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methadone or buprenorphine
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7 hours per night but very broken sleep with breakthrough RLS during the night. I think I may still be feeling some effects of augmentation. On
Mongolia2020
in
Restless Legs Syndrome
3 months ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
8 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
8 months ago
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Elevated LDH
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
leahleah
in
CLL Support
8 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
8 months ago
Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
3 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
8 months ago
Next NoSilverBullet Zoom webinar on 13th of November: Interview of Dr Wayne Markman, CEO of Symbyx, on "Light therapy for Parkinson's".
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 8.00pm London time on Monday the 13th of November. I will have the pleasure of interviewing Dr Wayne Markman, CEO of Symbyx, on "Light therapy for Parkinson's" Please use the Eventbrite link below to register
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 8.00pm London time on Monday the 13th of November. I will have the pleasure of interviewing Dr Wayne Markman, CEO of Symbyx, on "Light therapy for Parkinson's" Please use the Eventbrite link below to register
Michel0220
in
Cure Parkinson's
9 months ago
Triggers
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
If I do everything right--which I don't know exactly what that is--I will have a great sleep with my current pregabalin/morphine routine. BUT, not for not trying, I can't figure out my triggers well enough, or, I guess, it could be that I just don't have PLMs every night (although I did before I got
wantokporo
in
Restless Legs Syndrome
3 months ago
Kellgren Centre in Manchester retains LUPUS UK Centre of Excellence award
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Confused and getting worse... Update
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
12stkeepgoing
in
Thyroid UK
6 months ago
Elbow
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
65_women
in
PMRGCAuk
6 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
6 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
8 months ago
Symptoms but blood tests Normal?
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
jennylouise91
in
Thyroid UK
6 months ago
Collapse then AF
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
ian16527
in
AF Association
6 months ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
8 months ago
Is it a choice? Pacemaker v Implanted defibrillator?
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Chinkoflight
in
Atrial Fibrillation Support
6 months ago
Legal Advice?
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
Hi All, Although this post is not MS-related, I wanted to reach out to my MSAA Community for their input. Perhaps someone here can point me in the right direction, as I don't really have the money to hire an attorney. Unfortunately, this situation doesn't lend itself to any "free advice and/or attorneys
DM0329
in
My MSAA Community
8 months ago
Research Lounge FREE Online Event: Does knowledge of liver scarring affect drinking behaviour?
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
Does knowing the effects of alcohol on your liver change your drinking?
Researchers have been looking at how people's drinking behaviours may change when they know that alcohol is damaging their liver. They have some interesting and thought-provoking results to share with you on:
Wednesday
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
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