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First rheumatology appointment
Hi all I have my first rheumatology appointment next week and wondered if anyone has any advice. I was diagnosed with PMR in January and had pain in one shoulder which left me unable to lift a kettle. Then a couple of weeks later I had crippling pain in my buttocks and down both legs back and front,
Hi all I have my first rheumatology appointment next week and wondered if anyone has any advice. I was diagnosed with PMR in January and had pain in one shoulder which left me unable to lift a kettle. Then a couple of weeks later I had crippling pain in my buttocks and down both legs back and front,
Pegasu
in
PMRGCAuk
2 years ago
Supplements in 1st trimester extra folic acid
Do you take extra folic acid to the multi vitamin like Pregnacare? Is 400mcg folic acid the minimum daily amount or recommended amount? The reason im asking is Pregnacare is coated tablet, I start feeling bloated immediately after taking it, which isn’t the case for years until now I’m at early pregnancy
Do you take extra folic acid to the multi vitamin like Pregnacare? Is 400mcg folic acid the minimum daily amount or recommended amount? The reason im asking is Pregnacare is coated tablet, I start feeling bloated immediately after taking it, which isn’t the case for years until now I’m at early pregnancy
Midsummer_daydream
in
Fertility Network UK - Pregnancy Support
1 year ago
Burning Mouth Syndrome with narcotic use
Has anyone experienced burning mouth/tongue while using narcotics for RLS? I think it may take a long while to occur after starting narcotics. I have reduced the BMS and occurrence of RLS using Solgar brand Omega 3 Fish Oil Concentrate (Amazon), which also greatly reduces joint pain, you can take 7-8
Has anyone experienced burning mouth/tongue while using narcotics for RLS? I think it may take a long while to occur after starting narcotics. I have reduced the BMS and occurrence of RLS using Solgar brand Omega 3 Fish Oil Concentrate (Amazon), which also greatly reduces joint pain, you can take 7-8
Altruist
in
Restless Legs Syndrome
1 year ago
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Why do we use IFN-α vs IFN-β? Might IFN-β be preferred?
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
EPguy
in
MPN Voice
2 years ago
Bisphosphonates and joint problems - are these related?
For the second time this year I am about to have surgery to remove bone from a joint. In May this year I had a cheilectomy to remove bone from my big toe joint. I am now going to have surgery to remove bone from my collarbone (where there are bony spurs) and a decompression of my acromioclavicular joint
For the second time this year I am about to have surgery to remove bone from a joint. In May this year I had a cheilectomy to remove bone from my big toe joint. I am now going to have surgery to remove bone from my collarbone (where there are bony spurs) and a decompression of my acromioclavicular joint
scd2211
in
Bone Health and Osteoporosis UK
2 years ago
A Different View on Bone Protection
Replied to a question about bone protective medications on another forum today, and thought it might be of interest to some here at FPC. So pasting it here. Full disclosure: I have been taking denosumab (Prolia or Xgeva) for over 5 years and currently have normal bone density. I also take Calcium supplement
Replied to a question about bone protective medications on another forum today, and thought it might be of interest to some here at FPC. So pasting it here. Full disclosure: I have been taking denosumab (Prolia or Xgeva) for over 5 years and currently have normal bone density. I also take Calcium supplement
MateoBeach
in
Fight Prostate Cancer
2 years ago
‘Supplementing’ supplements with whole-foods.
Before Parkinson’s symptoms came into my husband’s life, we generally tried to get all our nutrients from the food we ate (and had to supplement B12, D, and omega 3 because of a plant-based diet). Since following sites like this, we have added more B vitamins (B complex, B1, more B12), and magnesium
Before Parkinson’s symptoms came into my husband’s life, we generally tried to get all our nutrients from the food we ate (and had to supplement B12, D, and omega 3 because of a plant-based diet). Since following sites like this, we have added more B vitamins (B complex, B1, more B12), and magnesium
Ashti
in
Cure Parkinson's
1 year ago
Can I Reduce The Symptoms of ADHD Taking These Supplements?
