Hi all hope you had a good christmas, my hubby has had 3 call ups for lung transplant this year, the last one he was ready for theatre, perfect match but when they got the lungs they were damaged.
he needs a double lung transplant and is getting worse, anyone out there in the same boat, how do you cope with the highs and lows.
Hi Crafttie. In the transplant world these are referred to as "dry runs". I was lucky with just one call but unfortunately less than 20% of donor lungs are suitable for transplant. I am five years post now. I am a member of a lung transplant group on Facebook. There are many posts about this and other issues. If you would like, I will post the link. I truly hope he gets his match very soon. Cas xx 🤗
Sorry I have no experience of this. Hoping you get another call soon. Take care both. xx
Thinking of you and your hubby and hoping 2025 is a good year for you both.
Best wishes xxx❤️
It must be v disheartening.hope he gets a gd match soon x
I do hope the next call will be the real thing. xxx
Can I ask how old he is? I’m 73 in February and deemed to old. I have pulmonary fibrosis.
Unfortunately these dry runs are all too common. It's really tricky. All I can say is that it's for the best if the lungs were damaged although really disappointing for both of you. The whole process is frought with difficulties from getting onto the transplant list to the actual transplant and there are no guarantees. When my husband was waiting for his transplant it was like walking a tightrope. Obviously whilst waiting his health was worsening but just when we were beginning to think it wouldn't happen he got the call. Luckily for him the lungs weren't damaged and the operation went well (as well as it could). But the difficulties don't end there because there is a long process of recovery which isn't all plain sailing and frought with dangers. However, we understood that from the outset. I won't dwell on that because you will be just as well informed. I found that I constantly had to remind myself that this was never going to be easy but was his only hope. As such we had to persevere because giving up wasn't an option. I truly understand how both you and your husband are feeling but hang in there. There comes a time for a lot of us where the marriage vows " in sickness and in health" are more important than ever. You are there for him and you do your best, that's what matters most. I hope 2025 is good to you both. My very best wishes.
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