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Splenomegaly in Polycythemia Vera: Its Clinical Significance and its Relation to Symptoms
Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark, associated with symptoms, affected clinical trial design, and influenced governmental approval of ropeginterferon α-2b. Whether SPML affects myelofibrosis-free and overall survival (MFS and OS) is unknown. Because of uncertainty
Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark, associated with symptoms, affected clinical trial design, and influenced governmental approval of ropeginterferon α-2b. Whether SPML affects myelofibrosis-free and overall survival (MFS and OS) is unknown. Because of uncertainty
Manouche
in
MPN Voice
2 years ago
Have I got Raynauds🤔
I should add that I have CLL (chronic lymphocytic
leukaemia
) but not on any treatment as I'm very early on in my journey with it (4.5 yrs). I presume I have Raynauds, but would this be because my immune system is compromised and so am I more susceptible to it?
I should add that I have CLL (chronic lymphocytic
leukaemia
) but not on any treatment as I'm very early on in my journey with it (4.5 yrs). I presume I have Raynauds, but would this be because my immune system is compromised and so am I more susceptible to it?
sinbad100
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active. Thus far this drug combination has produced durable remissions as a frontline treatment in patients with TP53 mutation CLL and has been generally well tolerated,
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active. Thus far this drug combination has produced durable remissions as a frontline treatment in patients with TP53 mutation CLL and has been generally well tolerated,
spi3
in
CLL Support
2 years ago
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Interesting article in the news ,NHL diagnosis for military personnel
[i] i thought this was a rather interesting article about the officers working at the Montana nuclear site getting Leukemia . here is a portion of the article ...maybe some of us are more susceptible to the radiation from our xrays and ct scans then others ... ----- "The US military is looking
[i] i thought this was a rather interesting article about the officers working at the Montana nuclear site getting Leukemia . here is a portion of the article ...maybe some of us are more susceptible to the radiation from our xrays and ct scans then others ... ----- "The US military is looking
craterlake
in
CLL Support
2 years ago
Critical illness cover for ET
The term malignant tumour includes
leukaemia
, sarcoma and lymphoma except cutaneous lymphoma (lymphoma confined to the skin).
The term malignant tumour includes
leukaemia
, sarcoma and lymphoma except cutaneous lymphoma (lymphoma confined to the skin).
Morris941
in
MPN Voice
2 years ago
Sample from ASH 2022, CALR antibody
Progress on the immune therapy we've discussed: "In a mouse model of essential thrombocythemia, INCA033989 selectively decreased levels of mutant CALR-positive platelets, re-established normal megakaryopoiesis, and selectively targeted mutant CALR disease-initiating clones. " https://www.cancertherapyadvisor.com
Progress on the immune therapy we've discussed: "In a mouse model of essential thrombocythemia, INCA033989 selectively decreased levels of mutant CALR-positive platelets, re-established normal megakaryopoiesis, and selectively targeted mutant CALR disease-initiating clones. " https://www.cancertherapyadvisor.com
EPguy
in
MPN Voice
2 years ago
Astonishing' Results: Skip Salvage Chemo,Go Straight to HSCT
»NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
»NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
Manouche
in
MPN Voice
2 years ago
Lymphoma & CLL Highlights Virtual Workshop Jan 19, 2023 03:00 PM in London
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop Time Jan 19, 2023 03:00 PM in London 10:00–13:00 EST/ 15:00–18:00 GMT/ 16:00–19:00 CET The Post-ASH 2022 Lymphoma & CLL Highlights Virtual Workshop will feature a series of short presentations on lymphoma and chronic lymphocytic leukemia (CLL
lankisterguy
Volunteer
in
CLL Support
2 years ago
Answers Now: Should I Still Watch and Wait?Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT
Answers Now: Should I Still Watch and Wait? Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT Register here: https://www.patientpower.info/events/answers-now-should-i-still-watch-and-wait Join us Wednesday, January 25, 2023 at 3:00pm ET/12:00pm PT for a live, virtual, chronic lymphocytic leukemia
Answers Now: Should I Still Watch and Wait? Wednesday, January 25th, 2023 at 3:00pm ET/12:00pm PT Register here: https://www.patientpower.info/events/answers-now-should-i-still-watch-and-wait Join us Wednesday, January 25, 2023 at 3:00pm ET/12:00pm PT for a live, virtual, chronic lymphocytic leukemia
lankisterguy
Volunteer
in
CLL Support
2 years ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
lankisterguy
Volunteer
in
CLL Support
2 years ago
Day +99
Hello friends, Well I am almost at 100 days post transplant and feeling surprisingly well under the circumstances. My check ups have been reduced to once a week and my blood counts are slowly improving. Hb currently at 89 and platelets at 46 so my donor cells are working hard and I haven't needed a
Hello friends, Well I am almost at 100 days post transplant and feeling surprisingly well under the circumstances. My check ups have been reduced to once a week and my blood counts are slowly improving. Hb currently at 89 and platelets at 46 so my donor cells are working hard and I haven't needed a
Otterfield
in
MPN Voice
2 years ago
Off patent drug possibility for Covid. Ursodeoxycholic acid (UDCA), an approved liver disease drug, reduces ACE2 levels on lab-grown cells
There seems to be a deal of excitement in certain media areas about research involving UK, European and US researchers on a covid treatment drug. The one in question is an off patent drug ursodeoxycholic acid currently used to treat liver damage so a re-purposing rather than development of a new drug
There seems to be a deal of excitement in certain media areas about research involving UK, European and US researchers on a covid treatment drug. The one in question is an off patent drug ursodeoxycholic acid currently used to treat liver damage so a re-purposing rather than development of a new drug
Eucalyptus22
in
CLL Support
2 years ago
EXTREME bone pain with Neupogen injections, advise welcome!
