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Newly diagnosed
Hello. I'm 45 confirmed diagnosis in May now on sinemet 3 times s day. My ankle on my affected side is very painful and swollen, my toes curl and foot is swinging out. I'm finding the meds wear off and I then my shuffle and slowness return. I'm having brutal mood swings and crying spells. I feel as though
Hello. I'm 45 confirmed diagnosis in May now on sinemet 3 times s day. My ankle on my affected side is very painful and swollen, my toes curl and foot is swinging out. I'm finding the meds wear off and I then my shuffle and slowness return. I'm having brutal mood swings and crying spells. I feel as though
Jenzo
in
Cure Parkinson's
8 years ago
Newly diagnosed
I am newly diagnosed with mild Parkinson's after numerous tests over 3 years it was thought I had fibromyalgia until I recently developed a tremor. I live and work in Jordan but I am returning to the UK next year I feel very alone and terrified as to what will happen,and will I be able to work? Would
I am newly diagnosed with mild Parkinson's after numerous tests over 3 years it was thought I had fibromyalgia until I recently developed a tremor. I live and work in Jordan but I am returning to the UK next year I feel very alone and terrified as to what will happen,and will I be able to work? Would
Kaykaykay123
in
Cure Parkinson's
8 years ago
52 Year old male, with PD since 2001, sugar-holic that may cause my symptoms to be worse. How about you?
Hi My name is Mark and I am 52 years old and I have been diagnosed with PD since 2001. I am at the point now where the amount of Sinemet I take is becoming too large for me to handle the side effects. I have 1-3 panic attack a day. I am wondering if anyone has more PD symptoms after eating a lot of
Hi My name is Mark and I am 52 years old and I have been diagnosed with PD since 2001. I am at the point now where the amount of Sinemet I take is becoming too large for me to handle the side effects. I have 1-3 panic attack a day. I am wondering if anyone has more PD symptoms after eating a lot of
munrue52
in
Cure Parkinson's
8 years ago
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Stress
I haven't posted for a long time but have been reading daily and learning so much. I saw my movement disorder specialist Tuesday who offered to script a depression med with serotonin because I am feeling stressed right now. We leave for a Progeny Vacation (children and grandchildren) today I know
I haven't posted for a long time but have been reading daily and learning so much. I saw my movement disorder specialist Tuesday who offered to script a depression med with serotonin because I am feeling stressed right now. We leave for a Progeny Vacation (children and grandchildren) today I know
hopedope
in
Cure Parkinson's
8 years ago
Enjoying what we have left
I was principal clarinetist in a semi professional orchestra for 28 years and had to give up my position after my first 4years of PD. Anxiety and inconsistency did me in. I am still very active as a jazz/contra dance Clar. and Sax player in my eighth year and am convinced that playing everyday is slowing
I was principal clarinetist in a semi professional orchestra for 28 years and had to give up my position after my first 4years of PD. Anxiety and inconsistency did me in. I am still very active as a jazz/contra dance Clar. and Sax player in my eighth year and am convinced that playing everyday is slowing
Mick21
in
Cure Parkinson's
8 years ago
Is it OK to take Mucuna ALONG WITH Sinemet?
Must my dad back off/down Carbidopa-Levodopa in order to use the Mucuna Pruriens I ordered for him and am reordering since it does help sometimes? Will switching from 15% to 20% help? Will switching to powder help? Is there a better brand? He is NOT on Azilect. Is there another natural substance
Must my dad back off/down Carbidopa-Levodopa in order to use the Mucuna Pruriens I ordered for him and am reordering since it does help sometimes? Will switching from 15% to 20% help? Will switching to powder help? Is there a better brand? He is NOT on Azilect. Is there another natural substance
rsacdoolittle
in
Cure Parkinson's
8 years ago
Ketogenic diet
I was diagnosed 4 yrs ago and already at maximum of Sinemet. Someone suggested this diet to me to reduce Parkinsons side effects. Any comments or suggestions
I was diagnosed 4 yrs ago and already at maximum of Sinemet. Someone suggested this diet to me to reduce Parkinsons side effects. Any comments or suggestions
Annie11
in
Cure Parkinson's
8 years ago
combined response.
