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Experiences with
Lung lobectomy
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No support for Dipipanone and Cyclizine withdrawal.
I have Diverticulitis, adhesions, have had
lung
cancer and a
Lobectomy
, a 10cm sliding hiatus hernia ++. Pain just now is unbearable and I'm into my 5th week of Dipipanone withdrawal and my leg's still feel tight but the RLS has calmed down a bit since stopping the 60 mg Duloxetine.
I have Diverticulitis, adhesions, have had
lung
cancer and a
Lobectomy
, a 10cm sliding hiatus hernia ++. Pain just now is unbearable and I'm into my 5th week of Dipipanone withdrawal and my leg's still feel tight but the RLS has calmed down a bit since stopping the 60 mg Duloxetine.
Danni54
in
Restless Legs Syndrome
1 year ago
Aspergillus post lung transplant.
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Mrbojangles
in
Lung Conditions Community Forum
3 months ago
Bronchoscopy
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
nyla668
in
Lung Conditions Community Forum
3 months ago
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Still have shortness of breath from lobectomy in May
I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I still have a little shortness of breath left over from my lobectomy. Is this fairly common?
I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I still have a little shortness of breath left over from my lobectomy. Is this fairly common?
Babtino
in
The Roy Castle Lung Cancer Foundation
10 months ago
A BIG THANKYOU To All
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
can’t thank you all for all the answers on my tumours too many to answer individual all you lovely people making me think positively when you all have your own health problems such a great site this is for help ..have bad COPD and other problems too so will let you all know after next CT scan wishing
primrose71
in
Lung Conditions Community Forum
4 months ago
SUV 2.0
Anyone have a PET scan light up s/p initial surgery (5 years ago R LL lobectomy and R UL wedge both stage 1 NSCLC) and it NOT be a recurrance? Been a long few months......
CT chest 5/12/23 showed mild increased thickening along the medial aspect of the suture line dating back to 2019, stable as
Anyone have a PET scan light up s/p initial surgery (5 years ago R LL lobectomy and R UL wedge both stage 1 NSCLC) and it NOT be a recurrance? Been a long few months......
CT chest 5/12/23 showed mild increased thickening along the medial aspect of the suture line dating back to 2019, stable as
kri312
in
The Roy Castle Lung Cancer Foundation
10 months ago
Rib pain after breathing test
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
Lyubov
in
Lung Conditions Community Forum
4 months ago
Exercise post surgery
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
Hi, I appreciate there are other more serious matters of concern but I would just like to know what types of exercise and when you started after lung surgery. I am bored with physio and less motivated to walk everyday!
GGoyster
in
The Roy Castle Lung Cancer Foundation
4 months ago
gabapentin
I had a lung operation in January to remove dead tissue ( left lobe). I was prescribed gabapentin capsules but whenever I take them I have shortness of breath my chest feels a little tight and also I feel like I want to cough. I stop taking them and things start to settle down again especially after
I had a lung operation in January to remove dead tissue ( left lobe). I was prescribed gabapentin capsules but whenever I take them I have shortness of breath my chest feels a little tight and also I feel like I want to cough. I stop taking them and things start to settle down again especially after
AllyB27
in
Lung Conditions Community Forum
4 months ago
lung transplant discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
horseygirl_0103
in
Lung Conditions Community Forum
4 months ago
Lung cancer
Diagnosed with lung cancer very high in lung, Doctor says it's very difficult to get for biopsy, and then tells me that as I weigh 130 kg I might not be suitable for radiotherapy, is this right?
Diagnosed with lung cancer very high in lung, Doctor says it's very difficult to get for biopsy, and then tells me that as I weigh 130 kg I might not be suitable for radiotherapy, is this right?
Marydoll55
in
The Roy Castle Lung Cancer Foundation
4 months ago
Chemotherapy after Lobectomy
My auntie was diagnosed with
lung
cancer last year, and she had a
Lobectomy
around 3 months ago. The surgery went well, and she is recovering well, too. She had an appointment today and was told that they found cancer in 2 lymph nodes that were removed during surgery.
My auntie was diagnosed with
lung
cancer last year, and she had a
Lobectomy
around 3 months ago. The surgery went well, and she is recovering well, too. She had an appointment today and was told that they found cancer in 2 lymph nodes that were removed during surgery.
IamAli_R
in
Lung Cancer Support
1 year ago
Lung Transplantation
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
mrblue12
in
Lung Conditions Community Forum
4 months ago
EGFR p.L747_T751de
Hi, Dad’s oncologist has stopped the Erlotinib as last scan in Jan showed tumour growth. Private Liquid biopsy result just back, mutation EGFR p.L747_T751de. No treatment offered by NHS, oncologist thinks will be more harmful to dad but how does he know for sure? I read some PubMed data that restarting
Hi, Dad’s oncologist has stopped the Erlotinib as last scan in Jan showed tumour growth. Private Liquid biopsy result just back, mutation EGFR p.L747_T751de. No treatment offered by NHS, oncologist thinks will be more harmful to dad but how does he know for sure? I read some PubMed data that restarting
Adaughter
in
The Roy Castle Lung Cancer Foundation
4 months ago
Please join us next Tuesday, March 19th for our Small Cell Lung Cancer Treatment Landscape Living Room
Hello, Please join us in our San Carlos office next Tuesday March 19th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jared Weiss, MD, Professor of Medicine, Section Chief of Thoracic and Head/Neck Oncology at University
Hello, Please join us in our San Carlos office next Tuesday March 19th in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jared Weiss, MD, Professor of Medicine, Section Chief of Thoracic and Head/Neck Oncology at University
Michelezeh
Partner
in
Lung Cancer Support
4 months ago
Immunotherapy
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
Gingergus
in
The Roy Castle Lung Cancer Foundation
4 months ago
DAO Supplement + Lung Transplant.
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
mrblue12
in
Lung Conditions Community Forum
4 months ago
Lung Transplant + Fermented Foods
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
mrblue12
in
Lung Conditions Community Forum
4 months ago
Are you in London? Next Information Day 13/3
Hello all, If you have had a diagnosis or are supporting someone with lung cancer you might be interested in joining our next Information Day. This will be held from 9.45 - 15.30 in London at the AFC Wimbledon club SW17 0NR. The day will have updates on targeted therapies, surgery and other treatments
Hello all, If you have had a diagnosis or are supporting someone with lung cancer you might be interested in joining our next Information Day. This will be held from 9.45 - 15.30 in London at the AFC Wimbledon club SW17 0NR. The day will have updates on targeted therapies, surgery and other treatments
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
5 months ago
Treatment stopped
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
Adaughter
in
The Roy Castle Lung Cancer Foundation
5 months ago
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