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Comtan increasing off times
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Just started taking Comtan (along with usual sinemet) and find my off-times are drastically increased so that there's very little on-time. Didn't expect Comtan to have the opposite effect of what it's supposed to do. Also more foot dystonia (cramping) forcing me to walk on the outside edge--OUCH. And
Dylpup
in
Cure Parkinson's
8 years ago
New PSP Diagnosis
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Babowen898
in
PSP Association
8 years ago
Advanced Parkinsons treatment
I have had pd for at at least twenty years. After dx I had been put on Cabaser by a neurologist who then retired and my gp informed me that there were insufficient funds to replace him. He would just keep prescribing this med. and I would just continue without a Neuro. Cabaser turned out to be particularly
I have had pd for at at least twenty years. After dx I had been put on Cabaser by a neurologist who then retired and my gp informed me that there were insufficient funds to replace him. He would just keep prescribing this med. and I would just continue without a Neuro. Cabaser turned out to be particularly
batwing
in
Cure Parkinson's
8 years ago
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Muscles movents
I am sinemet 25/100 mg and Asilect 1.5mg. I have been experiencing muscle movements around my waist line making both sitting and standing very uncomfortable. Has anyone experienced this lroblem?
I am sinemet 25/100 mg and Asilect 1.5mg. I have been experiencing muscle movements around my waist line making both sitting and standing very uncomfortable. Has anyone experienced this lroblem?
hba24
in
Cure Parkinson's
8 years ago
Parkinsons detox
I just joined this forum after seeing my mom struggle so much with her PD. Over the years have introduced mucana , a few supplements , exercise etc , but a recent fall has really pushed her back where she is tired, sleepy and can barely walk (she was only walking with the helper before also) . Wish
I just joined this forum after seeing my mom struggle so much with her PD. Over the years have introduced mucana , a few supplements , exercise etc , but a recent fall has really pushed her back where she is tired, sleepy and can barely walk (she was only walking with the helper before also) . Wish
mymomhaspd
in
Cure Parkinson's
8 years ago
What helps reduce Dyskinesia .
We are giving her sinemet , amantadine, Mirapex etc. Over the years we have reduced the amount of sinemet (I think she was overdrugged in the beginning - and we couldn't tell as her tolerance to meds was good ) . Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval
We are giving her sinemet , amantadine, Mirapex etc. Over the years we have reduced the amount of sinemet (I think she was overdrugged in the beginning - and we couldn't tell as her tolerance to meds was good ) . Now 1/4 sinemet every 2 hours , to try and follow the less meds at more frequent interval
mymomhaspd
in
Cure Parkinson's
8 years ago
Meds changed without notice.
My husband has been on sinemet 125mg 5× daily and sinemet cr at bed time. This Works well for him. The new pharmacy assistant has been wanting to put his parkinsons meds in with his other blister packs . These are administered wirh meals and bed time. Where his sinemet is given 8am 11am 2pm 5pm and
My husband has been on sinemet 125mg 5× daily and sinemet cr at bed time. This Works well for him. The new pharmacy assistant has been wanting to put his parkinsons meds in with his other blister packs . These are administered wirh meals and bed time. Where his sinemet is given 8am 11am 2pm 5pm and
Noella21
in
Cure Parkinson's
8 years ago
Hallucinations and PD or Hallucinations and Meds
I need to know if anyone who has been diagnosed with Parkinson's had hallucinations prior to the diagnosis. I know that sinemet and probably other meds for PD can cause hallucinations. As well, I believe the disease itself can manifest with hallucinations. If anyone has had experience with any of this
I need to know if anyone who has been diagnosed with Parkinson's had hallucinations prior to the diagnosis. I know that sinemet and probably other meds for PD can cause hallucinations. As well, I believe the disease itself can manifest with hallucinations. If anyone has had experience with any of this
Boyce3600
in
Cure Parkinson's
8 years ago
Xadago
I started using this new drug recently. It is awesome! It extends the life of sinemet and totally knocks out any dyskinesias. It is a miracle and I hope all who are suffering with PD get some. I got it from gold pharma and yes they will ship to USA.
I started using this new drug recently. It is awesome! It extends the life of sinemet and totally knocks out any dyskinesias. It is a miracle and I hope all who are suffering with PD get some. I got it from gold pharma and yes they will ship to USA.
rhenry45
in
Cure Parkinson's
8 years ago
Half Sinemet CR
I have only been taking meds for 3 months, Sinemet x 3 low dose. Worked wonders for lifting my energy level, removing anxiety and helping with rigidity and had no more freezing. Now neurologist feels I could benefit from adding Half Sinemet CR at night to help with minor tremor (whole of right hand side
I have only been taking meds for 3 months, Sinemet x 3 low dose. Worked wonders for lifting my energy level, removing anxiety and helping with rigidity and had no more freezing. Now neurologist feels I could benefit from adding Half Sinemet CR at night to help with minor tremor (whole of right hand side
Jeansm
in
Cure Parkinson's
8 years ago
Protein Update
This is an update to my previous post about protein and PD meds. I am a 68 year old female diagnosed in 2002. I take 1 Sinemet 5X daily and 2 Rytary 3X daily. For the past four years, I have been struggling with what I thought were blood sugar issues, in that I would battle fatigue throughout the
This is an update to my previous post about protein and PD meds. I am a 68 year old female diagnosed in 2002. I take 1 Sinemet 5X daily and 2 Rytary 3X daily. For the past four years, I have been struggling with what I thought were blood sugar issues, in that I would battle fatigue throughout the
annmariebaird
in
Cure Parkinson's
8 years ago
HELPED AS A RESULT OF DEEP BRAIN SURGERY(NEW)
Hi My real name is Darryl and I come from South Africa .My brothers gave me the ridiculous nickname Dal Pop.Iam 63 years old but Iam young at heart and despite the fact that i have had Parkinsons forthe last 17 years Iam still able to go to gym on a regular basis ,am able to work and I am able to play
Hi My real name is Darryl and I come from South Africa .My brothers gave me the ridiculous nickname Dal Pop.Iam 63 years old but Iam young at heart and despite the fact that i have had Parkinsons forthe last 17 years Iam still able to go to gym on a regular basis ,am able to work and I am able to play
dalpop
in
Cure Parkinson's
8 years ago
Could dopamine be too much? Or is it a wrong Diagnostic PD 5 years ago?
