dad has had essential thrombocythemia jak 2 positive for a year. He used to work and be fairly active, but this seems to be getting the better of him and he's always fatigued and it's getting him down. How can I help him start finding some enjoyment out of life again? Is there a fitness, diet or hobby
Pgm1987
in
MPN Voice
6 years ago
3 On-Line Immunology Courses are Being Offered by Rice University, Houston
If you have some college biology under your belt, Rice University in Houston has recently moved their on-line immunology courses from the EdX.org platform to the Coursera.org platform. These are not focused on any specific disease, though diseases, including cancer, are mentioned, as are the use of
If you have some college biology under your belt, Rice University in Houston has recently moved their on-line immunology courses from the EdX.org platform to the Coursera.org platform. These are not focused on any specific disease, though diseases, including cancer, are mentioned, as are the use of
SeymourB
in
CLL Support
5 years ago
Does anyone know whether you can take vitamin B12 whilst taking hydroxycarbamide?
I have read that vitamin B12 can help anaemia and some cancers, I've been taking hydroxycarbamide for nearly a year, is it safe to take vitamin B12?
I have read that vitamin B12 can help anaemia and some cancers, I've been taking hydroxycarbamide for nearly a year, is it safe to take vitamin B12?
lizl
in
MPN Voice
6 years ago
Dr Manos Nikolousis discusses new drugs now available to treat Acute Myeloid Leukaemia (AML)
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
AML treatment is moving from being a standard treatment to a personalised treatment. Dr Manos Nikolousis, Clinical Director at Haematology / Stem cell transplantation Heart of England NHS Trust talks about these advancements. https://youtu.be/LUwE1xCTXNk
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Myelofibrosis
My ‘crossover’ MPN has transformed to Myelofibrosis ( confirmed by BMB) and my new consultant has decided that the only medication is Ruxolitinib. Can anyone reassure me as to its efficacy, and if they have suffered side effects..... it all sounds quite toxic. My HB has also plunged to 60, and
My ‘crossover’ MPN has transformed to Myelofibrosis ( confirmed by BMB) and my new consultant has decided that the only medication is Ruxolitinib. Can anyone reassure me as to its efficacy, and if they have suffered side effects..... it all sounds quite toxic. My HB has also plunged to 60, and
skipperL
in
MPN Voice
6 years ago
VIT B12 deficiency
Hi - just wondered if anyone else had this and if it's linked to HCL? I had treatment 5 years ago with Cladribine. I'm seeing GP on Wednesday following a blood test which said I was low in VIt B12 so just curious and want to go informed! Thank you
Hi - just wondered if anyone else had this and if it's linked to HCL? I had treatment 5 years ago with Cladribine. I'm seeing GP on Wednesday following a blood test which said I was low in VIt B12 so just curious and want to go informed! Thank you
emmieb-UK
in
Leukaemia Support
6 years ago
Deborah Sims and Professor Peter Hillmen discuss data presented at ASH. Exciting new CLL treatments emerge as data matures
Fantastic job by our friend and CLL patient Deborah Sims, interviewing Professor Peter Hillmen at the American Society of Hamatology Conference (ASH) in San Diago. Prof Hillmen presented key UK trial data at the conference and shared insights with Deborah about new combination therapies, the MURANO
Fantastic job by our friend and CLL patient Deborah Sims, interviewing Professor Peter Hillmen at the American Society of Hamatology Conference (ASH) in San Diago. Prof Hillmen presented key UK trial data at the conference and shared insights with Deborah about new combination therapies, the MURANO
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Hope
Being diagnosed a year and a half ago at age 55 I have like everyone on this forum wake up trying to fin my way within this new world of cll. I have followed this forum which has provided me with so much information, appreciation an gratitude. For those that have shared their personal experiences thank
Being diagnosed a year and a half ago at age 55 I have like everyone on this forum wake up trying to fin my way within this new world of cll. I have followed this forum which has provided me with so much information, appreciation an gratitude. For those that have shared their personal experiences thank
Superdad3
in
CLL Support
6 years ago
Dr. I. Flinn...Recognizing the Side Effects of Newly Approved CLL Therapies
Today we are discussing the management of patients with chronic
lymphocytic
leukemia
(CLL), including incorporating the newest approved therapies for CLL: duvelisib and venetoclax. We are joined by Dr.
Today we are discussing the management of patients with chronic
lymphocytic
leukemia
(CLL), including incorporating the newest approved therapies for CLL: duvelisib and venetoclax. We are joined by Dr.
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Cll and being breathless.
About 4 years ago I was diagnosed with cll. I've noticed over a few years I'm getting breathless more often and it's lead to panic attacks. A doctor Darren Schmidt on YouTube said the condition could be due to a lack of vitamin B . I've just started taking vitamin B and the difference is incredible.
About 4 years ago I was diagnosed with cll. I've noticed over a few years I'm getting breathless more often and it's lead to panic attacks. A doctor Darren Schmidt on YouTube said the condition could be due to a lack of vitamin B . I've just started taking vitamin B and the difference is incredible.
Marktruckingkelly
in
CLL Support
6 years ago
Cancer update
Sorry not on for a while. I had to rush my husband into hospital yesterday. We were told that his cancer has spread all over his abdominal organs. The damage is too much . He is starting chemotherapy tomorrow but this is just as a palliative measure. Once again thank you everyone for your support
Sorry not on for a while. I had to rush my husband into hospital yesterday. We were told that his cancer has spread all over his abdominal organs. The damage is too much . He is starting chemotherapy tomorrow but this is just as a palliative measure. Once again thank you everyone for your support
Josieswolf
in
LUPUS UK
6 years ago
Polycythemia and Jakafi
I have had ET for 13 years and then PV for a year. I am a 74 YO white male. I have been taking 1000mg of hydra every day for 14 years. I got some bad mouth sores and my doctor put me on Jakafi. My CBC showed platelets at 340 10(3), White cells at 14.1 10(3), and RBC at 4.31 10(6) when I started 10mg/
I have had ET for 13 years and then PV for a year. I am a 74 YO white male. I have been taking 1000mg of hydra every day for 14 years. I got some bad mouth sores and my doctor put me on Jakafi. My CBC showed platelets at 340 10(3), White cells at 14.1 10(3), and RBC at 4.31 10(6) when I started 10mg/
ccsial
in
MPN Voice
6 years ago
Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018
Requests must be received within two weeks of the live program. ________________________________________ Managing Chronic
Lymphocytic
Leukemia
and Its Complications Part I of Life with Chronic
Lymphocytic
Leukemia
(CLL) Thursday, November 8, 2018 1:30 - 2:30 PM Eastern Time ____________________
Requests must be received within two weeks of the live program. ________________________________________ Managing Chronic
Lymphocytic
Leukemia
and Its Complications Part I of Life with Chronic
Lymphocytic
Leukemia
(CLL) Thursday, November 8, 2018 1:30 - 2:30 PM Eastern Time ____________________
lankisterguy
Volunteer
in
CLL Support
6 years ago
1
...
85
86
87
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1942 results
MPN Voice
789 results
Leukaemia Support
168 results
View top 10 communities
Sort by
Most Relevant
Newest