Search
Search
About
Log in
Join
Experiences with
Leigh's Disease
Posts
Communities
45,737 public posts
Filter results
New Clinical Trial Starting: A Study of AAV2-GDNF in Adults With Moderate Parkinson's Disease (REGENERATE-PD) (REGENERATE-PD)
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Canddy
in
Cure Parkinson's
2 months ago
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
Bolt_Upright
in
Cure Parkinson's
3 months ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PSA at 0.285
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
Formosan
in
Advanced Prostate Cancer
2 months ago
LasVegasLover
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
LasVegasLover
in
Kidney Dialysis
2 months ago
Humbly (considering the 1/3rd's) I have to say I am very happy to say I responded to Pluvicto. Updated my BIO finally.
Doesnt take long I think to realize in the journey that just getting a response to a treatment is what you want because the flip side there may be no response at all to any particular treatment. The sorcerer is standing over me having just waved his/her wand over my head. Since the beginning 11/2019
Doesnt take long I think to realize in the journey that just getting a response to a treatment is what you want because the flip side there may be no response at all to any particular treatment. The sorcerer is standing over me having just waved his/her wand over my head. Since the beginning 11/2019
CAMPSOUPS
in
Advanced Prostate Cancer
2 months ago
Webinar on Atypical Parkinsonism from PCLA (Parkinson's Community Los Angeles)
Atypical Parkinsonisms (www.pcla.org) Date & Time
July 12 11am PST // GMT - 8
https://pcla.us13.list-manage.com/track/click?u=f98a2ddbff31f952712a71bf0&id=60a1a1735e&e=b75464422e Description from the advert : Atypical Parkinsonisms present with some of the signs and symptoms of Parkinson's
Atypical Parkinsonisms (www.pcla.org) Date & Time
July 12 11am PST // GMT - 8
https://pcla.us13.list-manage.com/track/click?u=f98a2ddbff31f952712a71bf0&id=60a1a1735e&e=b75464422e Description from the advert : Atypical Parkinsonisms present with some of the signs and symptoms of Parkinson's
pdpatient
in
Cure Parkinson's
2 months ago
Back after a long time
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
Hi everyone, I haven't posted in quite some time, but I'm back because I need input from all the wonderful people on this platform. More than five years ago, my mom had a fall and was put on hospice care. They gave up on us too quickly, and she ended up with an NG tube down her throat for months
mymomhaspd
in
Cure Parkinson's
2 months ago
PARP inhibitor Olaparib, phase 3 study findings (PROpel)
While we wait for the next generation PARP inhibitors to become available (I have written about it few weeks ago and I will soon have some first hand data), here are the results of Olaparib +Abiraterone It actually has decent effect also for people with no HRR mutations, but it works at its best with
While we wait for the next generation PARP inhibitors to become available (I have written about it few weeks ago and I will soon have some first hand data), here are the results of Olaparib +Abiraterone It actually has decent effect also for people with no HRR mutations, but it works at its best with
Maxone73
in
Advanced Prostate Cancer
2 months ago
Liver cancer
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
oap74
in
British Liver Trust
2 months ago
The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
2 months ago
Xtandi did not work.
Hi all, I'm new to this board but would love some feedback. My father, 80, has been dealing with prostate cancer for a few years. He had initially had radiation plus Lupron injections. His PSA started rising again a few years ago and he wound up on Lupron regularly. His PSA has been slowly rising
Hi all, I'm new to this board but would love some feedback. My father, 80, has been dealing with prostate cancer for a few years. He had initially had radiation plus Lupron injections. His PSA started rising again a few years ago and he wound up on Lupron regularly. His PSA has been slowly rising
Estivez71
in
Advanced Prostate Cancer
2 months ago
Running on Hope! What??
And suddenly yestarday, can't explain why, my ebook becomes a bestseller on Amazon brain diseases category.😃 I wrote this book with the intent to help others, specially more recent diagnosed people, trying to leave some clues and to show that we can still have a fullfiled life with Parkinson's. This
And suddenly yestarday, can't explain why, my ebook becomes a bestseller on Amazon brain diseases category.😃 I wrote this book with the intent to help others, specially more recent diagnosed people, trying to leave some clues and to show that we can still have a fullfiled life with Parkinson's. This
Markbit
in
Cure Parkinson's
2 months ago
Weight issues Graves remission
I was eventually diagnosed with Graves disease post covid after been repeatedly told by GP that I had long covid.I had to go private through spire healthcare, thinking I had a heart problem, but was referred to endocrinology after blood test results. After 1 year on carbamozole my thyroid results are
I was eventually diagnosed with Graves disease post covid after been repeatedly told by GP that I had long covid.I had to go private through spire healthcare, thinking I had a heart problem, but was referred to endocrinology after blood test results. After 1 year on carbamozole my thyroid results are
PsmS
in
Thyroid UK
2 months ago
Yet another question about cirrhosis.
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
I'm so sorry to bother everyone again. I promise this will be my last post for quite some time [hopefully]. I'm taking some advice from a couple of lovely members from this forum who have advised me to try and not worry so much over every detail of my condition, and live each day to its fullest. Just
puddy68
in
British Liver Trust
2 months ago
Dad’s blood reports. PSA and testosterone down but ALP up
Did some blood tests for day today The last blood tests were done on 2nd May - PSA 18 Alk Phos 180 which led to the prostate cancer diagnosis. Was diagnosed with bone mets to a few bones. Initially the plan was to do lupron and he was started on bicalutamide which he took for 3 weeks uptil 7th
Did some blood tests for day today The last blood tests were done on 2nd May - PSA 18 Alk Phos 180 which led to the prostate cancer diagnosis. Was diagnosed with bone mets to a few bones. Initially the plan was to do lupron and he was started on bicalutamide which he took for 3 weeks uptil 7th
Tinkudi
in
Advanced Prostate Cancer
2 months ago
Advanced Prostate Cancer to bone and liver
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
swelnetz
in
Advanced Prostate Cancer
2 months ago
Annovis Bio Files Patent for New Composition of Matter for Buntanetap
Interesting....see the fourth (4th) paragraph... MALVERN, Pa., June 26, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s
Interesting....see the fourth (4th) paragraph... MALVERN, Pa., June 26, 2024 (GLOBE NEWSWIRE) -- via IBN – Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s
Canddy
in
Cure Parkinson's
2 months ago
Liver Biopsy Soon.
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Hey everyone, I have a Liver Biopsy next week, as my blood tests have shown that my body is attacking my liver as it thinks it's "Foreign". I'm going under general for it. Does anyone know why my body is attacking my liver? Thanks,
Lmm4
in
British Liver Trust
2 months ago
Just a few more questions about Cirrhosis
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
Hello, it's me [again]. Only one more day until I go for my endoscopy as they picked up varices on my cat scan. May [or most definitely will, according to my gastroenterologist] have to band them. This whole procedure has got me thinking again, and I inevitably then end up with more questions [sorry]
puddy68
in
British Liver Trust
2 months ago
1
...
12
13
14
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5945 results
British Liver Trust
4547 results
Advanced Prostate Cancer
4477 results
View top 10 communities
Sort by
Most Relevant
Newest