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Scared and Feeling Helpless
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Let me start by saying that it was my intention to wait for an official diagnosis for my dad before I started posting here. I found this group recommended on the Prostate Cancer Reddit Forum. I’ve been really struggling lately with absolute utter fear and lack of control (more on that later). My dad
Cafu6
in
Advanced Prostate Cancer
7 months ago
KIDNEY EQUITY FOR ALL
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
JackieJ_NKF
Partner
in
Kidney Dialysis
7 months ago
Lymphedema a year post 28 IMRTs and QoLin for the Weekend
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 miles😜, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking 😁 did 6.2 Sat am Got
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 miles😜, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking 😁 did 6.2 Sat am Got
dockam
in
Advanced Prostate Cancer
2 months ago
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Updated Lupus and the Skin booklet available now
We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You can find more information about how the booklet was updated here: https://lupusuk.org.uk/updated-lupus-and-the-skin-booklet-available-now/ or
We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. You can find more information about how the booklet was updated here: https://lupusuk.org.uk/updated-lupus-and-the-skin-booklet-available-now/ or
Debbie_kinsey
Administrator
in
LUPUS UK
4 months ago
Sodium Lauryl Sulphate&Iron
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Mattie2022
in
Thyroid UK
2 months ago
TIA in March
Hi, l recently had a mild TIA while in Cyprus where l live the treatment l received was excellent but the Neuroligist has prescribed Atvorstatin which l have found out shouldn’t be taken if you have an underactive Thyroid he dismissed this. Should l see my GP whilst l am in UK
Hi, l recently had a mild TIA while in Cyprus where l live the treatment l received was excellent but the Neuroligist has prescribed Atvorstatin which l have found out shouldn’t be taken if you have an underactive Thyroid he dismissed this. Should l see my GP whilst l am in UK
Tillybuds
in
Thyroid UK
4 months ago
letter received from gastro
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Sophia1968
in
British Liver Trust
7 months ago
Generic TCZ---is it available in the UK?
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
Grammy80
in
PMRGCAuk
4 months ago
Radiation side effects
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
The good news is that my husband sailed thru the Orgovyx with no problems whatsoever, now is in his 6th month and is due to complete that treatment at the end of June. The bad news is that he has had 22 sessions of salvage RT. He is supposed to have a total of 38 however, he has developed severe cramping
shihtzu124
in
Advanced Prostate Cancer
2 months ago
LIVER TEST panel results GGT ALT ALP BILIRUBIN
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Pulsar25
in
British Liver Trust
7 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
7 months ago
More questions
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
HotGuacamole
in
Atrial Fibrillation Support
2 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
7 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
7 months ago
mHSPCa with undetectable PSA - chemo-only?
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Purple-Bike
in
Advanced Prostate Cancer
7 months ago
Sipuleucel-T (Provenge®) Will it work for PC?
Will this immunotherapy vaccine treatment work for PC?
Will this immunotherapy vaccine treatment work for PC?
Stevegr
in
Advanced Prostate Cancer
4 months ago
Elevated Liver Enzymes and Terry's Nails
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Mhalpha
in
British Liver Trust
7 months ago
Unusual prescription?
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Globus
in
Anticoagulation Support
2 months ago
Lightheadedness after AFib episode
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
Jomaur
in
Atrial Fibrillation Support
2 months ago
Low PSA + high Gleason-FYI
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
Jpburns
in
Advanced Prostate Cancer
7 months ago
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