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CLL SOCIETY'S ASH POSTER on our Free second opinion program plus two important papers from ASCO
data on the benefits of transplants for Richter’s Transformations. https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-stem-cell-transplant-in-richter-transformation-inn-chronic-
lymphocytic
-
leukemia
-cll/ Stay strong.
data on the benefits of transplants for Richter’s Transformations. https://cllsociety.org/2019/12/asco-2019-cll-society-dr-koffmans-pick-7-stem-cell-transplant-in-richter-transformation-inn-chronic-
lymphocytic
-
leukemia
-cll/ Stay strong.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
COVID-19 Particularly Risky for CLL Patients
I must say, this article from Fred Hutch did nothing to brighten my day. But, it did make me wash my hands (yet again). According to Dr. Steve Pergam, clinical and infectious disease researcher at Fred Hutch, patients with hematologic malignancies are at greatest risk from COVID-19. Of course, CLL is
I must say, this article from Fred Hutch did nothing to brighten my day. But, it did make me wash my hands (yet again). According to Dr. Steve Pergam, clinical and infectious disease researcher at Fred Hutch, patients with hematologic malignancies are at greatest risk from COVID-19. Of course, CLL is
Lily_Pad_Master
in
CLL Support
4 years ago
Tagresso Treatment
Anyone being treated with Tagresso? I have EGFR mutation and am on the drug as first line of defense. I was a non smoker and diagnosed at stage four. The cancer is in my right lung and was on my vernacular vertebrae. At the five week scan the cancer on my back was gone and the tumors had 50% shrinkage
Anyone being treated with Tagresso? I have EGFR mutation and am on the drug as first line of defense. I was a non smoker and diagnosed at stage four. The cancer is in my right lung and was on my vernacular vertebrae. At the five week scan the cancer on my back was gone and the tumors had 50% shrinkage
celesteDeS
in
Lung Conditions Community Forum
4 years ago
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LDH levels and myelofibrosis
So I have MF and my doctor is very pleased that my hemoglobin is stable at 10,9 for the last 6 weeks and my platelets are holding between 450 and 600. However, on Friday I went for my regular visit for lab work and my LDH shot up to almost 900, which it is very high for me. I’ve tried to find information
So I have MF and my doctor is very pleased that my hemoglobin is stable at 10,9 for the last 6 weeks and my platelets are holding between 450 and 600. However, on Friday I went for my regular visit for lab work and my LDH shot up to almost 900, which it is very high for me. I’ve tried to find information
Cja1956
in
MPN Voice
4 years ago
Acalabrutinib three weeks appointment
I don’t know where my previous post went. Very likely, I did something wrong, so here it goes. The only side effect was bad headache for one week after which it became dull and I don’t even need to take Tylenol. Some fatigue and less energy and that is all. 👍🏻 My results are: WBC low at 3.9,
I don’t know where my previous post went. Very likely, I did something wrong, so here it goes. The only side effect was bad headache for one week after which it became dull and I don’t even need to take Tylenol. Some fatigue and less energy and that is all. 👍🏻 My results are: WBC low at 3.9,
studebaker
in
CLL Support
4 years ago
Ann Ashley Leukaemia Counselling Fund
Are you seeking emotional support following diagnosis? We’re providing access to private counselling services through the provision of grants, so that leukaemia patients and their loved ones affected by a blood cancer diagnosis get the emotional and psychological support they need. https://youtu.be/EbVrqerdzXk
Are you seeking emotional support following diagnosis? We’re providing access to private counselling services through the provision of grants, so that leukaemia patients and their loved ones affected by a blood cancer diagnosis get the emotional and psychological support they need. https://youtu.be/EbVrqerdzXk
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
MPN News for treatment primary myelofibrosis, post-PVMF, Post ET-MF and Primary myelofibrosis
Hello all. It has been a while but I wanted to share this latest info. The combination of panobinostat (Farydak) and ruxolitinib (Jakafi) demonstrated efficacy and a tolerable safety profile as a treatment for patients with primary myelofibrosis (PMF) and post-polycythemia vera–related myelofibrosis
Hello all. It has been a while but I wanted to share this latest info. The combination of panobinostat (Farydak) and ruxolitinib (Jakafi) demonstrated efficacy and a tolerable safety profile as a treatment for patients with primary myelofibrosis (PMF) and post-polycythemia vera–related myelofibrosis
mammared
in
MPN Voice
4 years ago
An Investigation into the Quality of Life and Dietary Behaviours of Young Adult Cancer Survivors
Hello friends are you able to help Toby with this survey? https://www.surveymonkey.co.uk/r/CKFTGL2 [i] "Hi my name is Toby and I am currently studying in my final year of BSc Sport and Exercise Nutrition at Hartpury University. I am reaching out to young adult cancer survivors between the age of 18
Hello friends are you able to help Toby with this survey? https://www.surveymonkey.co.uk/r/CKFTGL2 [i] "Hi my name is Toby and I am currently studying in my final year of BSc Sport and Exercise Nutrition at Hartpury University. I am reaching out to young adult cancer survivors between the age of 18
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Unexplained Polycythemia
Hi there, I was just diagnosed with unexplained secondary polycythemia, I am negative for the JAK2 mutation but they haven't tested for Exon 12 yet. It seems they've done every test under the sun and cannot determine the cause of my polycythemia. It makes me wonder if I actually do have primary. I'm
Hi there, I was just diagnosed with unexplained secondary polycythemia, I am negative for the JAK2 mutation but they haven't tested for Exon 12 yet. It seems they've done every test under the sun and cannot determine the cause of my polycythemia. It makes me wonder if I actually do have primary. I'm
Confusedatpolycythem
in
MPN Voice
4 years ago
Acalabrutinib plus Obinutuzumab in Treatment-Naïve and Relapsed/Refractory CLL
Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory). Thirty-two percent of treatment-naïve and 8% of relapsed/refractory patients achieved complete remission. At 36 months, 94% (treatment-naïve) and 88% (relapsed/refractory) were progression free. Acalabrutinib plus obinutuzumab
Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory). Thirty-two percent of treatment-naïve and 8% of relapsed/refractory patients achieved complete remission. At 36 months, 94% (treatment-naïve) and 88% (relapsed/refractory) were progression free. Acalabrutinib plus obinutuzumab
Jm954
Administrator
in
CLL Support
4 years ago
Corona risk after successful treatment?
