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Can you manage the psychological impact of treatment relapse?
We will be Joined on the panel by:
Anne Crook, Counsellor / Psychotherapist, Psycho-oncology, The Christie NHS Foundation Trust Patient in treatment remission - TBC Patient with experience of chronic
leukaemia
treatment relapse - TBC Patient with experience of acute
leukaemia
treatment relapse
We will be Joined on the panel by:
Anne Crook, Counsellor / Psychotherapist, Psycho-oncology, The Christie NHS Foundation Trust Patient in treatment remission - TBC Patient with experience of chronic
leukaemia
treatment relapse - TBC Patient with experience of acute
leukaemia
treatment relapse
HAIRBEAR_UK
in
Leukaemia Support
2 years ago
ET is LEUKAEMIA???
Since the main problem is the bone marrow for ET Is it
leukaemia
??? Is it curable?
Since the main problem is the bone marrow for ET Is it
leukaemia
??? Is it curable?
shiela23
in
MPN Voice
2 years ago
Night cramps
I have been having horrendous leg cramps every night - they move around from ankle to leg front or back of leg. My feet go into spasm. I have Myelofibrosis and am on Ruxolitinib. I am not getting much sleep. Can anyone help? SkipperL
I have been having horrendous leg cramps every night - they move around from ankle to leg front or back of leg. My feet go into spasm. I have Myelofibrosis and am on Ruxolitinib. I am not getting much sleep. Can anyone help? SkipperL
skipperL
in
MPN Voice
2 years ago
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Hurray, Three Cheers for Venclexta & Rituxan
After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, including 8 rounds of chemo/immunotherapy, I have been found to have no residual cancer cells after a bone marrow biopsy at Dana Farber on July 21, 2022! Three cheers for 6 doses of Rituxan and 24 months of Venclexta!! I have
After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, including 8 rounds of chemo/immunotherapy, I have been found to have no residual cancer cells after a bone marrow biopsy at Dana Farber on July 21, 2022! Three cheers for 6 doses of Rituxan and 24 months of Venclexta!! I have
KevinCLLITP
in
CLL Support
2 years ago
Advanced blood tests at 3 months after diagnosis.
Since the rush at the hematologists at the clinic where I will possibly be treated is sometimes big and now is the vacation season, I could not make an appointment earlier than August 2nd to see my hematologist (then he returns from vacation possibly). So I decided to get ahead of the events and show
Since the rush at the hematologists at the clinic where I will possibly be treated is sometimes big and now is the vacation season, I could not make an appointment earlier than August 2nd to see my hematologist (then he returns from vacation possibly). So I decided to get ahead of the events and show
Yalokin
in
CLL Support
2 years ago
Any help out there? I have CMML Leukaemia.
I just wondered if anyone can help me, it is a very rare type and I am finding it so difficult to find anyone who knows if there is any treatment for it, I know the only cure would be a stem cell transplant....as it is with all
Leukaemia
.
I just wondered if anyone can help me, it is a very rare type and I am finding it so difficult to find anyone who knows if there is any treatment for it, I know the only cure would be a stem cell transplant....as it is with all
Leukaemia
.
