Search
Search
About
Log in
Join
Experiences with
Leigh's Disease
Posts
Communities
44,835 public posts
Filter results
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
7 months ago
sulfur in dopamine agonists
I tried dopamine agonists: Pramipexole and Rotigotine. Both give me stomach problems. My neurologist says they are the lightest and that the others on the market have more side effects. It is true? I have seen the chemical formulas of these drugs: C19H25NOS and C10H17N3S both contain S (sulphur). While
I tried dopamine agonists: Pramipexole and Rotigotine. Both give me stomach problems. My neurologist says they are the lightest and that the others on the market have more side effects. It is true? I have seen the chemical formulas of these drugs: C19H25NOS and C10H17N3S both contain S (sulphur). While
michelagvolpe
in
Cure Parkinson's
9 months ago
Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Accordion
in
CLL Support
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Stating and underactive thyroid
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
Hi I suffer with underactive thyroid and fibromalarga reciently I got put on stating for high colesteral after 3 day I stopped them my muscles felt like I'd been hit buy a bus i
shazzafloyd
in
Thyroid UK
7 months ago
Mike H
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
CABG operation feb 2023, ablation carried out during open heart surgery also mitral valve clip installed, have had AF for as long as I can remember, on amioderone plus edoxaban and a cocktail of other meds, waiting for a electral cardioversion to get my heartbeat in to sinus rythem
Georgeorwell1959
in
Atrial Fibrillation Support
2 months ago
In Shock!
Hi all Around a year ago I was diagnosed, via a fibroscan with a score of 20, as my gastro consultant said, borderline cirrhosis. I’ve never been happy with the lack of anything I have received from him so I pushed for a referral to Kings College. I ended up there yesterday and they did a second
Hi all Around a year ago I was diagnosed, via a fibroscan with a score of 20, as my gastro consultant said, borderline cirrhosis. I’ve never been happy with the lack of anything I have received from him so I pushed for a referral to Kings College. I ended up there yesterday and they did a second
Honeysuckle123
in
British Liver Trust
9 months ago
Why not give Hyperbaric Oxygen Therapy (HBOT) as Adjunctive Therapy a Try?
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
I am thinking this will likely be my last post, unless something dramatic shakes out. Remember LTC CHESTY PULLER'S, USMC, comment, Battle of the Chosin Resvoir, North Korea, 1950. "The bas..... are in front of us and at our rear. They are on our right flank and our left flank. They won't get
Isthistheone
in
Cure Parkinson's
9 months ago
Outdoor working
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
ApusApus
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Mitral Valve Regurgitation?
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
Hi all! After seeing a cardiologist yesterday for the 3 month post Ablation check up....(just over a year after the procedure,) I'm told that during that procedure they found that I have a leak in one of the valves in my heart which has caused a slight murmer. Now, nobody told me any of this at the
nikonBlue
in
Atrial Fibrillation Support
2 months ago
Pregabalin
Has anyone had any experience of pregabalin becoming less effective? I was taking the maximum dose of 450 mg but I started to have breakthrough symptoms. I went to the GP who appeared horrified that I was taking Pregabalin. She said I must reduce it until I was not taking anymore and at the same time
Has anyone had any experience of pregabalin becoming less effective? I was taking the maximum dose of 450 mg but I started to have breakthrough symptoms. I went to the GP who appeared horrified that I was taking Pregabalin. She said I must reduce it until I was not taking anymore and at the same time
gobojo
in
Restless Legs Syndrome
3 months ago
liver chrosis
Hi folks today I was diagnosed with early stage liver chrosis, I was massively overweight and managed to loose 10 stone although in a recent blood test showed platelets were low , I am 32 and now very scared about what the future my hold and what my life expectancy is. I have a young daughter at 3 and
Hi folks today I was diagnosed with early stage liver chrosis, I was massively overweight and managed to loose 10 stone although in a recent blood test showed platelets were low , I am 32 and now very scared about what the future my hold and what my life expectancy is. I have a young daughter at 3 and
Anxiousboy18
in
British Liver Trust
9 months ago
Update: re my "draining fluid" post
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
taar
in
British Liver Trust
9 months ago
scared and worried