I was diagnosed 5 years ago with PD , started then on levodopa carbidopa (Sinemet) , I am now on 2 tablets 4 times a day. I get Dystonia (I was told) in my feet from time to time ! I ,this week , participated in my local hospital study on 4 days.....1 day an MRI was taken when I had to be OFF medications
I was diagnosed 5 years ago with PD , started then on levodopa carbidopa (Sinemet) , I am now on 2 tablets 4 times a day. I get Dystonia (I was told) in my feet from time to time ! I ,this week , participated in my local hospital study on 4 days.....1 day an MRI was taken when I had to be OFF medications
Bouffere85
in
Cure Parkinson's
8 years ago
Struggling
I'm Beckie, I don't have Parkinsons but had a stroke and when I came out of my coma, I couldn't walk but have had lots of therapy, but still have the Parkinson stutter. I'm on a lot of Sinemet several times a day. Can any one tell me if Sinemet works for them?
I'm Beckie, I don't have Parkinsons but had a stroke and when I came out of my coma, I couldn't walk but have had lots of therapy, but still have the Parkinson stutter. I'm on a lot of Sinemet several times a day. Can any one tell me if Sinemet works for them?
Abby1212
in
Cure Parkinson's
8 years ago
New meds added what to expect
Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X day, 1 rasagaline at night, and 1 clomazapam 0.5 at night. This has now changed, all still as above but at different times (more spread out) Now added as below 1 X madopar in the morning 125mg, 1x sinemet cr at night, 1x
Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X day, 1 rasagaline at night, and 1 clomazapam 0.5 at night. This has now changed, all still as above but at different times (more spread out) Now added as below 1 X madopar in the morning 125mg, 1x sinemet cr at night, 1x
allofatremor
in
Cure Parkinson's
8 years ago
Parkinson's or Parkinsonism
I have had typical PD symptoms for about 2 years (balance, tremors, gait, etc.). My third Neuro insisted that my medications could be causing my symptoms and that therefore I may have Parkinsonism which causes identical symptoms as PD but are a result of other factors. In my case he believed my symptoms
I have had typical PD symptoms for about 2 years (balance, tremors, gait, etc.). My third Neuro insisted that my medications could be causing my symptoms and that therefore I may have Parkinsonism which causes identical symptoms as PD but are a result of other factors. In my case he believed my symptoms
josefb
in
Cure Parkinson's
8 years ago
Parkinsons and Animal-Based Protein
I am a 68-year old woman diagnosed in 2002. My symptoms are mainly difficulty in small-motor movements and freezing. I have been on Sinemet for the entire 14 years and it worked well, except for the past four years I have also had what felt like low blood sugar issues. My medications didn't seem to
I am a 68-year old woman diagnosed in 2002. My symptoms are mainly difficulty in small-motor movements and freezing. I have been on Sinemet for the entire 14 years and it worked well, except for the past four years I have also had what felt like low blood sugar issues. My medications didn't seem to
annmariebaird
in
Cure Parkinson's
8 years ago
RLS DIAGNOSISo
I had sleep study that actually showed physical proof that i had RLS. Sinemet has been eliminating the symptoms most of the time where i don"t feel i'm losing my mind.
I had sleep study that actually showed physical proof that i had RLS. Sinemet has been eliminating the symptoms most of the time where i don"t feel i'm losing my mind.
VSteward
in
Cure Parkinson's
8 years ago
Benadryl (diphenhydramine) and Sinemet interaction
Awhile ago I listed the things I take and how when I stopped benadryl for awhile I could sure tell the difference in a bad way. Then I restarted the 1/2 doses of benadryl. Sinemet works so much better with a little bit (half a tab) of Benadryl. However, I was just using the drug interaction tool at medscape
Awhile ago I listed the things I take and how when I stopped benadryl for awhile I could sure tell the difference in a bad way. Then I restarted the 1/2 doses of benadryl. Sinemet works so much better with a little bit (half a tab) of Benadryl. However, I was just using the drug interaction tool at medscape
BUZZ1397
in
Cure Parkinson's
8 years ago
Blurred vision
Hi.. I am 62 and was diagnosed 4 years ago with fine tremors on left side, stiffness and slowness to the point of almost a full stop. So now it's 4 years later and I've had to quit work a job I felt very passionate about. I'm driving very little now only short distances and when I feel I'm on my meds
Hi.. I am 62 and was diagnosed 4 years ago with fine tremors on left side, stiffness and slowness to the point of almost a full stop. So now it's 4 years later and I've had to quit work a job I felt very passionate about. I'm driving very little now only short distances and when I feel I'm on my meds
Annie11
in
Cure Parkinson's
8 years ago
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