yvonden
in
Leukaemia Support
2 years ago
Тhe first study to provide a comprehensive description of the epidemiology and global burden of CLL worldwide
quote CLL-related incidence, death, DALY burden and corresponding change trends CLL-related incidence and its change trends Globally, during the last 30 years, CLL-related incidence cases increased significantly from 40,537 in 1990 to 103,467 in 2019, with age-standardized incidence rate (ASIR) rising
quote CLL-related incidence, death, DALY burden and corresponding change trends CLL-related incidence and its change trends Globally, during the last 30 years, CLL-related incidence cases increased significantly from 40,537 in 1990 to 103,467 in 2019, with age-standardized incidence rate (ASIR) rising
Yalokin
in
CLL Support
2 years ago
EPO levels in ET and prognostics
We’ve seen some discussion of EPO levels and PV Dx. I am one of the members who has an unspecific mix of ET/PV and curious about EPO. I found a related report. Quick summary of the report: -Low EPO is not unusual in ET -Low EPO ET has lower MF transformation -Low EPO ET has higher PV progression
We’ve seen some discussion of EPO levels and PV Dx. I am one of the members who has an unspecific mix of ET/PV and curious about EPO. I found a related report. Quick summary of the report: -Low EPO is not unusual in ET -Low EPO ET has lower MF transformation -Low EPO ET has higher PV progression
EPguy
in
MPN Voice
2 years ago
very low ferritin with high iron saturation
I’m CLL , on Imbruvica since December 2022. Just received new labs. ferritin 13.00 ng/ml (normal range 24-336) Iron saturation 41% (normal range It appears contradictory to me. Iron level normal Iron binding capacity normal. Any insight is appreciated. Thanks
I’m CLL , on Imbruvica since December 2022. Just received new labs. ferritin 13.00 ng/ml (normal range 24-336) Iron saturation 41% (normal range It appears contradictory to me. Iron level normal Iron binding capacity normal. Any insight is appreciated. Thanks
mr1971
in
CLL Support
2 years ago
Besremi and Hematocrit Control
Closing in on five months on Besremi and my WBC and PLT's are now in the "normal" range, but HCT control continues to be elusive. I did get a 250ml PB on May 21, hoping that along with higher dose of Besremi (145) would knock the HCT down. The result? Exactly the same. 43.6 (My goal is 42 or lower
Closing in on five months on Besremi and my WBC and PLT's are now in the "normal" range, but HCT control continues to be elusive. I did get a 250ml PB on May 21, hoping that along with higher dose of Besremi (145) would knock the HCT down. The result? Exactly the same. 43.6 (My goal is 42 or lower
Elizka
in
MPN Voice
2 years ago
Excellent results of Bomedemstat in the Phase 2 study’s ET and Myelofibrosis..
Excellent results of Bomedemstat in the Phase 2 study’s ET and Myelofibrosis.. I think finally a very good successor for Hydrea.. This drug is not carcinogenetic and induces the mpn mutations to cell death. (See conference posters downloadlinks) on: https://imagobio.com/our-science/#pubs
Excellent results of Bomedemstat in the Phase 2 study’s ET and Myelofibrosis.. I think finally a very good successor for Hydrea.. This drug is not carcinogenetic and induces the mpn mutations to cell death. (See conference posters downloadlinks) on: https://imagobio.com/our-science/#pubs
Paul1993et
in
MPN Voice
2 years ago
Positivity
But illnesses like
Leukaemia
influence the thought process for such a long time that it can be diff at times to see the positive. It is very important though to try to look for something positive in each day, to try to change that negative mindset even slightly and help with the long days to come.
But illnesses like
Leukaemia
influence the thought process for such a long time that it can be diff at times to see the positive. It is very important though to try to look for something positive in each day, to try to change that negative mindset even slightly and help with the long days to come.
RossH
in
Leukaemia Support
2 years ago
New to CLL so confused
Hi! My husband is currently being diagnosed with CLL 55 years old Very healthy Had a routine blood test with WBC at 17,000 And doctor said Probably CLL sent us to Oncologist Oncologist did Flow and called to say positive Waiting on FISH test My husband does not feel one bit sick All other blood
Hi! My husband is currently being diagnosed with CLL 55 years old Very healthy Had a routine blood test with WBC at 17,000 And doctor said Probably CLL sent us to Oncologist Oncologist did Flow and called to say positive Waiting on FISH test My husband does not feel one bit sick All other blood
Puglove55
in
CLL Support
2 years ago
Has anyone moved from Hydroxy to Ruxolitinib.