i have had severe rls for 4 years. i was originally [mis]treated by a sleep doctor and neurologist who eventually had me on Sinemet every 2 hours. you can imagine my physical state. i was told that they didn't know what was wrong with me. my present doctor was horrified by my condition and immediately
i have had severe rls for 4 years. i was originally [mis]treated by a sleep doctor and neurologist who eventually had me on Sinemet every 2 hours. you can imagine my physical state. i was told that they didn't know what was wrong with me. my present doctor was horrified by my condition and immediately
badia1
in
Restless Legs Syndrome
8 years ago
PDR (physicians desk reference): Sinemet
I have learned more about using C/L in the past 20 minutes. I just wanted to know what to expect while reducing it if mucuna pruriens makes that possible. Those night sweats that come as it wears off during the night (hyperpyrexia) and I learned that it can make you fall asleep unexpectedly and I thought
I have learned more about using C/L in the past 20 minutes. I just wanted to know what to expect while reducing it if mucuna pruriens makes that possible. Those night sweats that come as it wears off during the night (hyperpyrexia) and I learned that it can make you fall asleep unexpectedly and I thought
BUZZ1397
in
Cure Parkinson's
8 years ago
Difference between Sinemet and Madopar (Co-beneldopa)
A couple of days ago someone on this site asked me what the difference was between these two after I had posted that Sinemet made me confused whereas Madopar was almost miraculous in its effect. I'm afraid I can't find the original question but the difference is that Sinemet is ldopa combined with carbidopa
A couple of days ago someone on this site asked me what the difference was between these two after I had posted that Sinemet made me confused whereas Madopar was almost miraculous in its effect. I'm afraid I can't find the original question but the difference is that Sinemet is ldopa combined with carbidopa
pen1
in
Cure Parkinson's
8 years ago
If you are trying to decide if you want to take SINEMET.
Response to the question of whether or not to start taking SINEMET..... I was diagnosed for 2 years before I started taking SINEMET. I got to the point where my husband had to help me do almost everything. SINEMET changed my life so completely in a matter of 3 days. I have been taking SINEMET and
Response to the question of whether or not to start taking SINEMET..... I was diagnosed for 2 years before I started taking SINEMET. I got to the point where my husband had to help me do almost everything. SINEMET changed my life so completely in a matter of 3 days. I have been taking SINEMET and
Prayergirl
in
Cure Parkinson's
8 years ago
Efficacy of PD Meds
As the result of my research, there are no PD meds currently available to slow, stop or reverse the progression of PD. The following questions then arise: 1. Why even start taking the meds? 2. Considering the known toxicity of these meds, wouldn't one be better not taking them? 3. How many who started
As the result of my research, there are no PD meds currently available to slow, stop or reverse the progression of PD. The following questions then arise: 1. Why even start taking the meds? 2. Considering the known toxicity of these meds, wouldn't one be better not taking them? 3. How many who started
Syncletica
in
Cure Parkinson's
8 years ago
Protein rich food has become unenjoyable since PD
The more my case of PD advances, the less I can comfortably consume of protein-rich food. I used to eat eggs at least 4 times a week now I have eggs in the fridge going past their expiration date. I miss those 3-egg omelets for breakfast. They say to time your meals for between doses of Sinemet or the
The more my case of PD advances, the less I can comfortably consume of protein-rich food. I used to eat eggs at least 4 times a week now I have eggs in the fridge going past their expiration date. I miss those 3-egg omelets for breakfast. They say to time your meals for between doses of Sinemet or the
BUZZ1397
in
Cure Parkinson's
8 years ago
Twitches between sinemet doses
Hi all my name is Arman, my wife has a PD and recently is experiencing very severe twitches between a sinemet doses, so severe that is hard to describe... (she is taking 25-100 3-4 times a day, by the way she's only 44). Nothing seems to help; Azilect, Entacapone, Amantedine... She has difficulties
Hi all my name is Arman, my wife has a PD and recently is experiencing very severe twitches between a sinemet doses, so severe that is hard to describe... (she is taking 25-100 3-4 times a day, by the way she's only 44). Nothing seems to help; Azilect, Entacapone, Amantedine... She has difficulties
telemag
in
Cure Parkinson's
8 years ago
What to do if am sick (ie vomit)?
