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Rigidity getting worse in a period of two weeks
Hi, after a relative stable period, I have experienced now, an increasing rigidity (even almost cramps) a long my whole right site. (even in my jaw muscles). At most in the afternoon, about 15.00 - 16.00. Taking 3 times a day Sinemet 25/100 (morning , noon , 17.00) and still experimenting with Mucuna
Hi, after a relative stable period, I have experienced now, an increasing rigidity (even almost cramps) a long my whole right site. (even in my jaw muscles). At most in the afternoon, about 15.00 - 16.00. Taking 3 times a day Sinemet 25/100 (morning , noon , 17.00) and still experimenting with Mucuna
JANVAN
in
Cure Parkinson's
6 years ago
Sleep study
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hi all! I just wanted to encourage anyone who has severe issues in the morning to get a sleep study done even if you don’t have sleepiness during the day. I live in North Dakota and have pretty limited access to good neurologists or movement disorder specialists. I’ve only been diagnosed for a year and
Hidden
in
Cure Parkinson's
6 years ago
Swallowing problems
I’m new here. My husband was diagnosed with PD 2 years ago. Right arm tremor and sometimes right leg. Takes Sinemet. He is now having some problem with swallowing, uncomfortable digestion ( Gallbladder ruled out). Wondering if this is all part of PD?
I’m new here. My husband was diagnosed with PD 2 years ago. Right arm tremor and sometimes right leg. Takes Sinemet. He is now having some problem with swallowing, uncomfortable digestion ( Gallbladder ruled out). Wondering if this is all part of PD?
Janshaw
in
Cure Parkinson's
6 years ago
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Sinemet and Melanoma
My dermatologist alerted me this week that Sinemet can raise your risk for melanoma. Okay - bring out the sunscreen!!
My dermatologist alerted me this week that Sinemet can raise your risk for melanoma. Okay - bring out the sunscreen!!
annmariebaird
in
Cure Parkinson's
6 years ago
Stalevo vs Sinemet
Any experience moving from Sinemet to Stalevo.
Any experience moving from Sinemet to Stalevo.
shelly9
in
Cure Parkinson's
6 years ago
Madopar vs Sinemet (& mucuna)
Neuro just put my husband on Madopar (one of the side effects being nausea...for some reason he didn't prescribe Sinemet) We were hoping to supplement with mucuna once his body gets used to the drug. My understanding is that mucuna needs the carbidopa in Sinemet to be able to cross the BBB. Does
Neuro just put my husband on Madopar (one of the side effects being nausea...for some reason he didn't prescribe Sinemet) We were hoping to supplement with mucuna once his body gets used to the drug. My understanding is that mucuna needs the carbidopa in Sinemet to be able to cross the BBB. Does
Jennyjenny2
in
Cure Parkinson's
6 years ago
Yet another question about mucuna pruriens
I have just started taking mucuna pruriens powder to bridge the ‘off’ periods between doses of Sinemet. Taking C/L 25/100 every 4 hours I am experiencing symptoms after 3 hours or so. My question is: Does high-protein food adversely affect the absorption of mucuna pruriens in the same way as it does
I have just started taking mucuna pruriens powder to bridge the ‘off’ periods between doses of Sinemet. Taking C/L 25/100 every 4 hours I am experiencing symptoms after 3 hours or so. My question is: Does high-protein food adversely affect the absorption of mucuna pruriens in the same way as it does
Skydome
in
Cure Parkinson's
6 years ago
Work and Stress
Hi All. I started this topic on another thread and got some interesting responses. So I wanted to get a focused thread going. I’d like to hear everyone’s experience and advice about working. Do you still work? Did you stop because you were no longer able? Do you wish you had stopped sooner because the
Hi All. I started this topic on another thread and got some interesting responses. So I wanted to get a focused thread going. I’d like to hear everyone’s experience and advice about working. Do you still work? Did you stop because you were no longer able? Do you wish you had stopped sooner because the
GinnyBerry
in
Cure Parkinson's
6 years ago
Pharmacy errors - given wrong medication.
Yesterday went to pick up my sinemet CR at the pharmacy. Stayed in the car, my husband went to get it. When I called in the prescription I asked for three months refill. It felt really light so I decided to take a look at it, I'm glad I did. It was only for a month however it must have been sinemet IR
Yesterday went to pick up my sinemet CR at the pharmacy. Stayed in the car, my husband went to get it. When I called in the prescription I asked for three months refill. It felt really light so I decided to take a look at it, I'm glad I did. It was only for a month however it must have been sinemet IR
parkie13
in
Cure Parkinson's
6 years ago
5-HTP in patients not taking Sinemet can worsen symptoms of PD
According to The Clinician's Handbook of Natural Medicine 5-Hydroxy-l-tryptophan (5-HTP) is beneficial only if used in combination with the drug Sinemet (a combination of l-dopa and decarboxylase inhibitor carbidopa). Brain serotonin is decreased in PD, but reduction in dopamine receptors is more severe
According to The Clinician's Handbook of Natural Medicine 5-Hydroxy-l-tryptophan (5-HTP) is beneficial only if used in combination with the drug Sinemet (a combination of l-dopa and decarboxylase inhibitor carbidopa). Brain serotonin is decreased in PD, but reduction in dopamine receptors is more severe
Farooqji
in
Cure Parkinson's
6 years ago
Sinemet or ropinirole or •••••?? ?