Has anyone experienced extreme pain with Neupogen GCSF injections? My husband has received 2 out of 4 injections and is in agonizing bone pain. His specialist recommended a hot bath, Claritin, and Tylenol. I also have a heating pad on his back. Just wondering how long this will last and how he is going
Has anyone experienced extreme pain with Neupogen GCSF injections? My husband has received 2 out of 4 injections and is in agonizing bone pain. His specialist recommended a hot bath, Claritin, and Tylenol. I also have a heating pad on his back. Just wondering how long this will last and how he is going
lisakc1
in
CLL Support
2 years ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
2 years ago
Fully Funded Ibrutinib is finally coming to New Zealand!
Venetoclax + Rituximab is already fully funded here ""Ibrutinib to be funded in New Zealand People with chronic lymphocytic
leukaemia
(CLL) and certain clinical circumstances will have access to funded ibrutinib (Imbruvica) from 1 December 2022.
Venetoclax + Rituximab is already fully funded here ""Ibrutinib to be funded in New Zealand People with chronic lymphocytic
leukaemia
(CLL) and certain clinical circumstances will have access to funded ibrutinib (Imbruvica) from 1 December 2022.
morepork
in
CLL Support
2 years ago
Looking for more wholistic answers to dealing with ITP
Hi, I am newly diagnosed since Aug. 2022 with ITP and have had two crashes with platelet levels in the single digits twice now. Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month. From everything I have read, I cannot find
Hi, I am newly diagnosed since Aug. 2022 with ITP and have had two crashes with platelet levels in the single digits twice now. Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month. From everything I have read, I cannot find
bonandmick
in
ITP Support Association
2 years ago
Exercise is the fountain of youth
I always loved the natural high that exercise brings but I never really knew how totally therapeutic it is. I was always the Captain in Team Sports growing up & just generally active. Things slowed down during college & never got added to my ‘adult’ life of creating a career & family. Anyway, after
I always loved the natural high that exercise brings but I never really knew how totally therapeutic it is. I was always the Captain in Team Sports growing up & just generally active. Things slowed down during college & never got added to my ‘adult’ life of creating a career & family. Anyway, after
CoachVera55
in
CLL Support
2 years ago
Having to start treatment
CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm going to need to start treatment. The two options I am being told are Ibrutinib or Venetoclax. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication. And has
CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm going to need to start treatment. The two options I am being told are Ibrutinib or Venetoclax. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication. And has
Mog811
in
CLL Support
2 years ago
Lymphatic Drainage by Vibration Platforms
The attached article reports apoptosis of cancer cells by low frequency vibration (not CLL & experiment was in-vitro) Vibration platforms claim multiple fold increase in lymphatic circulation and drainage. Lymphatic drainage is good for CLL. Can there be a small chance that vibration platforms
The attached article reports apoptosis of cancer cells by low frequency vibration (not CLL & experiment was in-vitro) Vibration platforms claim multiple fold increase in lymphatic circulation and drainage. Lymphatic drainage is good for CLL. Can there be a small chance that vibration platforms
nuji
in
CLL Support
2 years ago
(Originally posted by Hunter) "Recent forum presented by our friends at MPN Advocacy & Education International"
Hunter found this presentation: https://healthunlocked.com/mpnvoice/posts/148836859/boston-mpn-patient-caregiver-program-presented-by-mpn-advocacy-education-international Great find. I went through the videos and have some notes/comments. I figured a top post should be most helpful. --
Dr. Raagit
Hunter found this presentation: https://healthunlocked.com/mpnvoice/posts/148836859/boston-mpn-patient-caregiver-program-presented-by-mpn-advocacy-education-international Great find. I went through the videos and have some notes/comments. I figured a top post should be most helpful. --
Dr. Raagit
EPguy
in
MPN Voice
2 years ago
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