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New Mermber w MCL strating rescue treatment w Calquence
On Jan 2022 started new treatment w Calquence, doing ok till now Due to Qts I have now sensory neuropathy, doing fine alpha
Lipoic
Acid
600mg daily
On Jan 2022 started new treatment w Calquence, doing ok till now Due to Qts I have now sensory neuropathy, doing fine alpha
Lipoic
Acid
600mg daily
xxje
in
Non Hodgkin's Lymphoma Friends
2 years ago
Increased aminoacids ... Could this be my gut issue
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
hi ive had amino acids profile tests done and there are increased levels of glycine;hydroproline; nithene; asparagine. Does anyone know what this means and could this be related to my gut pain? Thank you
Waiting_for_godo
in
IBS Network
2 years ago
Interferon Alpha 2-a (PEG) vs 2-b,(Bes) exactly what's the diff?
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
EPguy
in
MPN Voice
2 years ago
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Mixed feelings following first GP appointment since PMR diagnosis
Started on 20mg prednisolone mid June, four weeks later reduced to 17.5 mg for four weeks, no problems, reduced to 15mg last Friday. By Monday the pain was back and I was very breathless; when I saw GP face to face, two days ago I was told to go back to 17.5 for two weeks and then try again. I raised
Started on 20mg prednisolone mid June, four weeks later reduced to 17.5 mg for four weeks, no problems, reduced to 15mg last Friday. By Monday the pain was back and I was very breathless; when I saw GP face to face, two days ago I was told to go back to 17.5 for two weeks and then try again. I raised
sewinggranny
in
PMRGCAuk
2 years ago
Well I'll be damned!
Well, as a follow up to my post 3 weeks ago, I had my Rheumy appt. this morning. She spent ages with me. I told her all my woes, and she thoroughly examined me. I must've have yelped loudly about 20 times 😖 She went through all of my symptoms one by one and said she had come to the conclusion
Well, as a follow up to my post 3 weeks ago, I had my Rheumy appt. this morning. She spent ages with me. I told her all my woes, and she thoroughly examined me. I must've have yelped loudly about 20 times 😖 She went through all of my symptoms one by one and said she had come to the conclusion
Groovykindoflove1992
in
PMRGCAuk
2 years ago
Zolpidem users: a debilitating surprise awaits at 65
I took Zolpidem (a.k.a., Ambien) for 12 years. Last spring my doctor cut off my prescription without discussion. Around the same time my brother's doctor cut his prescription from 10mg to 5mg without discussion. At same time a fellow employee of my brother had her prescription cut off – without discussion
I took Zolpidem (a.k.a., Ambien) for 12 years. Last spring my doctor cut off my prescription without discussion. Around the same time my brother's doctor cut his prescription from 10mg to 5mg without discussion. At same time a fellow employee of my brother had her prescription cut off – without discussion
Patrickk
in
Sleep Matters
2 years ago
Omega 3 supplements- increased risk of cardiovascular disease?
I recently read on a Grassroots Health newsletter that recent research has shown that B vitamins don’t work well without omega 3. (I can’t be more specific than ‘don’t work well ‘and I’m not sure there was a reference - but I’ll find a screenshot. I take a B complex So I started supplementing with omega
I recently read on a Grassroots Health newsletter that recent research has shown that B vitamins don’t work well without omega 3. (I can’t be more specific than ‘don’t work well ‘and I’m not sure there was a reference - but I’ll find a screenshot. I take a B complex So I started supplementing with omega
Bearo
in
Thyroid UK
2 years ago
Painkillers for nerve pain / side effects
I am a 71 yo male with PAF / exercise induced AF, which doesn’t overly affect me too much. I am fairly active and a regular cyclist. Recently I have been suffering with a trapped > irritated Femoral Nerve in my Left leg. This is quite painful at times and keeps me awake at night. I have been attending
I am a 71 yo male with PAF / exercise induced AF, which doesn’t overly affect me too much. I am fairly active and a regular cyclist. Recently I have been suffering with a trapped > irritated Femoral Nerve in my Left leg. This is quite painful at times and keeps me awake at night. I have been attending
BuckleyBoy
in
AF Association
2 years ago
Egg collection results
Finally the wait is over. The dr called me to give me results for my EC. Out of 4 eggs 2 were matured and fertilised and 1 didn’t make it. I take comfort that I have 1 embryo that is now frozen. It is a 3BB @ day 6, he mentioned the best would have been 4AA just to give me an idea of where we are (this
Finally the wait is over. The dr called me to give me results for my EC. Out of 4 eggs 2 were matured and fertilised and 1 didn’t make it. I take comfort that I have 1 embryo that is now frozen. It is a 3BB @ day 6, he mentioned the best would have been 4AA just to give me an idea of where we are (this
KediT
in
Fertility Network UK
2 years ago
Omega 3
I've read that many fish oil supplements are rancid and low quality, but I've also read that the linseed i usually take doesn't have as much omega 3 as animal sourced options. What brands are recommended...
I've read that many fish oil supplements are rancid and low quality, but I've also read that the linseed i usually take doesn't have as much omega 3 as animal sourced options. What brands are recommended...
Kriticat
in
Thyroid UK
2 years ago
helvella - Vade Mecum for Thyroid
[i]
helvella - Vade Mecum for Thyroid
[/i] [i]The term vade mecum means:[/i] [i]1. A referential book such as a handbook or manual.[/i] [i]2. A useful object, constantly carried on one’s person.[/i] [i]Please don't get put off by the number of pages![/i] [i]Nor by the fact it is targeted at
[i]
helvella - Vade Mecum for Thyroid
[/i] [i]The term vade mecum means:[/i] [i]1. A referential book such as a handbook or manual.[/i] [i]2. A useful object, constantly carried on one’s person.[/i] [i]Please don't get put off by the number of pages![/i] [i]Nor by the fact it is targeted at
helvella
Thyroid UK
in
Thyroid UK
2 years ago
No Alendronic Acid!
