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Experiences with
Lung lobectomy
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Post op complications
Hi, it's been 7 weeks since I had a left upper lobectomy. After operation I felt fine, managed to get out and about, still some pain but manageable. Then 2 weeks ago I was readmitted with fluid on my lung and infection somewhere. In for a week with IV antibiotics then oral antibiotics. Unable to eat
Hi, it's been 7 weeks since I had a left upper lobectomy. After operation I felt fine, managed to get out and about, still some pain but manageable. Then 2 weeks ago I was readmitted with fluid on my lung and infection somewhere. In for a week with IV antibiotics then oral antibiotics. Unable to eat
Kenzie123
in
The Roy Castle Lung Cancer Foundation
5 years ago
Farewell to our dear friend Anita
I’ve been sitting here staring at the blinking cursor and I’ve no idea for how long. Words don’t usually fail me but this weeks loss is devastating. You knew her here as Anita Figueras or SciFiKnitter. She was a blogger on this board when it was managed by Free to Breathe. If you have EGFR+ adenocarcinoma
I’ve been sitting here staring at the blinking cursor and I’ve no idea for how long. Words don’t usually fail me but this weeks loss is devastating. You knew her here as Anita Figueras or SciFiKnitter. She was a blogger on this board when it was managed by Free to Breathe. If you have EGFR+ adenocarcinoma
Denzie
Volunteer
in
Lung Cancer Support
5 years ago
One year on!
(Previously mis-diagnosed with cancer in 2008 and had unnecessary bi-
lobectomy
to my right
lung
and chest wall reconstruction, losing 2/3 of right lung and 2 ribs!). I was on holiday alone and rang to hear I had lesion in the same lung and was being referred as cancer suspected!
(Previously mis-diagnosed with cancer in 2008 and had unnecessary bi-
lobectomy
to my right
lung
and chest wall reconstruction, losing 2/3 of right lung and 2 ribs!). I was on holiday alone and rang to hear I had lesion in the same lung and was being referred as cancer suspected!
Elt79
in
The Roy Castle Lung Cancer Foundation
5 years ago
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Good news - stage IIIb NSCLC Adeno
Hi I just wanted to share some good news. My recent scans have come back all clear again! I had an MRI head and paid for a private PET scan for body. I was originally diagnosed in 2014 , aged 43, and was told it was incurable, inoperable and terminal. Since then I have had four rounds of chemo (Cisplatin
Hi I just wanted to share some good news. My recent scans have come back all clear again! I had an MRI head and paid for a private PET scan for body. I was originally diagnosed in 2014 , aged 43, and was told it was incurable, inoperable and terminal. Since then I have had four rounds of chemo (Cisplatin
Janey_H
in
The Roy Castle Lung Cancer Foundation
5 years ago
Relapse 😔
I didn’t want to write this but yes, I relapsed.. it was a combination of drink and sorrow that led me to light up. My dog, my friend for over 15 years, died. I had him euthanized and that made it even harder. I have quit again - yesterday was completely smoke-free. I guess I smoked off and on for almost
I didn’t want to write this but yes, I relapsed.. it was a combination of drink and sorrow that led me to light up. My dog, my friend for over 15 years, died. I had him euthanized and that made it even harder. I have quit again - yesterday was completely smoke-free. I guess I smoked off and on for almost
ccurn
13 MONTHS WINNER
in
Quit Support
5 years ago
Who I am
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
orlanw
in
Lung Conditions Community Forum
5 years ago
LDH markers
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
Goingcuckoo
in
Lung Cancer Support
5 years ago
KRAS mutation
What does the KRAS mean to a lung cancer patient? Is this really a bad mutation? Do you die sooner?
What does the KRAS mean to a lung cancer patient? Is this really a bad mutation? Do you die sooner?
Lovey1000
in
Lung Cancer Support
5 years ago
It’s Official BURNT TOAST If WOMAN LADY LADIEs Is Cooking Your Beanzs
Anyway It’s all very complicated but rember when that talked about cooking meat 🍖 in beer 🍺 to reduce risk NOT sure that works with bread🍞 Talking about a mess I had lung flare up copd exacerbation AND it coincided with me burning my toast Toast was like glass ANYWAY after my fix felt ok 👌 So
Anyway It’s all very complicated but rember when that talked about cooking meat 🍖 in beer 🍺 to reduce risk NOT sure that works with bread🍞 Talking about a mess I had lung flare up copd exacerbation AND it coincided with me burning my toast Toast was like glass ANYWAY after my fix felt ok 👌 So
Hidden
in
Lung Conditions Community Forum
5 years ago
NSCLC operated in March, starting chemotherapy on Monday
I had a 5 cm adenocarcinoma removed from my
lung
during an upper right
lobectomy
this March and have recovered well physically. My tumour was discovered 31/01/2019. It is apparently stage 2a and has not spread detectably. I am 42 years old and a mother to two young sons at 2 and 4 years old.