I will have to admit that I am very concerned about coming off the Ropinirole! After reading some of the experiences that some people have had it makes me wonder what will I go through. I know I’ve said this before but I’m just not sure I can do it. If I had some good support and help it would make it
I will have to admit that I am very concerned about coming off the Ropinirole! After reading some of the experiences that some people have had it makes me wonder what will I go through. I know I’ve said this before but I’m just not sure I can do it. If I had some good support and help it would make it
6236
in
Restless Legs Syndrome
3 months ago
Fibroscan results
Hi, My husband’s fibroscan came back with a KPA of 21.5 and the hepetologist has said he has significant bridging fibrosis - she actually said that he doesn’t have cirrhosis (said multiple times) and that at this stage he can still reverse it if he loses weight? What confuses me is that everywhere
Hi, My husband’s fibroscan came back with a KPA of 21.5 and the hepetologist has said he has significant bridging fibrosis - she actually said that he doesn’t have cirrhosis (said multiple times) and that at this stage he can still reverse it if he loses weight? What confuses me is that everywhere
Whatta
in
British Liver Trust
9 months ago
yellow tongue
Hi All. My partner has been diagnosed with cirrhosis. he has a few mild symptoms, bloated stomach, spider veins, erectile dysfuction, loss of appetite. He has now developed a yellow tongue with fissures. Has anyone else had this? Is it related to cirrhosis as I cant find anything about it online
Hi All. My partner has been diagnosed with cirrhosis. he has a few mild symptoms, bloated stomach, spider veins, erectile dysfuction, loss of appetite. He has now developed a yellow tongue with fissures. Has anyone else had this? Is it related to cirrhosis as I cant find anything about it online
pussycat66
in
British Liver Trust
9 months ago
feeding tube decision
hi everyone my precious 81 yr old dad 20 years with PD my hero Is sadly losing his battle with PD He has had a very rough couple of weeks first fell broke his hip & had surgery to repair in hospital over a week Then while recovering from that contracted RSV and double pneumonia. Back to hospital
hi everyone my precious 81 yr old dad 20 years with PD my hero Is sadly losing his battle with PD He has had a very rough couple of weeks first fell broke his hip & had surgery to repair in hospital over a week Then while recovering from that contracted RSV and double pneumonia. Back to hospital
Joy_gitt
in
Cure Parkinson's
9 months ago
I'm loosing the will to carry on!!!
I am really unwell right now an loosing the will to carry on. Know I should seek some medical help but who do I go to for help? Honestly, over the past 18 months I have had to fight to get the help I needed via the NHS. What a battle that was. Last week, had severe palpitations lasting 6 hours which
I am really unwell right now an loosing the will to carry on. Know I should seek some medical help but who do I go to for help? Honestly, over the past 18 months I have had to fight to get the help I needed via the NHS. What a battle that was. Last week, had severe palpitations lasting 6 hours which
DizzyD
in
Atrial Fibrillation Support
6 months ago
My Labs are back- recommendations pretty please.
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Ddski5
in
Restless Legs Syndrome
3 months ago
Short synacthen test results
I had a second SST in June at the insistence of my endo, and have been meaning to post for comment. My results were:- 8.55am 245 nmol/l 9.25am 592 nmol/l (Adrenal insufficiency indicated by cortisol <440 30 mins post synacthen) I am aware that my starting cortisol is fairly dire, although my GP
I had a second SST in June at the insistence of my endo, and have been meaning to post for comment. My results were:- 8.55am 245 nmol/l 9.25am 592 nmol/l (Adrenal insufficiency indicated by cortisol <440 30 mins post synacthen) I am aware that my starting cortisol is fairly dire, although my GP
CornishChick
in
Thyroid UK
9 months ago
Pharmacist denied medication
Hesitant to post this. Opinions run strong on subject. My regular (+1yr) pharmacist called to tell me she was denying my regular pain med fill due to increased usage of thc. Shocked. She advised me to find another pharmacy that sells both THC and pain medication (doesn’t exist) and talk to my doctor.
Hesitant to post this. Opinions run strong on subject. My regular (+1yr) pharmacist called to tell me she was denying my regular pain med fill due to increased usage of thc. Shocked. She advised me to find another pharmacy that sells both THC and pain medication (doesn’t exist) and talk to my doctor.
Wtfisup
in
My MSAA Community
9 months ago
1
...
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5855 results
British Liver Trust
4447 results
Advanced Prostate Cancer
4321 results
View top 10 communities
Sort by
Most Relevant
Newest