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Liver failure
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Rheumatology visit. News to me! Biologics pathway - I'm on the last option!!! 😲ðŸ˜
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
https://gmmmg.nhs.uk/wp-content/uploads/2021/08/GMMMG-RA-pathway-FINAL-v4-1.pdf This is a link to a PDF which talks about pathways for rheumatoid arthritis. I had my 6-monthly rheumatology appointment today. Everything is going OK ish at the moment. I have a few bits and pieces, but mainly Methotrexate
Moomin8
in
NRAS
2 years ago
After Fibroscan
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
I have been diagnosed with cirrhosis 12 months ago and have been abstinent with alcohol and cigarettes from then on. I have being referred to a dietitian and lost over 1 and a half stone through diet and exercise. I am worried about getting complications even if I continue with abstinence and eating
Nip1
in
British Liver Trust
2 years ago
Any positive experiences with TIPSS
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
I am 42 years old in the US and have had my NASH cirrhosis diagnosis for 5 years. I was compensated until early this year when I developed Ascites.After some hard work with diet and exercise I have managed to improve my labs and MELD score greatly. Began the summer at a MELD 26 and am currently at an
Crooktele79
in
British Liver Trust
2 years ago
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Is gluten free food doing us more harm than good?
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
About twp years ago i went privately for a food intolerance test re my IBS. It was suggested I go gluten & dairy free which I did & continued for over a year. Doing this didn't make much difference to my IBS symptoms so I gave up the gluten free but carried on with being dairy free. But I still bought
Moggiedee
in
IBS Network
2 years ago
Blood clot in portal vein
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
Hi everyone not been on the site for a while as my health is good right now!Just a quick question i have cirrhosis that is well compensated apart from slightly lower platelet count and was at my routine 6mth ultrasound when my consultant called saying I have a small blood clot on the left portal
ballie52
in
British Liver Trust
2 years ago
being left behind
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hi all I just need to get this off my chest. My dad died 3 days ago, 14 weeks after being diagnosed with alcohol related liver cirrhosis. I am totally crushed. I feel guilty for thinking he had ‘let himself go’ when in fact he was full of fluid as he had ascites. I’m left not being able to tolerate
Hwalt90
in
British Liver Trust
2 years ago
Alcoholic liver disease is a strong predictor of colorectal polyps in liver transplant recipients
In January this year, following a routine blood test by my GP. It highlighted low ferritin levels. After having completed a Fit-Test (faecal haemoglobin test), blood was found in the sample. I later went and had a CT Colonography. This highlighted four polyps in my colon. After a lot of messing around
In January this year, following a routine blood test by my GP. It highlighted low ferritin levels. After having completed a Fit-Test (faecal haemoglobin test), blood was found in the sample. I later went and had a CT Colonography. This highlighted four polyps in my colon. After a lot of messing around
Richard-Allen
in
British Liver Trust
2 years ago
My journey with MDD
Forward a bit to today -- suffering from
liver
issues that are a stone throw away from
failure
, mom had a stroke and I live-in help her now with her dementia, and somehow my health stats are pristine according to my doc.
Forward a bit to today -- suffering from
liver
issues that are a stone throw away from
failure
, mom had a stroke and I live-in help her now with her dementia, and somehow my health stats are pristine according to my doc.
JohanSonne
in
Major Depressive Disorder (MDD) Support
26 days ago
polycystic liver disease
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
Sep9
in
British Liver Trust
2 years ago
Fibroscan update
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Refs
in
British Liver Trust
2 years ago
Mould and mycotoxins as root cause of hashimotos/ hypothyroidism!!!