Hi everyone, I am diagnosed with ADHD last week. My psychiatrist prescribed me Strattera (Atomoxetine). I have heart arryhtmia and learned that it is not recommended to use Straterra if you have heart arryhtmia. Also I learned that sudden deaths and stroke have been reported in adults taking atomoxetine
Hi everyone, I am diagnosed with ADHD last week. My psychiatrist prescribed me Strattera (Atomoxetine). I have heart arryhtmia and learned that it is not recommended to use Straterra if you have heart arryhtmia. Also I learned that sudden deaths and stroke have been reported in adults taking atomoxetine
BusyTraffic
in
CHADD's Adult ADHD Support
1 year ago
My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
1 year ago
osteoporosis and products to help
hi everyone. Been on alendronic acid for about 4 months but have had a small problem of irritation in my throat, causing coughing. Coughing is painful, having 4 spinal fractures in April. I’ve now been asked to change to zolondronic acid, yearly infusion. This is NOT the same as denusomab.
hi everyone. Been on alendronic acid for about 4 months but have had a small problem of irritation in my throat, causing coughing. Coughing is painful, having 4 spinal fractures in April. I’ve now been asked to change to zolondronic acid, yearly infusion. This is NOT the same as denusomab.
Errp82
in
Bone Health and Osteoporosis UK
2 years ago
Brilliant review with pharmacist
Hi Everyone I’m just back from a review of my medication for PMR and high blood pressure with the surgery pharmacist. He was great and to me had a better understanding of this condition than any of the gp’s I’ve spoken to on the phone. He did admit that they don’t always understand the interactions
Hi Everyone I’m just back from a review of my medication for PMR and high blood pressure with the surgery pharmacist. He was great and to me had a better understanding of this condition than any of the gp’s I’ve spoken to on the phone. He did admit that they don’t always understand the interactions
MrsPractical
in
PMRGCAuk
2 years ago
Test results, a penny for your thoughts?
Hello everyone, just had my latest blood tests done. Just curious what you would say about them, if you have the time? A few months ago I went up by 12.5mcg in an attempt to bring my TSH down to around 1 where I generally feel better. My weight is a lot better these days, my heart rate has finally calmed
Hello everyone, just had my latest blood tests done. Just curious what you would say about them, if you have the time? A few months ago I went up by 12.5mcg in an attempt to bring my TSH down to around 1 where I generally feel better. My weight is a lot better these days, my heart rate has finally calmed
Starling87
in
Thyroid UK
1 year ago
Obeticholic acid
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia 😊
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia 😊
Marj6364
in
PBC Foundation
2 years ago
Mitochondrial Protections for Aging Humans
These include: 1) Coenzyme Q10 (ubiquinone) 2) Pyrroloquinoline quinone (PQQ) 3) Alpha-
Lipoic
acid
(ALA) 4) L-Carnitine 5) NMN: Nucotinamide Mononucleotide Then perhaps a Part III: Strategies, medications and supplements to help reduce baseline inflammation
These include: 1) Coenzyme Q10 (ubiquinone) 2) Pyrroloquinoline quinone (PQQ) 3) Alpha-
Lipoic
acid
(ALA) 4) L-Carnitine 5) NMN: Nucotinamide Mononucleotide Then perhaps a Part III: Strategies, medications and supplements to help reduce baseline inflammation
MateoBeach
in
Fight Prostate Cancer
2 years ago
Elevated parathyroid hormone?
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Loveballet
in
Osteoporosis Support
2 years ago
Sleep Aid
Anyone use children’s Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the children’s Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afib…
Anyone use children’s Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the children’s Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afib…
Jafib
in
Atrial Fibrillation Support
2 years ago
Fungus used in Chinese medicine improves sleep in rodents (and also impacts glutamine/glutamate)
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
Hidden
in
Restless Legs Syndrome
2 years ago
denosumab injections
Hi Everyone, I’m hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldn’t tolerate. They changed me to Anastrozole which I’m ok
Hi Everyone, I’m hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldn’t tolerate. They changed me to Anastrozole which I’m ok
Calamintha
in
Bone Health and Osteoporosis UK
2 years ago
Expiration date
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
EiCa
in
Pernicious Anaemia Society
2 years ago
Anyone clued up on bone health please?
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
Delgor
in
Thyroid UK
2 years ago
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