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Hydroxycarbamide or not!
Hello, I am new to Health Unlocked. I was diagnosed with Essential Thrombocythemia in June 5 days before having a Breast Lumpectomy. I have been prescribed Letrozole hormone therapy for 5 years for this and on reading side effects from Hydroxycarbamide AND Letrozole I am very undecided whether to continue
Hello, I am new to Health Unlocked. I was diagnosed with Essential Thrombocythemia in June 5 days before having a Breast Lumpectomy. I have been prescribed Letrozole hormone therapy for 5 years for this and on reading side effects from Hydroxycarbamide AND Letrozole I am very undecided whether to continue
azaelea
in
MPN Voice
6 years ago
NHSE publish positive review outcome for Ibrutinib use in relapsed CLL
Leukaemia
Care
Leukaemia
Care
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Platelets & me
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
conquerator2
in
ITP Support Association
6 years ago
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polycythemia what foods or supplements should we Avoid ?
polycythemia Vera , b12 ,folate , vit c , soya products
polycythemia Vera , b12 ,folate , vit c , soya products
nightssky
in
MPN Voice
6 years ago
FDA Approves Duvelisib for CLL and Follicular Lymphoma - Sep 24, 2018
FDA Approves Duvelisib for CLL and Follicular Lymphoma Published: Monday, Sep 24, 2018 The FDA has approved duvelisib (Copiktra) for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL) or relapsed/refractory follicular lymphoma. - The
FDA Approves Duvelisib for CLL and Follicular Lymphoma Published: Monday, Sep 24, 2018 The FDA has approved duvelisib (Copiktra) for the treatment of patients with relapsed/refractory chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL) or relapsed/refractory follicular lymphoma. - The
lankisterguy
Volunteer
in
CLL Support
6 years ago
T Cell treatment
The
leukaemia
was back with a vengeance! He is now having T Cell treatment. Has anyone gone through this treatment regime either as patient or relative who can give me a personal insight as to what I might expect during and as a result of T Cell treatment? Many thanks.
The
leukaemia
was back with a vengeance! He is now having T Cell treatment. Has anyone gone through this treatment regime either as patient or relative who can give me a personal insight as to what I might expect during and as a result of T Cell treatment? Many thanks.
Marilyn1959
in
Leukaemia Support
6 years ago
Tasigna (nilotinib) and clinical trials
The drug Tasigna (generic name nilotinib) is licensed for the treatment of
leukaemia
(blood cancer). Some cancer patients taking Tasigna have experienced extremely serious side effects and anyone taking it should be carefully monitored.
The drug Tasigna (generic name nilotinib) is licensed for the treatment of
leukaemia
(blood cancer). Some cancer patients taking Tasigna have experienced extremely serious side effects and anyone taking it should be carefully monitored.
psphelpline
Administrator
in
PSP Association
6 years ago
bone marrow biopsy
I.m new here 73 men on the 9th year with cll . and started to see some limp nodes in my body doctor wants me to have bone marrow biopsy is anybody knows if its a good idea or anybody done it. thank you for your help good bless.
I.m new here 73 men on the 9th year with cll . and started to see some limp nodes in my body doctor wants me to have bone marrow biopsy is anybody knows if its a good idea or anybody done it. thank you for your help good bless.
wonderfull
in
CLL Support
6 years ago
Weight gain and Jakafi 20mg
needing to know how much weight is gined while on Jakafi 20mg
needing to know how much weight is gined while on Jakafi 20mg
rkhabtec
in
MPN Voice
6 years ago
Erythropoietin injections. Immature cells.
Hello. Has anyone had erythropoietin injections? If so, what can you tell us about benefits/side effects. My husband’s hgb is going down and his consultant mentioned these injections as a possible treatment. He has post PV Myelofibrosis. On Ruxolitinib for a year but haematologist does not think the
Hello. Has anyone had erythropoietin injections? If so, what can you tell us about benefits/side effects. My husband’s hgb is going down and his consultant mentioned these injections as a possible treatment. He has post PV Myelofibrosis. On Ruxolitinib for a year but haematologist does not think the
Fika500
in
MPN Voice
6 years ago
A phase II study of ruxolitinib in combination with azacytidine for MF Patients
http://www.bloodjournal.org/content/early/2018/09/05/blood-2018-04-846626?sso-checked=true ‘ A greater than 50% reduction in palpable spleen length at 24 weeks and at any time on the study was achieved in 62% and 71% of the evaluable patients, respectively. Among patients who achieved a >50% reduction
http://www.bloodjournal.org/content/early/2018/09/05/blood-2018-04-846626?sso-checked=true ‘ A greater than 50% reduction in palpable spleen length at 24 weeks and at any time on the study was achieved in 62% and 71% of the evaluable patients, respectively. Among patients who achieved a >50% reduction
Paul123456
in
MPN Voice
6 years ago
Anyone with Post ET/MF & Budd Chiari?
