Doesnt take long I think to realize in the journey that just getting a response to a treatment is what you want because the flip side there may be no response at all to any particular treatment.
The sorcerer is standing over me having just waved his/her wand over my head.
Since the beginning 11/2019 I’ve been sayin the same refrain. “I’m lucky, all things considered”
The luck continues. To be in the 1/3rd that responds to Pluvicto is all I could wish for.
I don’t want to go out on a limb and completely grasp onto another piece of luck but a blood study I’m in to see if Pluvicto response will occur in individuals via a blood sample test seems to be showing accuracy. If the study continues to be accurate it shows I am not only in the 1/3 that respond but in the upper 10% that respond.
Now and thru treatment I feel basically great (of course have all my typical pains, huffing puffing, high heart rate etc.) only having pretty much complete shut down of salivary glands is only SE of Pluvicto for me.
Only crux is the unrelated Cyclic Vomiting Syndrome I developed 6 or more months ago. Its done it destruction. Caused me to not be here too much on the forum lately and even checking in less.
Again though this tamper on my PC is fantastic.
I know it doesn’t work for all and my heart goes out to those with bad results.
I finally updated my bio but took a very lazy route. Copied here and there from my Oncologist notes. Mr. Plagiarize himself ha. But hey lately my brain freezes over just trying to contemplate simply where to put my finger nail clippers.
I put on a album to satisfy my nostalgia and to lay back to.
Cool on the Traffic synapse. Wish we could hang out.
You might not know but it's great to get your positive reaction to my news.
I'll do some digging this weekend for the study info. I've felt so good sporadically that I finally cleaned and organized my home office I moved into 3 1/2 years ago and never touched. The study was in my hands at one time this past month or so. Should be able to find easily....
I have little memory of the details discussed and just have my consent form but still helpful I think. Title of Research Study:
A Liquid Biopsy-Derived Proteogenomic Biomarker for 177Lu-PSMA Radioligand Therapy in Patients with Prostate Cancer
I dont see much on the internet armed with the above title to search.
The following link is assurance as Ali who I know is listed as is the U of Minnesota as website. Ali is very excited about this. I recall study size is 28 to 30 guys.
I see biomarkers and proteogenomics, but not its name. Perhaps they haven't yet found and analyzed it (usually with chromatography). It would be great if they can develop a blood test that predicts Pluvicto effectiveness.
It would be great. I don't want to steal their thunder but my oncologist and Ali are very excited about results so far. They were dismayed when my PSA jumped up after that first Pluvicto infusion but had affirmation as my tx continued. I learned of this in retrospect. What they were seeing and discussing as I went thru Pluvicto tx.
Brother Randy great to have you in on my celebration. Mr Fantasy might be right in more ways than one lol but I wont expose that part of me just now at the moment ha. Oh my. How many times have I had to remind acquaintances in my life that all those who wander are not lost. True friends and brothers like you and many here already know that lol.
Thanks again always uplifting and supportive you are. Truly appreciated.
Funny Steve in the Mr. Fantasy video looks like one of my school friends from our high school garage band days lol. Among an absolutely phenomenal group of musicians at Eric Clapton Guitar Festival Chicago in 2010 and 2016 was of course Steve Winwood. So good.
Yea sh*t to do is right. You adjust. Any day my eyes open and I dont start dry heaving is a day to do some stuff. I finally cleaned our makeshift kitchen exhaust fan for my wife just now. Now I'll have permission to spend all the time I want to prepare my fishing gear lol. I pace myself. Depending on the chore a 5 hour job takes 2 or 3 days. Thankfully I got no one pushing me. Oh the wife. Well hmmmm.
Yea time is the question lurking in the subconscious (hopefully not often in the conscious) but the time I have got thru treatments and trials even if its just the stability during the treatment thats time alive and I'm all for it.
You keep the good times going too man. I truly hope the edema is resolving.
Love ya back brother Randy. Thanks for all you do. In our world and beyond.❤️❤️❤️
Oh man Ron you got it. You got it man. Thanks brother for jumping in.
I need a name for my to be (fantasy lol) you tube channel.
Old prostate cancer dude shows how to do mini bike builds (tips and tricks to avoid breaking bones, falling down, passing out, work smart not hard, proper 1 to 2 hour a day work schedule lol).
Speaking of and seriously I need to get more confrontational (not really) need to instead of asking my son when he's going to get his Sachs bike going again and getting the typical answer a 45 year old with 2 kids and lots of work to do: "Yea, I dont know. Needs a lot of stuff done. I might sell it". Me: "I'll help ya cause I sure would like to ride it"..
Well that hasnt gotten anywhere and so next up is going to have to be me:" hey drop it off at my place I'll get it going" ha, lol. We'll see if that goes anywhere lol. Really he's great. He has since day one when he along with me saw my bone scans has always been worried I'll crumble if I make the wrong move. Ha.
That might have put a bit of a cloud over a uplifting post so just to let you know I am feelin great. Mostly.
When I left my most recent Oncology appt. about a month ago with all this news I had a natural euphoric high to beat the band. Nice scenic drive home on a beautiful day and enhanced a wee bit by a bowl. Or enhanced by a wee bowl. Yes.
I'm livin life. Scott (whimpy, lulu700, slimpickens) said it best one time. "I feel like a teenager living at home". I said that to my son and daughter and law and they laughed. Cause here I am so well taken care of by my wife and them while I hang out listen to music, tinkering around, doin weed, ha.
Love ya brother. Keep strong and together. ❤️❤️❤️❤️
And not just luck. My Oncologist and team are pivotal in moving the needle closer so that luck can happen. But I'm lucky to have them so there's luck again lol.
Hello Campsoups, what an amazing result, I'm over the moon for you ! There is nothing like news such as this to encourage each and everyone of us on here. Cherish this day and use that positive energy to keep pushing forward, I'm sure you that you will.
Looks like the " Hole in your shoe" is mending. Have a great day and keep your office tidy.🙌
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