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Lymphocytic leukemia
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Social Distancing
This is an extract from the UK Government's Coronavirus website detailing who will have to take more stringent social distancing measures; 'People with cancers of the blood or bone marrow such as leukaemia who are at any stage of treatment' This seems to suggest that all of us MPN patients will fall
This is an extract from the UK Government's Coronavirus website detailing who will have to take more stringent social distancing measures; 'People with cancers of the blood or bone marrow such as leukaemia who are at any stage of treatment' This seems to suggest that all of us MPN patients will fall
Trueblue8
in
MPN Voice
4 years ago
ET
I am worried i may have leukaemia and not et as symptoms are similar, but it is only my platelets that are raised other bloods seem ok .
I am worried i may have leukaemia and not et as symptoms are similar, but it is only my platelets that are raised other bloods seem ok .
glyndale
in
MPN Voice
4 years ago
CLL/SLL and bone pain was in both arms
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
annetxfan
in
CLL Support
4 years ago
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Mutated and unmutated cll for dummies
When told I had chronic
lymphocytic
leukemia
(cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns.
When told I had chronic
lymphocytic
leukemia
(cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns.
cajunjeff
in
CLL Support
4 years ago
B cell receptor, infographic and ClonoSEQ approval for CLL
See: https://cllsociety.org/2020/01/iwcll-2019-dr-jan-burger-on-targeting-the-b-cell-receptor-bcr-in-chronic-
lymphocytic
-
leukemia
-cll/\ The CLL Society and I were featured in USA Today in this informative sponsored infographic on CLL.
See: https://cllsociety.org/2020/01/iwcll-2019-dr-jan-burger-on-targeting-the-b-cell-receptor-bcr-in-chronic-
lymphocytic
-
leukemia
-cll/\ The CLL Society and I were featured in USA Today in this informative sponsored infographic on CLL.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Just a quick question
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
rustydog
in
CLL Support
4 years ago
New Study: Predicted Survival in Polycythemia Vera Patients
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
JT_Marlin
in
MPN Voice
4 years ago
Impaired Immune System???
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Faith50
in
CLL Support
4 years ago
Richter's Syndrome - Possible relapse
Hello friends. I noticed a lump under the right jaw the size of an olive. Start noticing it two weeks ago. It is hard and painful to the touch. My neck hurts and I feel that I have fallen asleep. My family doctor sent me an antibiotic in case it was an infection. As you know, I have Ricthert and they
Hello friends. I noticed a lump under the right jaw the size of an olive. Start noticing it two weeks ago. It is hard and painful to the touch. My neck hurts and I feel that I have fallen asleep. My family doctor sent me an antibiotic in case it was an infection. As you know, I have Ricthert and they
Priss69
in
CLL Support
4 years ago
Blood test or Not?
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
haposwald
in
CLL Support
4 years ago
Which fish have the best Vitamin D to Mercury Ratio?
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
HowardR
in
CLL Support
4 years ago
CLL Updates From the 2019 ASH Annual Meeting
Dr Anthony Mato, from New York - his take on a few pertinent questions relating to CLL such as
What data in chronic
lymphocytic
leukemia
(CLL) that came out of the American Society of Hematology (ASH) 2019 meeting were considered practice changing?
Dr Anthony Mato, from New York - his take on a few pertinent questions relating to CLL such as
What data in chronic
lymphocytic
leukemia
(CLL) that came out of the American Society of Hematology (ASH) 2019 meeting were considered practice changing?
Jm954
Administrator
in
CLL Support
4 years ago
A HUGE THANK YOU 🤗 TO ALL !!! ADMINISTRATION, DOCTORS AND ALIKE. THANK YOU TO ALL OUR WONDERFUL CLL COMMUNITY🤗❤!!!
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
debdetermine58
in
CLL Support
4 years ago
walter49
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
Walter49
in
CLL Support
4 years ago
Cll UK conflicting advice
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
cartwheels
in
CLL Support
4 years ago
My good news and more research news from EHA and iwCLL
Danilov discusses his findings related to our co-morbidities: https://cllsociety.org/2019/11/eha-2019-dr-alexey-danilov-discusses-idelalisib-and-comorbidities-in-cll-chronic-
lymphocytic
-
leukemia
-patients/ The phase III Alliance A041202 collaborative multi-centered trial demonstrated once and for all
Danilov discusses his findings related to our co-morbidities: https://cllsociety.org/2019/11/eha-2019-dr-alexey-danilov-discusses-idelalisib-and-comorbidities-in-cll-chronic-
lymphocytic
-
leukemia
-patients/ The phase III Alliance A041202 collaborative multi-centered trial demonstrated once and for all
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
So much new CLL material to read
See: https://cllsociety.org/2019/12/asco-2019-dr-koffmans-pick-8-second-cancers-in-patients-receiving-btk-inhibitors-in-chronic-
lymphocytic
-
leukemia
-cll/ In his #7 of the top 10 CLL abstracts from ASH, Dr.
See: https://cllsociety.org/2019/12/asco-2019-dr-koffmans-pick-8-second-cancers-in-patients-receiving-btk-inhibitors-in-chronic-
lymphocytic
-
leukemia
-cll/ In his #7 of the top 10 CLL abstracts from ASH, Dr.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Melatonin against platelets?
Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been much better. I looked up effect of melatonin on platelets and I was shocked to find that melatonin caused platelet apoptosis (death). There are studies proving this. Here is info: https://www.sciencedirect.com/science/article
Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been much better. I looked up effect of melatonin on platelets and I was shocked to find that melatonin caused platelet apoptosis (death). There are studies proving this. Here is info: https://www.sciencedirect.com/science/article
Anag
in
MPN Voice
4 years ago
Options other than transplant?
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Hi, I'm new to the forum and was wondering if anybody has chosen not to go for stem cell transplant after getting good bone marrow results after the consolidation phase of chemo? I'm also struggling to find other people who have been diagnosed with A.L.L. in their 50s like me as it seems to usually bea
Gemini1967
in
Leukaemia Support
4 years ago
Mpn
A bit confused abnormal bmb all other tests ok though platelets still raised. Am about to start HYDROXYCARBAMIDE. After reading links people have suggested it says the drug is used to treat chronic leukaemia.Have i got leukaemia?.
A bit confused abnormal bmb all other tests ok though platelets still raised. Am about to start HYDROXYCARBAMIDE. After reading links people have suggested it says the drug is used to treat chronic leukaemia.Have i got leukaemia?.
glyndale
in
MPN Voice
4 years ago
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