Hello, I have just joined this group and want to share my journey over this past year including my new revelation for those who might be interested or it could help. I was diagnosed with subclinical hypothyroidism a year ago and offered levothyroxine by my GP due to my symptoms but that was and is
Hello, I have just joined this group and want to share my journey over this past year including my new revelation for those who might be interested or it could help. I was diagnosed with subclinical hypothyroidism a year ago and offered levothyroxine by my GP due to my symptoms but that was and is
LucyYoga
in
Thyroid UK
2 years ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
2 years ago
Acamprosate and Liver Cirrhosis
I have had cirrhosis for five years. Recently I was prescribed Acamprosate to prevent the urge to drink (I fell off the wagon three months ago). I have been taking Acamprosate for the last three months and find them very effective. The instructions state that I can take this medication for up to
I have had cirrhosis for five years. Recently I was prescribed Acamprosate to prevent the urge to drink (I fell off the wagon three months ago). I have been taking Acamprosate for the last three months and find them very effective. The instructions state that I can take this medication for up to
Beauport
in
British Liver Trust
2 years ago
Decompensated liver
Hi my husband was diagnosed with decompensated liver in October 22, he's abstained from alcohol, has lost 3 stone,and looks and feels well!Past few days he's noticed his feet swelling again, it's hard to put his shoes on! He's on spironolactone 100mg everyday with 20mg furosemide in morning and 40mg
Hi my husband was diagnosed with decompensated liver in October 22, he's abstained from alcohol, has lost 3 stone,and looks and feels well!Past few days he's noticed his feet swelling again, it's hard to put his shoes on! He's on spironolactone 100mg everyday with 20mg furosemide in morning and 40mg
Tulip1973
in
British Liver Trust
2 years ago
Experience of benign liver tumours or liver cysts?
A reminder that we are also starting work on updating our information about these conditions and would really like to hear from you if you have experienced them. Please get in touch by emailing Kirsty.sharrock@britishlivertrust.org.uk if you have, or have had, any of the conditions below and would
A reminder that we are also starting work on updating our information about these conditions and would really like to hear from you if you have experienced them. Please get in touch by emailing Kirsty.sharrock@britishlivertrust.org.uk if you have, or have had, any of the conditions below and would
BritishLiverTrust1
Partner
in
British Liver Trust
2 years ago
any help plz
just had been diagnosed with Cirrhosis after very high fibroscan results I was told by letter and I won’t be seeing liver specialist until January I have no idea what stage it is at or anything is this normal to be told and then have to wait so long ?
just had been diagnosed with Cirrhosis after very high fibroscan results I was told by letter and I won’t be seeing liver specialist until January I have no idea what stage it is at or anything is this normal to be told and then have to wait so long ?
Liver007123
in
British Liver Trust
2 years ago
Hope and so determind
Hello all. Consultant advised me on 22/10/22(Tattooed in my head) I am F4 with Cirrhosis (not sure level of Cirrhosis) My Fibroscan was 23.6, 18.6 is the start of F4. Prior to the appointment not had a drink in 3.5 weeks at all. Had Bloods on same day of appointment, received results Friday 28/10
Hello all. Consultant advised me on 22/10/22(Tattooed in my head) I am F4 with Cirrhosis (not sure level of Cirrhosis) My Fibroscan was 23.6, 18.6 is the start of F4. Prior to the appointment not had a drink in 3.5 weeks at all. Had Bloods on same day of appointment, received results Friday 28/10
55spenc
in
British Liver Trust
2 years ago
Caring for Dad with liver cancer........
My Dad is 82, and was diagnosed in August this year. He'd been unwell for most of the year, then caught Covid in June and thankfully this led to some blood tests from his GP. He then collapsed and got taken into hospital where he was diagnosed with liver cancer. He has got 3 metastatic tumours, and
My Dad is 82, and was diagnosed in August this year. He'd been unwell for most of the year, then caught Covid in June and thankfully this led to some blood tests from his GP. He then collapsed and got taken into hospital where he was diagnosed with liver cancer. He has got 3 metastatic tumours, and
JulesVee70
in
British Liver Trust
2 years ago
Unsure how to proceed
so first , I’m in the US not UK so every single little thing medical is $$$. I’ve had pain in the liver area off and on honestly about 3 years now . More towards the back and it’s not really pain as much as heaviness feeling or fullness idk if that makes sense. The last few months seems like it’s getting
so first , I’m in the US not UK so every single little thing medical is $$$. I’ve had pain in the liver area off and on honestly about 3 years now . More towards the back and it’s not really pain as much as heaviness feeling or fullness idk if that makes sense. The last few months seems like it’s getting
Mom23dds
in
British Liver Trust
2 years ago
Liver Stent/Tips
Hi, I had a tips in May 2022, within 6 weeks it failed and I had urgent surgery to correct it in July 2022. I've been told my new TIPS is very big. Since then I have felt absolutely amazing. However, past week I've had a build up of ascities - not huge but enough to see my weight increase by 7lbs. I
Hi, I had a tips in May 2022, within 6 weeks it failed and I had urgent surgery to correct it in July 2022. I've been told my new TIPS is very big. Since then I have felt absolutely amazing. However, past week I've had a build up of ascities - not huge but enough to see my weight increase by 7lbs. I
BumbleCat
in
British Liver Trust
2 years ago
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