Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,340 public posts
Filter results
Clinical trial results & reviews of new treatments for CLL written in easy to understand terms
Anyone interested in reading a weekly update of the latest breaking news for CLL may want to sign up to get emails from this source: https://medivizor.com/?login=2 Here are the three links for the articles mentioned in the picture above: https://medivizor.com/view_article/29947395?id=31210 https://
Anyone interested in reading a weekly update of the latest breaking news for CLL may want to sign up to get emails from this source: https://medivizor.com/?login=2 Here are the three links for the articles mentioned in the picture above: https://medivizor.com/view_article/29947395?id=31210 https://
lankisterguy
Volunteer
in
CLL Support
5 years ago
'Sticky' cholesterol
As some of you will know, I am a newbie, and it's likely that the medication I was on to control my
leukaemia
has led to me developing all kinds of lovely side effects. Today at the lipid clinic, on reviewing my fasting blood test, the doctor asked if anyone had told me I had 'sticky' cholesterol.
As some of you will know, I am a newbie, and it's likely that the medication I was on to control my
leukaemia
has led to me developing all kinds of lovely side effects. Today at the lipid clinic, on reviewing my fasting blood test, the doctor asked if anyone had told me I had 'sticky' cholesterol.
SomersetJo
in
British Heart Foundation
5 years ago
Pre Fibrotic Myelodibrosis
Just wondered if there was anyone else in this group who has been diagnosed with prefibrotic Myelofibrosis . It was only discovered in 2016 and when I found I had it my platelets were 1600 and I had a low amount of fibrosis in my bone marrow. Apparently it may or may not develop into full Myelofibrosis
Just wondered if there was anyone else in this group who has been diagnosed with prefibrotic Myelofibrosis . It was only discovered in 2016 and when I found I had it my platelets were 1600 and I had a low amount of fibrosis in my bone marrow. Apparently it may or may not develop into full Myelofibrosis
kiwitraveller
in
MPN Voice
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Dr. Wang of Mayo on Richter's Transformation and my Irish Podcast on CAR-T
Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-lymphocytic-leukemia
Hi, This week we published my interview with Dr. Wang from Mayo about Richter’s Transformation. This is increasingly a problem as we are living longer with our CLL, but RT still has a dismal prognosis Here is that interview https://cllsociety.org/2019/06/ash-2018-dr-wang-on-richters-transformation-in-cll-chronic-lymphocytic-leukemia
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
Zanubrutinib-Gazyva Shows Promise for CLL/SLL
June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhibitor of Bruton’s tyrosine kinase (BTK). Gazyva is a monoclonal antibody designed to bind to CD20, a protein found on the surface of certain types of B cells, including malignant CLL or SLL cells. The safety and efficacy
June 25, 2019 Zanubrutinib (BGB-3111) is an investigational small molecule inhibitor of Bruton’s tyrosine kinase (BTK). Gazyva is a monoclonal antibody designed to bind to CD20, a protein found on the surface of certain types of B cells, including malignant CLL or SLL cells. The safety and efficacy
Jm954
Administrator
in
CLL Support
5 years ago
More CAR-T: Looking Back to Go Forward in CAR-T Cell Therapy in R/R CLL
Long-term data from a phase 1 study investigating anti-CD19 chimeric antigen receptor (CAR) T-cell (CAR-T) therapy in patients with R/R CLL showed that the product appeared to be safe, and that prior lymphodepleting chemotherapy is necessary. The data, published in JCI Insight, also brought to the forefront
Long-term data from a phase 1 study investigating anti-CD19 chimeric antigen receptor (CAR) T-cell (CAR-T) therapy in patients with R/R CLL showed that the product appeared to be safe, and that prior lymphodepleting chemotherapy is necessary. The data, published in JCI Insight, also brought to the forefront
Jm954
Administrator
in
CLL Support
5 years ago
Dr Brian Koffman recent Irish radio interview about CAR T
Dr Brian Koffman and his wife Patty have been very busy over the last few weeks with talks at EHA and for CLL Ireland national information day on June 8th. He also gave his time to be interviewed in Dublin with Newstalk radio to talk about his CLL and CAR T treatment. I'm delighted to be able to share
Dr Brian Koffman and his wife Patty have been very busy over the last few weeks with talks at EHA and for CLL Ireland national information day on June 8th. He also gave his time to be interviewed in Dublin with Newstalk radio to talk about his CLL and CAR T treatment. I'm delighted to be able to share
Irishcll
in
CLL Support
5 years ago
Recent diagnosis
Last November I was diagnosed with T cell large granulocytic
leukaemia
which was a bit of a shock as I have no real symptoms, perhaps I'm a bit tired but who, at 68 yrs, isn't. Anyway I'm on watch and wait which is good. Has anyone else got this? How are you?
Last November I was diagnosed with T cell large granulocytic
leukaemia
which was a bit of a shock as I have no real symptoms, perhaps I'm a bit tired but who, at 68 yrs, isn't. Anyway I'm on watch and wait which is good. Has anyone else got this? How are you?
GrannyTWest
in
CLL Support
5 years ago
Chronic Lymphocytic Leukemia: USA Updates in Diagnosis and Testing
Over the past decade, diagnosis, testing, and prognostic stratification have substantially improved, leading to revisions in guidelines from both the International Workshop on CLL and the National Comprehensive Cancer Network (NCCN). Among the most significant changes is the increasing essential prognostic
Over the past decade, diagnosis, testing, and prognostic stratification have substantially improved, leading to revisions in guidelines from both the International Workshop on CLL and the National Comprehensive Cancer Network (NCCN). Among the most significant changes is the increasing essential prognostic
Jm954
Administrator
in
CLL Support
5 years ago
ED after Leukaemia (CML)
Anyone part of this group had
Leukaemia
and bone marrow transplant and suffered ED?