I am wondering about the state of the immune system after successful treatment for CLL. My husband's bone marrow was MRD-negative 6 months ago, all blood tests good apart from slightly low lymphocytes. He has been told to expect long term remission. Is he now as likely as the average person to contract
I am wondering about the state of the immune system after successful treatment for CLL. My husband's bone marrow was MRD-negative 6 months ago, all blood tests good apart from slightly low lymphocytes. He has been told to expect long term remission. Is he now as likely as the average person to contract
photohound
in
CLL Support
4 years ago
Does Hydroxycarbamide make it take longer for you to recover from an infection?
Hi everyone! I'm new on this site and I'm interested in learning about the experiences of people with Essential Thrombocythaemia (ET). I was diagnosed with Janus Kinase 2 (JaK2)-positive ET about a year ago but only started on oral chemotherapy with Hydroxycarbamide (Hydroxyurea) a few weeks ago, as
Hi everyone! I'm new on this site and I'm interested in learning about the experiences of people with Essential Thrombocythaemia (ET). I was diagnosed with Janus Kinase 2 (JaK2)-positive ET about a year ago but only started on oral chemotherapy with Hydroxycarbamide (Hydroxyurea) a few weeks ago, as
JaK2ET
in
MPN Voice
4 years ago
Bloodwork on imbruvica
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
littledab
in
CLL Support
4 years ago
Ppfe
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Last week my daughter was confirmed as having ppfe. She had a bone marrow transplant 11 yrs ago as she had acute lymphoblastic leukaemia. Is there anyone out there in the same situation?
Kcn3
in
Lung Conditions Community Forum
4 years ago
CLL Treatment Advice/Recommendations/Etc For Newbie
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
username-the-dude
in
CLL Support
4 years ago
ASH 2019
Proud to be presenting our abstract 4716 An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic
Lymphocytic
Leukemia
(CLL) at ASH 2019 between 6 and 8 PM tonight in Orlando.
Proud to be presenting our abstract 4716 An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic
Lymphocytic
Leukemia
(CLL) at ASH 2019 between 6 and 8 PM tonight in Orlando.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Comparative analysis of targeted novel therapies (ibrutinib vs. venetoclax) in relapsed, refractory CLL (Feb 2020)
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
"To date, no prospective trials have directly compared ibrutinib with venetoclax as NA1 in R/R CLL. It remains a key unanswered question as to which of these two NAs optimises the balance of safety and efficacy when utilized as the NA1 in R/R CLL. To address this, we report a large, international study
avzuclav
in
CLL Support
4 years ago
Dr Nicole Lamanna's Thoughts on the Recent FDA Approval of Acalabrutinib in CLL
[i]"The introduction of BTK inhibitor therapy has truly transformed the treatment landscape in chronic
lymphocytic
leukemia
(CLL).
[i]"The introduction of BTK inhibitor therapy has truly transformed the treatment landscape in chronic
lymphocytic
leukemia
(CLL).
AussieNeil
Partner
in
CLL Support
4 years ago
Sarcomatoid SCCs and ruxolitinib BMB
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Hi As I posted here, I had a BMB a couple of weeks ago. Unfortunately the first part of the sample that was analysed had been badly taken and couldn’t be fully analysed. What a bummer. So I’ll have to wait for the trephine ( bony core) part of the biopsy to be analysed. I’m still hoping that I can
Rachelthepotter
in
MPN Voice
4 years ago
Real-World Sequence Patterns of Novel Agents in CLL
In real-world settings, most (nearly 93%) of patients with chronic
lymphocytic
leukemia
(CLL) receive novel-agent therapies — and they receive these most often in the second-line setting, researchers reported in a poster on display during the 61st American Society of Hematology (ASH).
In real-world settings, most (nearly 93%) of patients with chronic
lymphocytic
leukemia
(CLL) receive novel-agent therapies — and they receive these most often in the second-line setting, researchers reported in a poster on display during the 61st American Society of Hematology (ASH).
Jm954
Administrator
in
CLL Support
4 years ago
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