I'm 50 and was diagnosed with ET at 22. I took Hydroxyurea and Agreline (sp?) early on but after several DVT's, embolism and PE's I was put on Warafin and Allopurinol and basically monitored until my MF symptoms got "bad enough to treat". About 15 years ago I had blood clots form in my liver and 7
I'm 50 and was diagnosed with ET at 22. I took Hydroxyurea and Agreline (sp?) early on but after several DVT's, embolism and PE's I was put on Warafin and Allopurinol and basically monitored until my MF symptoms got "bad enough to treat". About 15 years ago I had blood clots form in my liver and 7
KADS
in
MPN Voice
6 years ago
Saturday 8th September, Malvern 'Spot Leukaemia', fun dog show, picnic and dog walk
(by the first of three free car parks on Cockshot road)
For more information call us on 01905 755977 of email us here: info@leukaemiacare.org.uk
List of Malvern ‘Spot
’ dog show/walk fun categories, sponsors and prizes: 1.
(by the first of three free car parks on Cockshot road)
For more information call us on 01905 755977 of email us here: info@leukaemiacare.org.uk
List of Malvern ‘Spot
’ dog show/walk fun categories, sponsors and prizes: 1.
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
CLL Society Weekly Alert
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=5ba78127-52a5-4bc2-af6c-33d6c0c6710a - Website The Basics Living Well with CLL - Hello, Friends and Supporters of the CLL Society. Blood Cancer Awareness Month takes place every September. The CLL Society joins 100s of other nonprofits
http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=5ba78127-52a5-4bc2-af6c-33d6c0c6710a - Website The Basics Living Well with CLL - Hello, Friends and Supporters of the CLL Society. Blood Cancer Awareness Month takes place every September. The CLL Society joins 100s of other nonprofits
lankisterguy
Volunteer
in
CLL Support
6 years ago
Useful read for MF patients on or considering Interferon/Pegasys
Lengthy piece of research and I need to try to understand certain aspects better. It discusses impact of Inf on high risk mutations plus impact of multiple mutations re progression to AML. Of interest to Steve, INF reduces high risk mutations such as ASLX1 to same level as other non Driver mutations
Lengthy piece of research and I need to try to understand certain aspects better. It discusses impact of Inf on high risk mutations plus impact of multiple mutations re progression to AML. Of interest to Steve, INF reduces high risk mutations such as ASLX1 to same level as other non Driver mutations
Paul123456
in
MPN Voice
6 years ago
Progression question
So, if the hydroxyurea keeps platelets in check, and the clopidogrel (and oodles of water) reduce platelet “stickiness”, and since the vast majority of ET doesn’t become fibrosis or
leukaemia
, does most ET just stay as it is - hence the “normal life span” prognosis?
So, if the hydroxyurea keeps platelets in check, and the clopidogrel (and oodles of water) reduce platelet “stickiness”, and since the vast majority of ET doesn’t become fibrosis or
leukaemia
, does most ET just stay as it is - hence the “normal life span” prognosis?
WileyFrench
in
MPN Voice
6 years ago
Is Fenbendazole useful in treating CLL?
I'm relatively new to CLL, having been diagnosed a little over a year ago. I'm currently in a Wait and Watch status, but I've been curious about how we are progressing with treatments. In doing a little research unrelated to CLL I ran across an article from a man that had Stage 4 lung cancer and was
I'm relatively new to CLL, having been diagnosed a little over a year ago. I'm currently in a Wait and Watch status, but I've been curious about how we are progressing with treatments. In doing a little research unrelated to CLL I ran across an article from a man that had Stage 4 lung cancer and was
Cobra73
in
CLL Support
6 years ago
Saturday 8th September, Malvern 'Spot Leukaemia', fun dog show, picnic and dog walk
(by the first of three free car parks on Cockshot road)
For more information call us on 01905 755977 of email us here: info@leukaemiacare.org.uk
List of Malvern ‘Spot
Leukaemia
’ dog show/walk fun categories, sponsors and prizes: 1.
(by the first of three free car parks on Cockshot road)
For more information call us on 01905 755977 of email us here: info@leukaemiacare.org.uk
List of Malvern ‘Spot
Leukaemia
’ dog show/walk fun categories, sponsors and prizes: 1.
HAIRBEAR_UK
Administrator
in
CLL Support
6 years ago
DIAGNOSIS today cll/sll
Got my "official " diagnosis today....even though I full suspected it. I will have a baseline ct scan the end of the month then see my dr in Jan 2019. We will do blood draws every 4 mos. WBC actually reduced from 42.6 to 30.9 in 5 weeks and absolute lymphocytes reduced from 32 to 22. Still high but
Got my "official " diagnosis today....even though I full suspected it. I will have a baseline ct scan the end of the month then see my dr in Jan 2019. We will do blood draws every 4 mos. WBC actually reduced from 42.6 to 30.9 in 5 weeks and absolute lymphocytes reduced from 32 to 22. Still high but
Pat351v
in
CLL Support
6 years ago
28 Days on Ibrutinib
Yesterday was exactly 4 weeks since beginning Ibrutinib for my
leukaemia
. It’s a journey I should have started many months before I did.
Yesterday was exactly 4 weeks since beginning Ibrutinib for my
leukaemia
. It’s a journey I should have started many months before I did.
Mick491
in
CLL Support
6 years ago
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