I had a 5 cm adenocarcinoma removed from my
lung
during an upper right
lobectomy
this March and have recovered well physically. My tumour was discovered 31/01/2019. It is apparently stage 2a and has not spread detectably. I am 42 years old and a mother to two young sons at 2 and 4 years old.
lucanus15
in
The Roy Castle Lung Cancer Foundation
5 years ago
Maintenance treatment
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Ina3
in
The Roy Castle Lung Cancer Foundation
5 years ago
Maintenance treatment
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Hi, My dad was just told that his lung cancer is shrinking again and no more metastasis in the brain too. 🙏🏼 So happy. This was his second PET and MRI with the same results during more than 6 month period. His meds are now Keytruda, Zometa, Alimta and Altuzan. I am wondering for how long he should
Ina3
in
Lung Cancer Support
5 years ago
LDH markers
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
My husband was on immunotherapy for lung cancer which had spread to lymph nodes and pleura. The immunotherapy was stopped as a CT scan showed spread to the liver. He has now been put on Carboplatin and Pemetrexed. After his last (2nd) dose of that his bloods showed an increase in LDH. Stupidly I Googled
Goingcuckoo
in
The Roy Castle Lung Cancer Foundation
5 years ago
New 6 mm nodule at 27 months post LLL lobectomy
This one is a solid noncalcified nodule in the upper right lobe along with a new borderline subcarinal adenopathy. This info comes from the radiologist report. I meet with my oncologist in two weeks. My internet research leads me to fear that it could be a regional metastasis from the adenocarcinoma
This one is a solid noncalcified nodule in the upper right lobe along with a new borderline subcarinal adenopathy. This info comes from the radiologist report. I meet with my oncologist in two weeks. My internet research leads me to fear that it could be a regional metastasis from the adenocarcinoma
rdflynnjr
in
Lung Cancer Support
5 years ago
Jumping through hoops of fire on one leg...
That is how I feel right now! My story... had a right thyroid and isthmus removal due to a benign 3.6cm adenoma in 2013, was presenting hypo symptoms but TSH “normal” never given any supplement. Still symptomatic 1,2 and 3 years later, diagnosed with vit D deficiency ( 3 month high dose supplement
That is how I feel right now! My story... had a right thyroid and isthmus removal due to a benign 3.6cm adenoma in 2013, was presenting hypo symptoms but TSH “normal” never given any supplement. Still symptomatic 1,2 and 3 years later, diagnosed with vit D deficiency ( 3 month high dose supplement
Tnorts
in
Thyroid UK
5 years ago
Thyroid surgery
My endocrinologist has just recommended I get a lobectomy. I have one benign module and one module that has been identified as suspicious by genetic testing so he says there is a 50% chance that I have thyroid cancer. I am not interested in having surgery if I do not have to! I have chosen for now to
My endocrinologist has just recommended I get a lobectomy. I have one benign module and one module that has been identified as suspicious by genetic testing so he says there is a 50% chance that I have thyroid cancer. I am not interested in having surgery if I do not have to! I have chosen for now to
meghans
in
Thyroid UK
5 years ago
Happy Days Are Here Again
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
For those of you diagnosed with stage 4, don’t give up! Hope is a wonderful aid to healing. I had my usual three month scan and “there is no evidence of disease”. When I was diagnosed in 2013, it was assumed that I only had months to live. I am celebrating my news not only for me but those who are
Ncpoet
in
Lung Cancer Support
5 years ago
Thyro Gold dosages
Hi, I have Hypothyroidism due to a partial thyroid lobectomy in October 2017 ( I had nodules), I am going to start on Thyro Gold & would like some advice about dosage.
Hi, I have Hypothyroidism due to a partial thyroid lobectomy in October 2017 ( I had nodules), I am going to start on Thyro Gold & would like some advice about dosage.
Kr4uli
in
Thyroid UK
5 years ago
Pain following Lobectomy
Hi, I have recently had a left upper lobectomy. I just wanted to know how long I will have the pain. Painkillers keep pain at bay most of the time, but at night I get really sore. Also I have low blood pressure, which is making me really lightheaded and dizzy, is this usual. Thanks.
Hi, I have recently had a left upper lobectomy. I just wanted to know how long I will have the pain. Painkillers keep pain at bay most of the time, but at night I get really sore. Also I have low blood pressure, which is making me really lightheaded and dizzy, is this usual. Thanks.
Kenzie123
in
The Roy Castle Lung Cancer Foundation
5 years ago
Ventolin Inhaler -Alternative
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Joseph260268
in
Lung Conditions Community Forum
5 years ago
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