I am just recovering from over a week of illness and have got into a terrible mess with my mediction - prednisolone and sinemet, (for Parknson's) in particular. The prednisolone is taken at about 9 am, and the sinemet at about 9 am, 1 pm and 6pm. Has anyone any suggestions? It is straightforward if
I am just recovering from over a week of illness and have got into a terrible mess with my mediction - prednisolone and sinemet, (for Parknson's) in particular. The prednisolone is taken at about 9 am, and the sinemet at about 9 am, 1 pm and 6pm. Has anyone any suggestions? It is straightforward if
Trenny
in
PMRGCAuk
8 years ago
Sinemet and dopa macuna at 15% of volume
sinemet+dopa macuna i would like to know if i can take sinemet and dopa macuna together. i take 9 sinemet 25/1000 and i can't walk witout walker. appreciate your help. nuggets
sinemet+dopa macuna i would like to know if i can take sinemet and dopa macuna together. i take 9 sinemet 25/1000 and i can't walk witout walker. appreciate your help. nuggets
Nuggets36
in
Cure Parkinson's
8 years ago
C/L = ZZZZ?
I've been on Sinemet for about a month. All I can do is sleep! I'm not getting much done. Does this pass? Incidentally, when I picked up my refill today I found out my copay had zoomed from $1.40 to $38.45. If I had to pay cash, the price would be $1,245!! How do people afford it who have to pay out
I've been on Sinemet for about a month. All I can do is sleep! I'm not getting much done. Does this pass? Incidentally, when I picked up my refill today I found out my copay had zoomed from $1.40 to $38.45. If I had to pay cash, the price would be $1,245!! How do people afford it who have to pay out
Beckey
in
Cure Parkinson's
8 years ago
Neck pain - any recommendations to supplement the medication?
Hi All I'm in Scotland and my dad was been diagnosed with PSP in Feb. His main complaint at the moment is the pain in his neck. He has started low dose of Sinemet, Carbidopa and levodopa and he is on waiting list for Physio. Just wondering if anyone has found anything that can supplement these to relieve
Hi All I'm in Scotland and my dad was been diagnosed with PSP in Feb. His main complaint at the moment is the pain in his neck. He has started low dose of Sinemet, Carbidopa and levodopa and he is on waiting list for Physio. Just wondering if anyone has found anything that can supplement these to relieve
Hidden
in
PSP Association
8 years ago
Sinemet Saga
Hoping for some advice. Started on sinemet earlier last month and gradually increased from 1/4 tab ( 25/100) 3x day to now I'm at 2 tabs 3 x day. After initial bad effects from it I've generally settled down, feeling no effects from them in the day but can still can get light headed and nauseous if I
Hoping for some advice. Started on sinemet earlier last month and gradually increased from 1/4 tab ( 25/100) 3x day to now I'm at 2 tabs 3 x day. After initial bad effects from it I've generally settled down, feeling no effects from them in the day but can still can get light headed and nauseous if I
grower
in
Cure Parkinson's
8 years ago
Sharing
Hello All, I am a 55 year old male, diagnosed in 2013 after a Dat scan. Iam left handed and had a slight tremor in left hand for about 2 years prior to diagnosis. I was a mechanic at UPS. Iam now retired and have been approved for Social Security Disability. My symptoms were no left arm swing, shortened
Hello All, I am a 55 year old male, diagnosed in 2013 after a Dat scan. Iam left handed and had a slight tremor in left hand for about 2 years prior to diagnosis. I was a mechanic at UPS. Iam now retired and have been approved for Social Security Disability. My symptoms were no left arm swing, shortened
jimbo112
in
Cure Parkinson's
8 years ago
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