Night cramps

[skipperL]

I have been having horrendous leg cramps every night - they move around from ankle to leg front or back of leg. My feet go into spasm. I have Myelofibrosis and am on Ruxolitinib. I am not getting much sleep. Can anyone help? SkipperL

[Barbiebreath]

Apple cider vinegar helps with my leg cramps. I don’t like the taste so I take it in pill form.

[skipperL in reply to Barbiebreath]

Thank you so much - I wasn’t aware you could get it in a pill- what dose do you take?

[Barbiebreath in reply to skipperL]

450 mg.

[skipperL in reply to Barbiebreath]

Thank you again!

[hunter5582]

I had the same problem due to magnesium deficiency. It stopped as soon as I started on magnesium supplements. Iron deficiency can also cause leg cramps.

Suggest you let your MPN care team know what you are experiencing and request a nutritional analysis. I titrated my dose based on measured results for Mg and Vit D.

Hope you find relief soon.

[skipperL in reply to hunter5582]

Thanks Hunter. I had nutritional tests recently and my Magnesium was fine! I wish the solution was that easy!

[kitttycat]

Exercise and stretches for your legs should help you.

[skipperL in reply to kitttycat]

I shall definitely exercise more!

[kitttycat in reply to skipperL]

I would recommend the best thing to do is to go to a physiotherapist and ask for exercises for the particular issue that you have, I had an issue with my quadriceps years ago and to this day still do the exercises, because they worked. Periodically I still ask a physiotherapist for exercises and I continue to use them in a gym as well as well as some other. Stretches help your legs a lot.

[Uzza]

Hi...

Like Hunter, I had similar deficiencies and when I started Magnesium, the cramps stopped.

[skipperL in reply to Uzza]

I think I’d better take magnesium supplements even though I don’t seem deficient - I have bought cider vinegar tablets so will try those first - thank you

[StreetPastor]

I was getting terrible restless legs that kept me awake. After bloods tests I was put on Colealciferol 800 units. One a day. Much better. Sometimes irritation in the evening but sleeping with very occasional waking from restless legs. Think it was my vitamin D that was low but when I googled it said that this can cause restless legs. Hope this is helpful for you.

[skipperL in reply to StreetPastor]

Thank you - it seems many of us have disturbed nights - I spent most of last night in agony trying to allay the leg pain, but today I shall start the cider vinegar tablets - I am not sure how many to take to start with - maybe 2 per day - I will report back if there is any improvement. If not - lots of exercises! SkipperL

[Davesutts]

I take tablets called pregabalin, 2 in the morning and 2 at night, they are very good for legs pains / cramps

[skipperL in reply to Davesutts]

Thanks Davesutts / I shall add your remedy to the growing list of things to try! Do you get it over the counter?

[Davesutts in reply to skipperL]

No I get it as a free prescription through pharmacy to you. I’m based in the uk

[skipperL in reply to Davesutts]

I will ask at my local pharmacy. I am based in London. Thanks

[Merry6]

For me, an iron infusion stopped the leg cramps. Had it last November and still no cramps after suffering for years.

[skipperL in reply to Merry6]

Thanks Merry6- I have blood transfusions every 3 weeks - not sure if that’s the same as iron infusions?

[Chemo01]

Hi a good few years ago I suffered terribly with night cramps I have ET and now MF and have been on Hydroxy for over 22 years. my GP prescribed Quinine Bisulphate which I have been on ever since it stopped the night cramps instantly hope this helps cheers,

[skipperL in reply to Chemo01]

I shall ask my Dr - people used to drink tonic water for the Quinine - but I’m not sure it still contains any. thank you

[Itch]

hello, I truly sympathise with the cramps; I seem to get them in any muscle that I stretch. As others I find taking magnesium citrate very beneficial. When things are really bad, heated blanket over the area helps along with keeping well hydrated. All the best