Zandopa: I recently ordered some of this... - Cure Parkinson's

Cure Parkinson's

26,583 members27,899 posts

Zandopa

Bolero profile image
19 Replies

I recently ordered some of this from India and it arrived today. There are, however, no instructions for the dosage you should follow. It merely says on the bottle to follow your doctor's instructions. My doctor knows I have the stuff and he is okay with me trying it, but he knows as much about how much I should take and when to take it as I do. I would be very grateful to know if there is anyone else here who takes it and what their experience has been with it as well as what dose guidelines they have been following. For instance I am currently taking Sinemet 100/25, 1 tablet 4 x per day. Should I continue with the Sinemet as well for the time being? I would be grateful for some informed insight into the use of this medication. Apologies in advance for delays in responding to your posts. I live at the bottom of the world. Thanks ... Robson

Written by
Bolero profile image
Bolero
To view profiles and participate in discussions please or .
Read more about...
19 Replies
GymBag profile image
GymBag

zanduayurveda.com/products/...

Take a look at this website

It looks to me that this is intended to replace Levadopa, Heavy duty side effects and warnings

this is not like just adding some vitamine E to your diet

Carefull , How are things in Detroit

Here is a lead to a previous post here on healtunlocked 34 replys

healthunlocked.com/parkinso...

Bolero profile image
Bolero in reply toGymBag

Detroit??? Thanks for your heads up on the side effects of Zandopa. Although I did realise that this is not just another supplement your warning is timely. Thanks also for the link to the other thread on Zandopa. I've read a lot of the replies which seem to be saying that you have to develop your own dosage protocols based on trial and error. I think the maxim of "proceed with caution" is what everyone is trying to say.

dadcor profile image
dadcor

I am using it.. No side effects at all.. The dose appear to be individual, you should identify youself what works for you.. With me it is about 2x10g/day and it replaced the Sinemet . I was taking 100/25, 2tbl per day..plus other things. Now I do not feel a need for Sinemet. it is already almost 4 months since I am using Mucuna..

Bolero profile image
Bolero in reply todadcor

Your comments are very encouraging dadcor. Thanks for taking the time to contribute

...Robson

marcet profile image
marcet in reply todadcor

Hello do you still use zandopa ? I am trying to mix it with green tea bit it doesn’t mix well. How do uou use it ?

dadcor profile image
dadcor in reply tomarcet

Hi, yes I use it. It tastes sweet enough. I just put my quantity in about 100 ml of water, stir it up well, leave it for about 10 min, tnan stir it up again and drink it all before it would settle down. Than I drink additional glass of watter. Thats all..

marcet profile image
marcet in reply todadcor

Thanks

Angora12 profile image
Angora12

Read the book mucuna versus parkinson treatment with natural levodopa. By Dr Rafael Gonzalez. Available through amazon get english version. very good.

Zandopa 1 scoop supplied is equal to 250 gm sinemet. There r 3 teaspoons to a flat scoop. So you need to do a bit of calculating . Reduce the sinemet by half on one of yr daily doses then replace that with the equivilant dose of zandopa . You change over slowly as you will read in book.if you have not taken sinemt and or matapar all the better. The book is the result of clinical studies.

Good luck its worth it

Bolero profile image
Bolero in reply toAngora12

Thanks heaps Angora12. I've been considering a switch to Zandopa for quite a while because Sinemet doesn't seem to do anything for me. I take one 100/25mg tablet x 4 times during the day, so it is a reasonably modest dosage I'm on. However, there have been times when I would swear that my general mobility is worse after taking Sinemet, but you have to be careful making statements of that nature because the mind can play tricks with you when you feel negative about something. My diagnosis is reasonably recent (June 2015), but I resisted taking any prescription meds for it for nearly 6 months.

Thanks also for the basic calculations, but I will also order the book.

Robson

Angora12 profile image
Angora12 in reply toBolero

As you change your daily dose over and settle on one of your 4 x a day then start on the next dose till you finally change over all doses. As parkinson increase you will have to up your doses we do it by half teaspoons. You will feel mucuna kick in in about 20mins. Restless legs will stop and constipation is helped also. You will get alot of help from the book.

Bolero profile image
Bolero in reply toAngora12

I've ordered the book. Can't wait for it to arrive. Thanks again.

Robson

marcet profile image
marcet in reply toBolero

I am starting to use zandopa and I would like to know how much you are now using ? How many grams ? Are you happy with it ? Thanks

Bolero profile image
Bolero in reply tomarcet

I haven't started using it yet, but "D" day is next Monday. I wanted to be absolutely sure of what I was doing and bought a copy of the book for my doctor too. He is pretty relaxed about me doing this, but can't offer a lot of informed guidance to the process. I will keep the group posted. Meanwhile I plan to start by using one scoop of Zandopa to replace my 8.00 am sinement and build progressively from there.

silvestrov profile image
silvestrov

A while back I posted an article showing the conversion equivalents of madopar to Zandopa to sinemet:

healthunlocked.com/parkinso......

marcet profile image
marcet in reply tosilvestrov

Thanks for your very interesting article

Quipu profile image
Quipu

I've been taking it along with carbidopa/levadopa (genetic Sinemet) - it works great for me. My dosage is a half of spoon. I take 1 25/100 at 8am then take the half spoon of Zandopa at 9am. My reasoning is to take advantage of the carbidopa in my system to absorbed more levadopa which allows me to continue to be functional and work for 6 hours. Then I take my 2nd dosis at 2pm and 3pm respectively. When I'm on the road I substitute the Zandopa with 7 capsules of 15% mucuna.

Bolero profile image
Bolero in reply toQuipu

Rafael Maldonado, in his book, strongly advised against taking any form of Mucuna if you also had rhythm problems with your heart or were taking blood thinners. I have both, but after prevaricating for weeks I took the plunge and tried the Zandopa I had purchased. Before two days were up I had some scary heart rhythms that stopped my experimentation in its tracks. So I am genuinely pleased for anyone for whom this natural remedy is working, but sadly it doesn't include me.

Quipu profile image
Quipu in reply toBolero

I read his book. There are some other ways that may help you such as amino acids or coconut oil, you can find the threads on this forum. Most importantly stay active and positive, just keep searching for what works for you.

Bolero profile image
Bolero in reply toQuipu

Thanks mate,Your empathy is appreciated.

Not what you're looking for?

You may also like...

Zandopa

My husband has been advised to try Zandopa as a sort of test to see if he has early stage PD....
BonsaiKid profile image

Does anyone have any reliable information about ZANDOPA?

I have been on Sinemet for six years - 800 mg currently - and now that the s/e are severely...
batwing7 profile image

Zandopa dosage

Hi, I have just bought some zandopa but it doesn't have any dosage instructions with it and no...
GillRob4 profile image

Medicine/Supplement Regime (Mucuna etc)

I just thought I'd share my dad's current medicine regime in case it will help other people....
pdkid profile image

Sinemet and speech?

Hi everyone, maybe one of y’all will have an answer this question.Before I take my sinemet I can...
Kt088 profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.