I have an appointment next week to talk about changing my meds, because I have night sweats and bone ache for over 5 years now and it not getting better, the doctors are saying my body is to used to Hydroxy. I’ve had another bone marrow biopsy done, just waiting for the results and going to make plans
I have an appointment next week to talk about changing my meds, because I have night sweats and bone ache for over 5 years now and it not getting better, the doctors are saying my body is to used to Hydroxy. I’ve had another bone marrow biopsy done, just waiting for the results and going to make plans
wendycu
in
MPN Voice
2 years ago
High Alkaline Phosphatase
I had bloodwork recently, for a physician other than my CLL Specialist, who told me today that one of the abnormal readings was Alkaline Phosphatase. He suggested that I see a Gastroenterologist. My reading was 222. I know it is a liver enzyme, and on a recent six month visit with my local CLL doctor
I had bloodwork recently, for a physician other than my CLL Specialist, who told me today that one of the abnormal readings was Alkaline Phosphatase. He suggested that I see a Gastroenterologist. My reading was 222. I know it is a liver enzyme, and on a recent six month visit with my local CLL doctor
wizzard166
in
CLL Support
2 years ago
Update 6.5
Based on the recent increase in HCT (05/11=46.3%) we decided to up the Besremi dose from 110mcg to 150mcg. First 150mcg dose was 05/25. HCT on 05/27 was 46.5% - too soon for the increased dose to be effective. We are planning to give the higher dose some time to see how it works. If the HCT does
Based on the recent increase in HCT (05/11=46.3%) we decided to up the Besremi dose from 110mcg to 150mcg. First 150mcg dose was 05/25. HCT on 05/27 was 46.5% - too soon for the increased dose to be effective. We are planning to give the higher dose some time to see how it works. If the HCT does
hunter5582
in
MPN Voice
2 years ago
lactase dehydrogenase
Did you all have this blood test. I have looked at my blood tests for 2 weeks time and it is included prior to my appointment so I think my consultant is being thorough maybe. What reason would she do this test for? Could be due to persistent Leukocytosis as well. Remember I'm not diagnosed with anything
Did you all have this blood test. I have looked at my blood tests for 2 weeks time and it is included prior to my appointment so I think my consultant is being thorough maybe. What reason would she do this test for? Could be due to persistent Leukocytosis as well. Remember I'm not diagnosed with anything
Notdiagnosed
in
MPN Voice
2 years ago
3.30pm BST Fri 24th June - webinar - Are there ways to help cope with a leukaemia diagnosis?
The emotional impact of a
leukaemia
diagnosis can be just as debilitating as the physical effects, sometimes more so. Diagnosis does not only affect the emotional health of diagnosed patients but also affects the psychological health of their families and caregivers.
The emotional impact of a
leukaemia
diagnosis can be just as debilitating as the physical effects, sometimes more so. Diagnosis does not only affect the emotional health of diagnosed patients but also affects the psychological health of their families and caregivers.
HAIRBEAR_UK
Founder Admin
in
CLL Support
2 years ago
3.30pm Fri 24th June - webinar - Are there ways to help cope with a leukaemia diagnosis?
The emotional impact of a
leukaemia
diagnosis can be just as debilitating as the physical effects, sometimes more so. Diagnosis does not only affect the emotional health of diagnosed patients but also affects the psychological health of their families and caregivers.
The emotional impact of a
leukaemia
diagnosis can be just as debilitating as the physical effects, sometimes more so. Diagnosis does not only affect the emotional health of diagnosed patients but also affects the psychological health of their families and caregivers.
HAIRBEAR_UK
in
Leukaemia Support
2 years ago
2 months on Calquence
Did it take longer than 2 months on Calquence for any of you to start seeing your ALC decline and your RBC increase (after that initial spike and fall)? I'm 60 days into this and after the initial ALC spike and RBC drop, they really haven't budged since (not increasing anymore but just staying high)
Did it take longer than 2 months on Calquence for any of you to start seeing your ALC decline and your RBC increase (after that initial spike and fall)? I'm 60 days into this and after the initial ALC spike and RBC drop, they really haven't budged since (not increasing anymore but just staying high)
lpac
in
CLL Support
2 years ago
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