Diagnosed a few months a go with PD now 47 years old. Neurologist subscribed ropinirole 2mg going to 6mg. Had to quit after bad headaches and dizzyness so reduced dose slowly to 0. I was doing 20/30 mins exercise a day and for 2 weeks all was good. But now can hardly do a few mins. Also hand tremor
Diagnosed a few months a go with PD now 47 years old. Neurologist subscribed ropinirole 2mg going to 6mg. Had to quit after bad headaches and dizzyness so reduced dose slowly to 0. I was doing 20/30 mins exercise a day and for 2 weeks all was good. But now can hardly do a few mins. Also hand tremor
Theyakin
in
Cure Parkinson's
6 years ago
A call to upgrade our profiles to help understand each other better
In this forum, I find that I am always comparing what everyone else is taking as far as medication, supplements, exercise and diet. I think this is such a good forum for sharing of information and our experiences with this disease that we are enduring. I think it would be a good concept to share more
In this forum, I find that I am always comparing what everyone else is taking as far as medication, supplements, exercise and diet. I think this is such a good forum for sharing of information and our experiences with this disease that we are enduring. I think it would be a good concept to share more
RedwoodPark
in
Cure Parkinson's
6 years ago
Sinemet MG Conversion to Zandopa MG Conversion to Madopar. Synergy between Mucuna Pruriens & Withania somnifera. B12/thiamne thoughts...
The first link is to an article about a woman who combined Zandopa with Madopar and cups of green tea for her PD symptoms. The article has to be downloaded to read the complete article (which I cut the Sinemet = Mucuna Powder = Madopar image). https://www.researchgate.net/publication/304658036_The_clinical_effects_of_mucuna_and_green_tea_in_combination_with_levodopa-benserazide_in_advanced_Parkinson
The first link is to an article about a woman who combined Zandopa with Madopar and cups of green tea for her PD symptoms. The article has to be downloaded to read the complete article (which I cut the Sinemet = Mucuna Powder = Madopar image). https://www.researchgate.net/publication/304658036_The_clinical_effects_of_mucuna_and_green_tea_in_combination_with_levodopa-benserazide_in_advanced_Parkinson
silvestrov
in
Cure Parkinson's
6 years ago
Does anyone else find sinemet makes them sleepy? My hubby's neurologist says it is a very unusual symptom...
We just had a very deflating appointment with a specialist and even though I insisted that off sinemet that hubby is not sleepy, he said maybe it was narcolepsy.
We just had a very deflating appointment with a specialist and even though I insisted that off sinemet that hubby is not sleepy, he said maybe it was narcolepsy.
nellie58
in
Cure Parkinson's
6 years ago
Not liking this tight squeeze
Hey friends ! Has anyone else experienced a tightness that starts in the middle of the back and spreads around to both sides of the rib cage?Somtimes it can start in my right hip area and spread up my back and shoulders. I have been taking Sinemet 25/100 thee times a day and weening off from Amantadine
Hey friends ! Has anyone else experienced a tightness that starts in the middle of the back and spreads around to both sides of the rib cage?Somtimes it can start in my right hip area and spread up my back and shoulders. I have been taking Sinemet 25/100 thee times a day and weening off from Amantadine
Shakinginnc
in
Cure Parkinson's
6 years ago
Meds problems
Anybody having problems getting uk brand half sinemet cr.keep getting eu sourced and they are not the same Hubby has reaction to them,keep getting told they are the same but they are not.
Anybody having problems getting uk brand half sinemet cr.keep getting eu sourced and they are not the same Hubby has reaction to them,keep getting told they are the same but they are not.
Macelott2
in
Cure Parkinson's
6 years ago
Meds not working after starting taking at bedtime
My sinemet worked fine for quite a while but I was having trouble sleeping due to stiffness so I began to take sinemet CR 200/50 at bedtime. Once I started doing this my meds during the day dropped off. They used to work for 4-5 hours each dose but now they only work for 2 hours each dose. Has anyone
My sinemet worked fine for quite a while but I was having trouble sleeping due to stiffness so I began to take sinemet CR 200/50 at bedtime. Once I started doing this my meds during the day dropped off. They used to work for 4-5 hours each dose but now they only work for 2 hours each dose. Has anyone
rhenry45
in
Cure Parkinson's
6 years ago
Please read all post carefully.
Please find where i said "that vitamins and supplements are no benefit" in my post. Like MBAnderson wrote in his response. Personally i would not seek out a wholistic healer. In the last 12 years i have not heard about or read about a wholistic way of treating PD that has been proven to control PD.
Please find where i said "that vitamins and supplements are no benefit" in my post. Like MBAnderson wrote in his response. Personally i would not seek out a wholistic healer. In the last 12 years i have not heard about or read about a wholistic way of treating PD that has been proven to control PD.
Bailey_Texas
in
Cure Parkinson's
6 years ago
Newbie Question
HI all. Well we're 2 weeks in from diagnosis and I have my first question for the group. Background - he (boyfriend - 42) sought treatment because his right (dominant) shoulder had become stiff, no swinging and he was having dexterity problems with things like tying his shoes, shaving, etc. as well
HI all. Well we're 2 weeks in from diagnosis and I have my first question for the group. Background - he (boyfriend - 42) sought treatment because his right (dominant) shoulder had become stiff, no swinging and he was having dexterity problems with things like tying his shoes, shaving, etc. as well
lauras5469
in
Cure Parkinson's
6 years ago
Zandopa
I recently ordered some of this from India and it arrived today. There are, however, no instructions for the dosage you should follow. It merely says on the bottle to follow your doctor's instructions. My doctor knows I have the stuff and he is okay with me trying it, but he knows as much about how
I recently ordered some of this from India and it arrived today. There are, however, no instructions for the dosage you should follow. It merely says on the bottle to follow your doctor's instructions. My doctor knows I have the stuff and he is okay with me trying it, but he knows as much about how
Bolero
in
Cure Parkinson's
6 years ago
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