Anyone part of this group had
Leukaemia
and bone marrow transplant and suffered ED?
Cryptogamia
in
Erectile Dysfunction Support
5 years ago
New Directions in CLL: A Review of 2019 Treatment Guideline Updates in USA
In December 2018, pivotal trial data were presented at the American Society of Hematology Annual Meeting that demonstrated promising results for the first-line treatment of patients with CLL and SLL. In particular, new courses of CLL care in several patient populations emerged from the findings of 3
In December 2018, pivotal trial data were presented at the American Society of Hematology Annual Meeting that demonstrated promising results for the first-line treatment of patients with CLL and SLL. In particular, new courses of CLL care in several patient populations emerged from the findings of 3
Jm954
Administrator
in
CLL Support
5 years ago
Exposure to Glyphosate (Round Up)? Any one believe this could be a factor in developing Non Hodgkins Lymphoma?
In my 20s, 30s, 40s and early 50s, I used Round Up intermittently in my gardens as Round Up was my go to treatment for controlling weeds. In hindsight, not such a good choice. But at the time, I thought this product is great! I just spray it on the weeds and in the next days the weeds die. Easy Peezy
In my 20s, 30s, 40s and early 50s, I used Round Up intermittently in my gardens as Round Up was my go to treatment for controlling weeds. In hindsight, not such a good choice. But at the time, I thought this product is great! I just spray it on the weeds and in the next days the weeds die. Easy Peezy
MrsMaggoo
in
CLL Support
5 years ago
Explainer: what’s actually in our blood?
Fortunately for us with CLL, our CLL/SLL cells are quite small - almost as small as red blood cells, hence the name [u]Small[/u] Lymphocytic
Leukaemia
for the variant of CLL/SLL where B-cells are barely present in the blood. Prof.
Fortunately for us with CLL, our CLL/SLL cells are quite small - almost as small as red blood cells, hence the name [u]Small[/u] Lymphocytic
Leukaemia
for the variant of CLL/SLL where B-cells are barely present in the blood. Prof.
AussieNeil
Partner
in
CLL Support
5 years ago
With a CLL diagnosis, knowing more about your immune system could save your life!
This is why: https://healthunlocked.com/cllsupport/posts/144101286/why-with-chronic-lymphocytic-
leukaemia
-cll-white-cell-percentages-can-be-dangerously-misleading.
This is why: https://healthunlocked.com/cllsupport/posts/144101286/why-with-chronic-lymphocytic-
leukaemia
-cll-white-cell-percentages-can-be-dangerously-misleading.
AussieNeil
Partner
in
CLL Support
5 years ago
Good news!
So I went to the hematologist today and for the first time in years my platelets were at normal levels. But my anemia is getting worse. He took me off hydroxyurea which I’ve been taking every day for over over 11 years. I also take 20 mgs of Jakafi every day. I have ET Jak2 positive and PV. Any thoughts
So I went to the hematologist today and for the first time in years my platelets were at normal levels. But my anemia is getting worse. He took me off hydroxyurea which I’ve been taking every day for over over 11 years. I also take 20 mgs of Jakafi every day. I have ET Jak2 positive and PV. Any thoughts
Cja1956
in
MPN Voice
5 years ago
Diagnosis for insurance
Hi all I've been trying to sort insurance for my holiday. I explained I have Essential thrombocytosis jak2 +. I tried to explain it comes under the unbrella of a myeloproliferative neoplasm which the operator didn't understand? He asked me if I had essential thromobythaemia and I said my diagnosis is
Hi all I've been trying to sort insurance for my holiday. I explained I have Essential thrombocytosis jak2 +. I tried to explain it comes under the unbrella of a myeloproliferative neoplasm which the operator didn't understand? He asked me if I had essential thromobythaemia and I said my diagnosis is
Camelian
in
MPN Voice
5 years ago
ASH 2018: Dr. Lindsey Roeker, on real world use of venetoclax for CLL (chronic lymphocytic leukemia)
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
Is venetoclax as safe and effective in the real world as compared to clinical trials? Read my ASH interview with Dr. Roeker to get the comforting news: https://cllsociety.org/2019/06/ash-2018-dr-lindsey-roeker-on-real-world-use-of-venetoclax-for-cll-chronic-lymphocytic-leukemia/
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Lab Visit
B cell and T cell signalling and how they regulate pathways in B and T cell
Leukaemia
and Lymphoma. How Molecular mechanisms control proliferation and survival in malignant lymphocytes and research into developing novel compounds to interfere with key cancer promoting pathways.
B cell and T cell signalling and how they regulate pathways in B and T cell
Leukaemia
and Lymphoma. How Molecular mechanisms control proliferation and survival in malignant lymphocytes and research into developing novel compounds to interfere with key cancer promoting pathways.
retired46
in
CLL Support
5 years ago
Starting my diagnostic journey
Hello. So glad to find this resource. I am a 68 year old woman in excellent general health. Yet I just learned two weeks ago that I have CLL, probably SLL. I’ve been working with a wonderful hematologist in nyc and hope to be seen soon at Sloan Kettering and Weill Cornell. Today my doctor said that my
Hello. So glad to find this resource. I am a 68 year old woman in excellent general health. Yet I just learned two weeks ago that I have CLL, probably SLL. I’ve been working with a wonderful hematologist in nyc and hope to be seen soon at Sloan Kettering and Weill Cornell. Today my doctor said that my
Sunfishjoy
in
CLL Support
5 years ago
1
...
83
84
85
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1834 results
MPN Voice
857 results
Leukaemia Support
270 results
View top 10 communities
Sort by
Most Relevant
Newest