So this month's prescription for Alendronic Acid hadn't been done very -unusual for our very efficient pharmacy. Pharmacist explained to me that there is a national shortage and there just isn't any to be had -he has emailed the surgery to request the alternative ibandronate, but they haven't got
So this month's prescription for Alendronic Acid hadn't been done very -unusual for our very efficient pharmacy. Pharmacist explained to me that there is a national shortage and there just isn't any to be had -he has emailed the surgery to request the alternative ibandronate, but they haven't got
artisam
in
PMRGCAuk
2 years ago
Arythmia
Some thoughts. I had pretty bad arythmia and ended up in ICU twice in 2021 for a total of 14 days. Now its totally under control and here is what I did: 1) Eat very well, reducing carbs, sugar and eliminate Caffeine 2) Reduce alcohol consumption to a minimum 3) Increase Omega 3 and fibre intake to
Some thoughts. I had pretty bad arythmia and ended up in ICU twice in 2021 for a total of 14 days. Now its totally under control and here is what I did: 1) Eat very well, reducing carbs, sugar and eliminate Caffeine 2) Reduce alcohol consumption to a minimum 3) Increase Omega 3 and fibre intake to
Seiznem
in
Arrhythmia Alliance
2 years ago
Happy weekend....What are two things you have gained from pandemic with MS or and other illnesses that may exist. making a list.TY!
I am thankful to you all..i look as i can to see how everyone is doing and honestly to hang on. i barely make it thru each day but ido and that is the point.I dont know if you all know how special you are?! I pray fall brings joy and holidays or stay vacation , or if a real vacation! It has been so
I am thankful to you all..i look as i can to see how everyone is doing and honestly to hang on. i barely make it thru each day but ido and that is the point.I dont know if you all know how special you are?! I pray fall brings joy and holidays or stay vacation , or if a real vacation! It has been so
jackiesj
in
My MSAA Community
2 years ago
Stopped smoking, stopped having seizures
Hi. I just wanted to share my experience here in the hope that it might help others. Four years ago I crashed my car whilst having, what I later found out to be, an absence seizure (I crashed into a lorry, luckily no one was hurt). I went to the doctor, surrendered my driving license and booked an
Hi. I just wanted to share my experience here in the hope that it might help others. Four years ago I crashed my car whilst having, what I later found out to be, an absence seizure (I crashed into a lorry, luckily no one was hurt). I went to the doctor, surrendered my driving license and booked an
FlemClandango
in
Epilepsy Action
2 years ago
Kid Supplements/Vitamins for ADHD
Does anyone use supplements/vitamins to help ease ADHD symptoms? My son is on medication and I read that Omega-3 is good for kids.
Does anyone use supplements/vitamins to help ease ADHD symptoms? My son is on medication and I read that Omega-3 is good for kids.
ADHDMom2013
in
CHADD's ADHD Parents Together
2 years ago
The end of Parkinson's as we know it today. From the Levodopa era to the "transformative" information era.
We cannot continue without introducing Mucuna (with or without carbidopa); homocysteine reduction with vitamins B2, B6, B9 and B12; the use of sublingual vitamin B12; substances that raise glutathione as well as providing innumerable benefits (alpha
lipoic
acid
, vitamin C, selenium, turmeric, etc.);
We cannot continue without introducing Mucuna (with or without carbidopa); homocysteine reduction with vitamins B2, B6, B9 and B12; the use of sublingual vitamin B12; substances that raise glutathione as well as providing innumerable benefits (alpha
lipoic
acid
, vitamin C, selenium, turmeric, etc.);
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
Alendronic Acid
My liver guy has prescribed Alendronic Acid following my DEXA scan. I'm pissed off as I really thought I had calcium covered. I'm a fussy vegetarian that practically lives off cheese on toast and milkshakes ! Most of the stuff I've read on the web refers to osteoporosis in menopausal women, so I'm looking
My liver guy has prescribed Alendronic Acid following my DEXA scan. I'm pissed off as I really thought I had calcium covered. I'm a fussy vegetarian that practically lives off cheese on toast and milkshakes ! Most of the stuff I've read on the web refers to osteoporosis in menopausal women, so I'm looking
billyde
in
British Liver Trust
2 years ago
Alpha Lipoic Acid
Hi I've been taking the above for a number of weeks as I'd read its good for neuropathy. I have fibro and one of my most persistent and annoying symptoms is pins and needles in my feet and hands. In recent months it had spread to my head and other areas and was driving me nuts. I have a suspicion it's
Hi I've been taking the above for a number of weeks as I'd read its good for neuropathy. I have fibro and one of my most persistent and annoying symptoms is pins and needles in my feet and hands. In recent months it had spread to my head and other areas and was driving me nuts. I have a suspicion it's
Sparklingsunshine
in
Thyroid UK
3 years ago
Feedback on private Blood tests please, before my Endo appt..
I posted earlier this month asking for advice before I see my Endo at the end of November. I've not been feeling too great and my Endo put me on Hrt as my levels were all in range and he thinks my symptoms are perimenopausal rather than thyroid. (graves/Rai Oct 21) I feel it's a mixture of both. Hrt
I posted earlier this month asking for advice before I see my Endo at the end of November. I've not been feeling too great and my Endo put me on Hrt as my levels were all in range and he thinks my symptoms are perimenopausal rather than thyroid. (graves/Rai Oct 21) I feel it's a mixture of both. Hrt
JUUJOO
in
Thyroid UK
2 years ago
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